Epilepsy Sparks Insights

Rare Epilepsies, Patient Advocacy, & Becoming a NEUROLOGIST- Phillip Pearl


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In this second episode with Dr Phillip Pearl, we explore the human side of rare epilepsies: what drives him as a paediatric neurologist, how advocacy transforms progress, and why research in ultra-rare conditions can change the lives of people with common disorders. We also tackle difficult but vital topics - SUDEP, depression, and suicide in epilepsy - and end on a hopeful note with music and the brain!

 

🌐 More about Phillip 👇🏻

https://www.torierobinson.com/epilepsy-sparks-insights/phillip-pearl-rare-epilepsies-sudep-neurology-journey  

 

👕 Check out our cool merch 👇🏻

https://epilepsy-sparks.creator-spring.com 

 

🌐 More Epilepsy Sparks Insights 👇🏻

https://www.torierobinson.com/epilepsy-sparks-insights 

 

🎧 Watch the chat on YouTube 👇🏻

https://youtu.be/scBYPashBAs 

 

📖 Chapters

00:00 – Intro

00:56 – Meet Dr Phillip Pearl

01:17 – What keeps you going, as a paediatric neurologist

03:19 – Choosing paediatric neurology

05:06 – Falling in love with neurology

06:25 – Future of metabolic epilepsies

07:30 – Gene therapy breakthroughs

09:44 – SUDEP & risk awareness

11:18 – Depression, mortality, & suicide in epilepsy

11:55 – The intersection of music and epilepsy

12:28 – Conclusion & thanks

 

🔤 Don’t understand all the terms used? Check out the Epilepsy Sparks Glossary! 👇🏻 https://www.epilepsysparks.com/glossary 

 

📲 Join us on social media!

- LinkedIn https://www.linkedin.com/company/epilepsy-sparks 

- Bluesky https://bsky.app/profile/epilepsysparks.bsky.social 

- Instagram https://www.instagram.com/epilepsysparks 

- Facebook https://www.facebook.com/epilepsysparks  

- TikTok https://www.tiktok.com/@epilepsysparks 

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Epilepsy Sparks InsightsBy Torie Robinson

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