Schizophrenia: Three Moms in the Trenches

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Guests: 

Robert S Laitman, MD,

Mimi Liu, Doro Mind

At Doro Mind. the mission is to provide compassionate, accessible, and dynamic care and support for individuals suffering from psychosis and their caregivers.

Dr. Robert Laitman is a psychiatric internist dedicated to changing the treatment paradigm for psychosis. He is the author of “Meaningful Recovery from Schizophrenia & Serious Mental Illness with Clozapine” which outlines his families personal story supporting his son through schizophrenia and pioneering a novel evidence based approach to psychosis treatment with clozapine.

Mimi Liu is the former COO & CTO of Firefly Health, where she led operations and tech for delivering integrated primary care and behavioral health services. Mimi leads Doro Mind with the personal passion that comes from supporting her brother through his journey with psychosis.

Into the Light movie episode : #94

Links:

https://www.doromind.com/

https://www.teamdanielrunningforrecovery.org/

Dr. Laitman’s book:

https://a.co/d/iLrDwvC

Daniel Laitman on Youtube:

https://youtu.be/uBdJWFvP-uc?si=8ECR7DfhDGc3gdHx

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Guests: Suzy DeYoung, Catherine Galda, Trauma Informed Parent 

When parents are Trauma Informed they are better equipped to help their children heal - and to take care of themselves. Trauma Informed Parent offers information, resources and perspective for parents and caregivers of children, teens and young adults who have experienced trauma or adverse childhood experiences.

We Talk About:

• How did you get into this line of work? What do you hope to achieve?
• What are behaviors/issues/symptoms in young people that could be indicative of something trauma or mental health related?
• What are the most important things to know as a parent or caregiver of a young person who has had a traumatic experience?
• What about the trauma to the whole family when mental illness strikes a loved one?
• Value of Early Intervention and Treatment, and Structure.

Links:

Trauma Informed Parent 👍

http://www.traumainformedparent.com/

Facebook Page

https://www.facebook.com/traumainformedparent

Instagram

https://www.instagram.com/traumainformedparent/

YouTube

http://UCDfje87BkDGkpxcg1fvqO_w

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Hosts:

Who:

Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

Miriam Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

But Where Can They Live? : Housing for Those with SMI  (Ep. 105)

Guests: Lynda Kaufmann, Psynergy Programs

Ellie Skelton, Touchstone Mental Health

Housing:  Access to affordable and supportive housing remains limited.

Individuals with mental illnesses are significantly more vulnerable to housing instability and homelessness. Factors such as unmanaged mental health symptoms, job loss, inpatient treatment, or involvement with the criminal justice system often compound the challenges they face in securing and maintaining stable housing. Without stable housing, recovery from mental illness becomes unattainable.

There is an urgent need to sustain and expand permanent supportive housing. Many individuals thrive when they have access to ongoing, housing-linked services that help them maintain their homes, build positive relationships with property management and neighbors, and integrate into the community. However, these critical services are often underfunded, putting housing stability at risk for those with mental health needs.

LINKS:

https://psynergy.org/

https://touchstonemh.org/

Corporation For Supportive Housing:
https://www.csh.org/

Past Episodes Mentioned include:
Treatment Advocacy Center and AOT: Ep. 31
Homelessness: Ep. 41
Dual Diagnosis: Ep. 53
Dr. Laitman: Ep. 7
Dr. Amador: Ep. 27
Conservatorship: Ep. 6
Housing Heals: Ep. 56
SSI/SSDI: Eps. 50 and 70
Pooled Trusts: Ep. 99

•  Coro Report - "No time to waste.."  A research study of the housing crisis for Californians with SMI
•      Community Capital Expansion - creating more housing, one bed at a time   https://www.ccegrant.com/  Psynergy received $8.2 million for an older adult           assisted living program that opened 9/12/24.  The Dept. of Social Services received $4 billion in applications for the $570 million budgeted.  See Media          Release
•      Modified Therapeutic Community - Summary from NREPP and NIDA reports.  The model of care we adopted since 2008 that supports clinical and       therapeutic services adjacent to residential housing. Both licensed care and unlicensed care.  
•     San Mateo NAMI Presentation  “Doctoral Students from USF working on “The Invisible Population” Project."
      Presented by Kristin Moser, BSN, RN and Solutions for Supportive Homes.
  1. Solutions for Supportive Homes is a Bay Area group of committed parents & community professionals working to increase the supply and the quality of permanent, affordable, health-supporting homes where adults living with long term special mental health needs,  They are united by two searing questions:  Where will my adult child live?  And who will help them when I am gone?

