Rare Together Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes

Dan DeFabio and Bo Bigelow founded The Rare Disease Film Festival and have just created The Disorder Channel, accessible through Amazon Fire and Roku. Their work is connecting patients and families, raising awareness and inspiring a lot of conversations.

Global Genes is having a virtual 10 day summit, September 15th - 25th, 2020. On September 16th, 17th and 18th, they're holding a watch party with Dan and Bo. This event is free for patients and advocates, so check it out!

EPISODE HIGHLIGHTS

Dan, how long did you think about creating The Rare Disease Film Festival and why did you want Bo to be a part of it?

Bo, what did you think you could add to The Rare Disease Film Festival?

Tell me about the first festival you had.

Bo, how did you feel after the first festival weekend concluded?

Due to the most recent event in New York City being cancelled, where did the idea to pivot into a tv channel come from?

How does someone create a film?

Tell us about the event with Global Genes that's coming up in a few weeks. 

LINKS AND RESOURCES MENTIONED

The Rare Disease Film Festival

https://www.rarediseasefilmfestival.com/

The Disorder Channel

https://www.thedisordercollection.com/

Global Genes

https://globalgenes.org/

A RARE Patient Advocacy (un)Summit

https://globalgenes.org/event/live/

ONCE UPON A GENE - EPISODE 015 - Films and Fatherhood

https://bit.ly/34xmJfH

ONCE UPON A GENE - EPISODE 028 - Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival

https://bit.ly/2YzhAQy

How To Make Your Own Rare Disease Film

https://www.rarediseasefilmfestival.com/blog/2020/3/2/how-to-make-your-own-rare-disease-film

TUNE INTO THE ONCE UPON A GENE PODCAST

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CONNECT WITH EFFIE PARKS

Website

https://effieparks.com/

Twitter

https://twitter.com/OnceUponAGene

Instagram

https://www.instagram.com/onceuponagene.podcast/?hl=en

Built Ford Tough Facebook Group

https://www.facebook.com/groups/1877643259173346/