Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

S1 E1 Bonus: PANDAS/PANS Advocacy Day on Capitol Hill - Join us on April 12, 2024


Listen Later

In this bonus episode, I will be talking about our second annual  PANS/PANDAS Advocacy Day on Capitol Hill, a joint event planned by the National Alliance of PANS/PANDAS Action (NAPPA) and The Alex Manfull Fund (TAMF) to be held on Friday, April 12th in Washington, DC.  My guests -- Amanda Peel Crowley, co-founder of NAPPA, and Paul J. Murphy, Treasurer of The Alex Manfull Fund -- have all the details!
LINK to register:  https://thealexmanfullfund.org/advocacy-day-on-capitol-hill-2024/

On Saturday, April 13th, our second annual 5K Run/Walk will take place.
LINK to register: https://thealexmanfullfund.org/the-alex-manfull-fund-2024-5k-run-walk/

BREAKING NEWS: April 8th marks more than (just) solar eclipse!
The Alex Manfull Fund Silent Auction will go live on Monday, April 8th at 12:00 p.m. and will end Sunday, April 14th at 9:00 p.m. with the culmination of the weekend events.
The ECLIPSE serves as a metaphor for the unique and marvelous nature of "36 Hours in DC," a time when patients, advocates, doctors, researchers, scientists, health providers, and legislators come together to advance change on PANDAS/PANS. Where the lives lost will move us all to a place where no life ever again be cut short -- or interrupted -- by infection-associated neuroimmune disorders.

Together, we can ECLIPSE PANDAS/PANS!

Here is the LINK to view the auction items: https://alexmanfullfund.betterworld.org/auctions/going-distance-capitol-hill-poto

Recorded March 29, 2024.

Disclaimer: The views and opinions expressed in this program are those of the speakers and do not necessarily reflect the views or positions of any entities they represent.

Credits: Music by Kingsley Durant from his "Convertible" album

To learn more about PANDAS and PANS and The Alex Manfull Fund, visit our website: TheAlexManfullFund.org

Follow us on:
Facebook
Instagram
LinkedIn

...more
View all episodesView all episodes
Download on the App Store

Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric DisordersBy Susan Newman Manfull, PhD

  • 5
  • 5
  • 5
  • 5
  • 5

5

16 ratings


More shows like Untangling PANDAS & PANS: Conversations about Infection-Associated, Immune-Mediated Neuropsychiatric Disorders

View all
TILT Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children by Debbie Reber

TILT Parenting: Strategies, Insights, and Connection for Parents Raising Neurodivergent Children

969 Listeners

The Doctor Youn Show by Dr. Anthony Youn

The Doctor Youn Show

1,071 Listeners

The Dr. Hyman Show by Dr. Mark Hyman

The Dr. Hyman Show

9,205 Listeners

The 1000 Hours Outside Podcast by That Sounds Fun Network

The 1000 Hours Outside Podcast

1,901 Listeners

Raising Good Humans by Dear Media, Aliza Pressman

Raising Good Humans

1,835 Listeners

Uniquely Human: The Podcast by ART19    Uniquely Human

Uniquely Human: The Podcast

406 Listeners

The Baffling Behavior Show {Parenting after Trauma} by Robyn Gobbel

The Baffling Behavior Show {Parenting after Trauma}

243 Listeners

We Can Do Hard Things by Glennon Doyle and Audacy

We Can Do Hard Things

41,099 Listeners

The Root Cause Medicine Podcast by Rupa Health

The Root Cause Medicine Podcast

558 Listeners

Red Pill Your Healthcast by Dr. Charlie Fagenholz (@drcharliedc_2.0), Lauren Johnson (@naturalnursemomma)

Red Pill Your Healthcast

773 Listeners

The Mel Robbins Podcast by Mel Robbins

The Mel Robbins Podcast

21,131 Listeners

At Peace Parents Podcast by Casey

At Peace Parents Podcast

331 Listeners

PANS/PANDAS STORIES by Jo Joyner and Lucy McDonald

PANS/PANDAS STORIES

13 Listeners

Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Families In Crisis Mode by Podcasts By Federated Media

Surviving The Flares: An Emotional Toolkit For PANS/PANDAS Families In Crisis Mode

9 Listeners

Mom & Doc Talk: Healing PANS/PANDAS by Resilience Naturopathic

Mom & Doc Talk: Healing PANS/PANDAS

5 Listeners