 Recording:

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

The Neverending Cycle: Crisis, Coping, Advocacy (Ep. 104)

Guest: Rachel Streiff: Mental Health Advocate, Mentor to SMI Caregivers,

NAMI F2F talks about the the emotional stages for families: Crisis, Coping, Advocacy

Unfortunately, like a game of chutes and ladders, you can cycle back at any time. Only thing is - it all becomes more familiar each time. You know where you are.

Randye is in crisis, Mimi is Coping, Mindy is out there advocating - meeting with a judge and legislator who are mental health champions about civil commitment statute and how to get better services for the the ones who are so ill they slip through the cracks,

So our special mom #3 guest, Rachel Streiff, joins us again (episode 37 - Advocating for the Best Available SMI Care)  to ask for all our help in her advocacy - the Angry Moms (see episode 67) fight to remove REMs requirements for clozaril need signatures on a petition, and letters to the FDA.

And - we all always advocating. Just that the room for that shrinks when in crisis. Podcast hosts are not immune. The other shoe can fall at any time.

The Cycle Never Ends - so let’s talk about it. No one is alone - no one is immune.

Links:

http://www.change.org/EndtheclozapineREMS

https://www.theangrymoms.com/

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Amazing Grace: Single Mother, Adult Son with Schizophrenia, Award-Winning Short Film (Ep. 103)

Guest: Aiden Keltner, Filmmaker

Based on the true stories of many families, Amazing Grace tells the story of a single mother caring for her adult son with schizophrenia.

Aiden Keltner is the filmmaker, and did some of his research in focus groups gathered by Randye and Mindy, and is a treasured friend of this podcast!

Amazing Grace is a three time Emmy Award recipient (NATAS PSW) for Best Arts/Entertainment Program, Best Director and Best Performer (Deborah Gilmore Smyth).

Aiden's focus as a filmmaker, is on telling underrepresented stories from the mental health community. Aiden has been inspired by his own lived experience with close family members diagnosed with serious mental illnesses. Currently, he is developing different feature films on this subject.

We ask:

• your story/motivation for doing this film
• your research with Mindy and Randye and others
• what happens next?
• what can film do for these communities?
•  what kinds of stories we hope to see in film and media representing SMI - the moms chime in

Links:

Contact: [email protected]

Amazing Grace Film: https://vimeo.com/1005014736

Website: https://www.aidenkeltner.com/

Instagram: https://www.instagram.com/aidenkeltner/

Facebook: https://www.facebook.com/profile.php?id=100013107667252

Facebook: facebook.com/agshortfilm

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Guest: Lindsay Mary Galvin Rauch, Mental Health Advocate/Speaker

“ I draw inspiration from my upbringing with ten older brothers, six of whom bravely fought schizophrenia. Sharing my story and journey can make a positive impact. Let's break the stigma together.”

Many years ago, Lindsay Mary and her sister, Margaret Galvin, decided they wanted to share their family story in the hopes it would reduce or eliminate the stigma associated with schizophrenia and mental illness for other families. They also wanted to give hope to those who have been traumatized by these brain disorders. After selecting Bob Kolker to be the journalist to bring their story to life, they never imagined their story would become a New York Times bestseller. This profile has resulted in significant interest to transition their story into a documentary and mini-series which they hope will accelerate and deepen the conversation around mental illness enabling thousands more to benefit from our pain and experience coping with this reality.

We ask:

•  your journey, especially your life now as an adult sibling
• What part does anosognosia play in your family story with SMI?
• The documentary based on the book - what would you change?
• Your work as an advocate and speaker
• what you would say/advice to adult siblings of those with SMI

NOTE: Episode with Bob Kolker is #25
Episode with our daughters: #19

Links:

https://lindsaymarygalvinrauch.com/

Book:

https://a.co/d/9nokCML

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Please note: if you write us “Fan mail”  (thanks! )- please include some contact info (email is best) if you want a reply.

Guest: Ken Duckworth, NAMI Chief Medical Officer

Ken Duckworth’s journey into psychiatry started when he was a boy growing up with a dad who experienced severe bipolar disorder. His father was loving, kind and periodically quite ill, hospitalized for months at a time. Ken became a psychiatrist in part to help his father. He is very fortunate to serve as the Chief Medical Officer for NAMI and to be part of this remarkable community. 

Ken recently authored NAMI’s first book, “You Are Not Alone: The NAMI Guide to Navigating Mental Health―With Advice from Experts and Wisdom from Real People and Families.” Written with authority and compassion, this is the essential resource for individuals and families seeking expert guidance on diagnosis, treatment and recovery, featuring inspiring, true stories from real people in their own words.

We Ask about:

•  your journey, 
• your book - 
• Thoughts on parental responsibility and liability, and 
• any promising new research in schizophrenia.

LINKS:

NAMI:

https://www.nami.org/

You Are Not Alone Book:

https://a.co/d/gki4xvi

Ask the Expert:

https://www.youtube.com/playlist?list=PLlZf3Rbl5IeolHREKufjax_iD_mEj2Pdh

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Hosts:

Who:

Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple)

Miriam Feldman -  is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.

Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can.

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Guest: Kody Green, patient advocate

Kody lives with schizophrenia and is a motivational speaker/content creator with over a million followers on TikTok alone (@schizophrenichippie). He has also overcome struggles with drug addiction and incarceration, which he shares information about on his platform. To be a better advocate and speaker, Kody has been trained as a peer support specialist, recovery coach and suicide prevention specialist.  

Kody's podcast is called Unseen & Unheard:
https://podcasts.apple.com/us/podcast/unseen-unheard/id1589319270

"After my release from incarceration and my schizophrenia diagnosis, I thought there was nothing left for me. When I started sharing my story online, I did not think anyone would care. After gaining 1 million followers on social media, I realized how my struggles and my story could help others." Kody J. Green

We will ask Kody to share his story, and especially:

• Incarceration experience and steps afterward
• Long-acting injectables
• Anosognosia - did he ever have it?
• Did he have family support? (we are moms, soo…..)
• His upcoming book!

Links:

Here is his website: https://www.kodygreen.com/

Here is a link to his TikTok: https://www.tiktok.com/@schizophrenichippie?lang=en%22%20\o%20%22https://www.tiktok.com/@schizophrenichippie?lang=en%22%20\t%20%22_blank

https://www.hopeforschizophrenia.com/

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

What Will Happen When We’re Gone? Trusts, Pooled Trusts and More-Ep. 99

Guest: Megan Brand,  Colorado Fund for People with Disabilities Executive Director

Dani Page, JD (her other episodes with us are Episodes 50 and 70)

In its simplest form, a Trust is a relationship, in which one person holds title to property, subject to an obligation to keep or use the property for the benefit of another..

We ask:

• Can we use Trusts to help our loved ones with SMI - now, and after we are gone?
• Some of the differences between Pooled Trusts and Individual Trusts?
• How to evaluate Pooled Trust Organizations or other Trustees when considering who to name as trustee

• How does the Secure Act impact the ability to provide support through inherited IRA's
• Language in trust documents to cloak our loved ones from creditors getting ahold of trust money needed to support their lives after we are dead.
• What can we set up now so that our loved ones will be okay after we are gone….and not to put a huge burden on their siblings?

Links:

https://www.cfpdtrust.org/

www.cfpdtrust.org

https://nationalplanalliance.org/programs/

https://aptrusts.org/

Elder Law Attorneys:

https://www.naela.org/

Certified Elder Law Attorneys (CELA):

https://www.americanbar.org/groups/senior_lawyers/resources/voice-of-experience/2010-2022/what-cela/

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman

Send a Text to the Moms - please include your contact info if you want a response. thanks!

Purpose, Belonging, Community: Starting and Opening an International Clubhouse for People with MI -Ep. 98

A New International Clubhouse in Minnesota, USA!

Guests:

Karina Forrest Perkins , Chad Bolstrom, Vail Place 

Nishi and Margaret, Members

Vail Ramsey County Clubhouse in MN, USA had a huge turnout for its Grand Opening event and ribbon cutting ceremony. Vail Communities in Minneapolis is spearheading the Clubhouse expansion.

The Clubhouse is a "One-Stop Shop", functioning as a community-based hub, a single point for people to access, integrate, and coordinate a range of services to work toward mental health recovery.

How Can YOU start one?

The Vail Communities Clubhouses are just two of over 300 programs that follow the Clubhouse Model. A Clubhouse is a place where members and staff work together side-by-side to operate all aspects of the Clubhouse. The Clubhouse can also help with housing, employment, education, health and wellness and so much more. The Clubhouses also offers a wide variety of social, recreational, and cultural events and activities.

Links:

https://vailcommunities.org/clubhouses

• https://clubhouse-intl.org/what-we-do/what-clubhouses-do/
• https://clubhouse-intl.org/our-impact/clubhouse-outcomes/
• https://www.vailplace.org/join/clubhouse-program/
• https://edition.pagesuite.com/popovers/dynamic_article_popover.aspx?guid=bf1bddf3-b973-4d4d-a523-1d62aa732684&v=sdk&appcode=STP731&eguid=3368cea9-0776-4c6c-86cd-7d731136318b&pnum=1
• https://www.minnpost.com/mental-health-addiction/2024/02/vail-place-poised-to-open-mental-health-clubhouse-in-st-paul/
• https://www.youtube.com/watch?v=YLzfYUQ76gc

Mindy and her book: https://mindygreiling.com/

Randye and her book: https://www.randyekaye.com/

Miriam and her book: https://www.miriam-feldman.com/

Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman