Ep075: Does back to school season hit you hard, too?

Why is it so hard and triggering and exhausting to go back to school (even if you’re not a student or have a student in your life right now)? And what is this idea, “pervasive demand avoidance” (or a persistent drive to autonomy) and how can it crop up during massive transition times?  David and Isabelle come back from a summer spent working on exciting new Something Shiny resources and describe some of the demands that may be filling up your slots this time of year. Also included: tangential journeys involving the cinematic classic “Legend,” deep cut Disney songs a la Tim Curry, and Isabelle’s allergy medicine hallucination moment.

—-

David and Isabelle welcome fall and the new school year, complete with the way germs start circulating and sick days shoot up once the school year kicks in, and then histamine levels and allergy medicines. There may be some links between antihistamines and psychiatric symptoms (see link below!). Isabelle describes a hallucination she had when taking a commonly prescribed allergy medicine, referencing the Tom Cruise movie, Legend. This brings up how intense children’s movies were back in the day, where kids were in real mortal danger a lot and awful things happened a lot. David recalls how intense Willy Wonka was, with the kids getting killed and then the tunnel sequence, which leads to Isabelle remembering how she shopped a class in college about children’s literature and it was all about Roald Dahl and how he hated childhood and was bullied and just dealt with a lot of things that made him hate kids. So, returning to Isabelle’s hallucination, she wakes up from a sleep, she sees Tim Curry in Legend demon costume asking if she has anything to eat, and she knows she’s hallucinating, but it was in the room. She hears him working in the kitchen. She then sees a pig walk in with human hands for feet, she wakes up, she is fully awake, the pig fades away, and she walks into the kitchen, and I say “You’re not real, I’m hallucinating” and he says “of course.” Also, it was almost morning, light was in the space, this wasn’t sleep paralysis or lucid dream, she fixed breakfast, called the doctor, and stopped taking this medicine immediately. Of course she told the whole story to the doctor because of course these details would be important. David names how strange the brain is and all the connections are. And this links up to an amazing CD put out by Disney where Tim Curry sings a Davy Crockett song. David was tormented by this song in elementary school, and they would make fun of him by singing this song at him, but why did this bother him actually? Isabelle recalls that back to school season as more triggering than she realized, she would use the relationship with her teacher to accommodate her, to do the hard things and ask for extensions and try and be. The teacher at her kids’ school was not picking up on her big hand gestures and quirk and charm, so two questions: 1) back to school season being triggering? And 2) when there is a vacuum, she becomes a cartoon character, as their previous guest Ren, brought up. Going back to school is so complicated; David notices that when he sees the back to school supplies on sale, it was a “gulp,” it always meant more work for him, the break being over. Now that he is not in school anymore, it has become a bit more of a “haha, I don’t have to do that anymore.” But regardless he wants to point out that neurotypical or neurodivergent alike, this is a time of intense transitions, beginnings and endings, and routine changes, and waking up earlier (for parents and kids and even fellow commuters who suddenly have to notice when school is in session on their traffic routes), it is a hard, hard time. It’s highly activating on a nervous system level, and germ load aside, kids will need down time and fatiguing and the adjustment period. This brings up the idea of cognitive demands on us—hold up ten fingers, and each slot is taken up with a task or a load: “buying school supplies,” “I’m sad my kid and I won’t have the same together,” and “I gotta change my morning routine” — in the face of so many demands, things become a can’t, not a won’t. In the face of so many demands, I actually can’t do any more, even a pleasant thing, everything is one ask too many or one step too much. And some people don't have ten slots, they have two—for example, a kid being ushered into a transition, even like three requests of a parent is actually too many demands, and they respond with “I don’t wanna” but also what’s in there is they cannot. They can do more, but with help. They’re going to get crispy and ragey, you become oppositional, pick fights, it looks like a sensory overload, or a shutdown, I am going to avoid anything that I perceive as a demand. David not sure how he feels about this diagnostic label because when we’re overwhelmed, we SHOULD react this way. Video of how it felt for a person who is autistic went into a grocery store, the screen started to pixelate the farther into the store they got, it was like a satellite’s images during a storm. David gets into a place where he goes “NOPE” and it comes from a place where he has nothing left. Is he pathologically demand avoidant, but aren’t we all? Actually isn’t this a common thing we share across. Isabelle is going into neuropsychological testing with her family to update things, and carries a lot of curiosity going into it about sensory stuff, and wants to welcome it. You see it reflected in people around you, and ton of people around her identify as being on the autism spectrum and oh, that is where she finds her tribe. For her learning about PDA is the closest she’s come to for resetting her expectations for herself, and “oh, I’m not just trying to avoid hard work,” it’s “oh, I ran out of spoons and slots, I had no bandwidth.” David names that this is a thing that connects with neurodiversity and not being resourced. Power struggles are going to be activating all the time, and just because a power struggle is happening is not PDA—but on the autism spectrum, sound, texture, movement is filling the slots, too. It can help illustrate that it’s important to lower the demands and help your kid (or yourself) by meeting yourself with compassion. David and Isabelle also mention that they are working on a energy bar idea…more to come!

Antihistamines connecting to psychiatric side effects, like hallucinations

Legend (1985, starring Tom Cruise) trailer- Tim Curry is the voice...and shows up around 0:48. YES THIS IS A KID'S MOVIE.  

Intense kids movies

Stand by Me (1986) trailer (PS. this is based on a Stephen King short story, "The Body") YES THIS IS A KID'S COMING OF AGE MOVIE.

Willy Wonka and the Chocolate Factory Tunnel Scene Clip— Again, kid's movie. 

Roald Dahl book: Boy 

Disney Parks CD track list

Tim Curry sings the Davy Crockett song  (side note, Isabelle really did a great impression of this) 

What happens when the rewards for doing something don't show up until way later? Or if it's harder to tell you're making progress on something, like saving money, applying for jobs, buying a house? David and Isabelle are joined by Isabelle's husband, Bobby, who also has ADHD, swapping stories about delaying gratification, shame spirals, and how we ruminate and distract AND hyperfocus for the win.
---- 
 The only thing that’s reinforced are tasks toward goal completion. What could I do today that would move me toward that goal? The  only question: is it moving toward my goal? If so, it’s effective (or if not, not effective), rather than good or bad. For example, David venting about his paper to his friend helped him be on task, rather than not being on task and going out to eat at Burger King—it’s still about the paper (it’s still on task). How effective is it toward the task? More effective than going to Burger King and not talking or thinking about the paper at all. Long term goals are specifically hard for folx with ADHD because of the delay of gratification. The more you wait, the more you feel like you’re failing. Neurotypical folx will read that waiting as normal or to be expected. Bobby names things like saving for retirement, saving for a house, paying off debt—the progress is so slow it feels so boring. David relies on his awesome neurotypical partner to save for a house by taking what they would pay for a mortgage every month and saving whatever that was on top of their rent (so if their Lego House rent was $10, and they wanted a $30 mortgage, they saved the extra $20 every month). Isabelle wonders if neurotypical shame spirals go as deep as neurodivergent ones—for example, David’s goes to homelessness, and she notices that neurotypical folx notice how close they got the finish (like getting the brick at the bottom of the pool during swimming lessons), and factor that in, whereas for her it’s the outcome that matters and she goes straight to everyone she loves is going to abandon her and ditch her. David names that he has a few shame spirals—for work, it’s homelessness, for relationships—it’s abandonment. This leads to black and white thinking, which is more than just worth mentioning, it’s the difference between “not getting a snack” to “failure begets failure begets FAILURE…” And this extreme is dismissed so often, people don’t get it. As a therapist you’d never say “it’s not a big deal,” you’re invalidating those feelings. What we ADHD folx feel, our level of intensity, is REAL—instead of “it shouldn’t hurt that much,” it’s “that’s extremely frustrating.” Bobby is slurping all this data up, and taking the feels, and feeling them…and that’s what you do. You acknowledge how intensely you’re feeling them. Bobby sits in the role of “Novice EveryDay-er…Every Day Dude” (which is what it says on his nameplate). And not just acknowledging your feels, but acknowledging the intensity of how strongly you feel them. Feel the feeling, know it’s more intense, or it might not be felt by other people. And do what you need to do to regulate—-as opposed to let it go. It’s like telling someone with ADHD not to look at the ceiling (we all looked at the ceiling). Telling someone to fight something is not effective, it can go on forever in a power struggle. Isabelle describes that she prefers the phrase self-soothe to self-regulate, because it can be a pressure to return to masking and appearing as though you are neurotypical or ‘regular.’ David is wondering if self-soothing is the task, actually—you might not be able to soothe or make the injury out of the way, and instead get grounded again. It’s not about getting out of your ADHD mindstate, it’s about lowering your hyper focus and lowering the pressure to act. David does this intermittent fast now and just got distracted about the food he wants to eat (schwarma)—he’s not pretending he’s going back to the point and instead is focusing on food and saying “Schwarma.” The group decides they will say “Schwarma” any time this happens, if they can remember, which Bobby reassures them he will. Isabelle then describes that she thinks Bobby circumvents working memory problems by using some of the rules of comedy, like callbacks, and then…she also loses the plot and goes back to telling her story. Isabelle describes fixations on movies or things across many genres and seems to do with what the movie makes her feel. She is reminded of one of her roommates in college who was a lovely person, but would fixate on one or two somewhat depressing emo songs and for Isabelle, she didn’t like the emotional state it would generate. So she recognizes that she goes through fasts almost, of media that stirs up feelings because she gets so sucked in, so she avoids fiction and movies and music for a while. Then, it’s like a switch flips, and she gets sucked in and rewatches things over and over again. Like the Netflix film “Tall Girl.” Because she is tall. And it hooked her (despite not being the best movie maybe, but she liked it). And she found time, when she has no time, to watch it four times in the span of a week. What is this? David’s like: it’s the definition of hyperfocus. It’s that you fall into it intensely. It’s that you do the same thing over and over again, or a genre—like David only watched shows that only made it one season. Isabelle can daydream for five hours straight while driving, she can rewatch things in her head. David is naming that this is not the safest driving technique, but David is wondering if there were any changes in this span that changes your capacity to move around? Were there things that gave you more unstructured time? Were there things you were avoiding or wanting distraction from on an emotional level? When all of those things happen, hyperfocus can kick in for preservation, like you’re going to get sucked into the Full Metal Alchemist because you don’t want to think about life after graduation. And in another way, rumination can kick in when you don’t move around during the day, which turns into a type of thinking at the end of the day, those thoughts can be a way to get out that energy. Everyone is going to kick into hyperfocus for different reasons and it will vary based on types and on the environment that they’re in. Isabelle connects very much to preservation idea of hyperfocus, how survival-related it feels and  the times she was in a fandom over a particular show or movie that relate to major life transitions, like graduation, or career changes, or life changes. David names that it’s probably much easier to remember the relationship she had with those things than the transitions themselves. David names that this is a superpower. It usually happens when you’re sitting in helplessness. Are you sitting in your helplessness, or are you sitting in “these amazing actors and actresses are nailing it?” Isabelle insists Bobby will watch it and grow to love it. It can happen when you don’t have structure or your routine changes, and it provides structure—the reality is, for David, it’s important to go wild if you really are in a state of helplessness—then go to town watching all the shows. But if you’re using it to avoid a task, that’s a whole other story. 

Things Isabelle, David, and Bobby have hyper focused on (that are mentioned in the episode):

The Matrix

New Girl

Tall Girl

It’s Always Sunny in Philadelphia

Full Metal Alchemist

Schwarma

DAVID’S DEFINITIONS:

Black and White Thinking: Believing or acting as if there are only two ways of thinking right or wrong. This includ...

Why are some of us anxious and some of us excited (or a combo platter of both)? And is it possible to turn anxiety, or anger, or shame spirals, into something else?  David and Isabelle swap stories, talk transgenerational trauma, and get curious about how we are socialized to mask and behave...and that perhaps the solution for being overly apologetic lies in the midwestern gem: "ope.”
-----
Isabelle starts by expanding on the idea of how you think about things, how that inner landscape can connect into tapping into norepinephrine—if you’re practicing going “I see you anxiety, I see what you’re trying to do, and I’m so grateful I have you because it helps me…” what it means to not shame or blame yourself for having an instinct to worry versus what you do know to be true. Short of someone giving you direct feedback, you don’t have data either way, so saying hi to your anxiety or feeling, and taking a few breaths to be grateful. Then when you do have a tough moment, like a hard meeting at work, you won’t beat yourself up about it as much. David even says: you can skip the shame spiral. Norepinephrine is so much about the inertia and movement of something. People with kids who have ADHD either have a very very clean room, or very very messy room. For those with a messy room, they’re like “where to start? Do I burn it and start over again?” Then you give them one specific thing to do, they earn dopamine from that one thing. So you build momentum by building a feedback loop between dopamine and norepinephrine, because you judge yourself on a very reasonable scale. If you make a broad request, it’s like “whaaa?” If you say “pick up your legos” or “Hunt for all the legos you can, you have 7 minutes, you earn 3 snarf points? What’s a snarf point? I’ll tell you in 7 minutes”—you now have specificity, and time pressure, and reward. Isabelle describes that she lives in the anxious side of the spectrum, and David lives in the excitement of it. If anxiety and excitement are the same physiological symptoms, how can you replace the two things? Isabelle wonders at her anxiety, which she is not bummed about, but knows that it’s a part of her, and also knows that it has served her and her people across the generations—like she feels less anxious when she has a very stocked pantry or fridge. How can that be turned into excitement? We’re talking about the interplay of epigenetics, and the interplay of how you lean into the anxiety. If you’re in the United States, you’d be hard pressed to not have a transgenerational history of trauma, and as men and women (and non-binary folx), we are treated differently and are rewarded for going to anger or anxiety.  Men are traditionally reinforced for getting angry in the U.S.—it’s reinforcing for them, and it’s not great, and in the same way anxiety may be reinforced for women. Not that it’s so cut and dry and binary-based. David elaborates that his impulsivity has been viewed as confidence, whereas for women, it can be viewed as overemotionality, and can be shamed, or put in corners. David had to work really hard to find excitement, he was way more in that angry place, fighting any system, any person he could. When you get angry, you feel yucky afterwards for like two hours, and he met really good friends, had an amazing brother, and had good supports, and a lot of people don’t have that. And he had a choice in that moment whether to get anxious or excited. Isabelle is so grateful David shared that about himself and felt so seen, really resonating with the idea that whereas David’s impulsivity was viewed as confidence, hers was read as overreacting, or overdramatic. She describes how she makes big gestures and shrieks and has big reactions to things and how often she has to blunt them or try to mask them in her daily life. She also recognizes the layers of privilege she carries as a white, cisgendered woman, that she has gotten a lot of reinforcement for her anxiety. Her asking, let’s say, her kid’s teacher a detail-oriented question seems almost assumed, that she would be the one who needs to be vigilant about the details of things, whereas her husband, Bobby, is seen as winning the day if he gets the kids to school, even though he is more effective at this. How we’re socially viewed impacts how we think about it—perhaps Bobby running late is viewed as he was busy doing important things, whereas Isabelle names she has been conditioned to be extra apologetic and nervous and take it on as some awful thing that she’s running late. David goes into Tavistock group dynamics stuff (see show notes below)—based around the work of Wilfred Bion—where people learn how they are in a group. David was in a group and someone came in late and were overly explaining it, the group ended up attacking her about all her apologies—David named there is an art to being late, and it is this: acknowledging the inconvenience, being very small, and apologizing at the end. Don’t talk too much or give too many specifics, just say “my bad” and be quiet and wait to figure out what’s happening. David and Isabelle both agree that they are habitually late, and hate being late, but will be late because of who they are. They just will be. Isabelle names an old meme: “Sorry I was late, it’s because of who I am as a person.” She mentions connecting with her friends, one of whom says instead of saying “I’m so sorry” for being late, reserve sorries for deep relational healing moments where you feel harm was caused, intentionally or not. For example, being late, or accidentally bumping into someone, or dropping something off late—is not always the context for an “I’m sorry,” but instead, you could use the phrase “thank you for your patience.” David agrees, except for the bumping into someone else part—he has to say he’s sorry. Isabelle thinks a simple midwestern “ope!” Will suffice, which David recently witnessed himself doing in the wild. 

Ope: (according to Urban Dictionary) - a midwestern U.S. way of acknowledging another person or thing they have encountered. Ope! Sorry I bumped into you, Jim. Ope, there’s my wallet. Ope! I missed my bus! 

(added by us): Also known as an interjection of surprise and implied apology.

DAVID’S DEFINITIONS 

Epigenetics - from CDC “Epigenetics is the study of how your behaviors and environment can cause changes that affect the way your genes work. Unlike genetic changes, epigenetic changes are reversible and do not change your DNA sequence, but they can change how your body reads a DNA sequence.” (source: CDC)

Transgenerational trauma: from wikipedia
“is the psychological and physiological effects that the trauma experienced by people has on subsequent generations in that group.” (source: Wikipedia) Imagine the collective trauma experienced by groups of people surviving slavery, wars, famine, natural disasters, etc. and the ways in which epigenetic (see definition above) may alter the way even our genes can express themselves and how we adapt and respond to stressors. For more on this, check out the pioneering work of Yehuda and Lehrner (Article on intergenerational transmission of trauma)

Dopamine deficiency? ADHD is often understood as neurobiological (brain) difference, that includes lower levels of dopamine, the neurotransmitter (messenger chemical) in our br...

Why do some of us minimize and reduce the number of choices while others seek excitement and novelty? Why do some of us need everything listed out while others need to just try something blindly? The secret? Different types of ADHD and different ways our ADHD shows up in different environments! David and Isabelle are joined by Bobby and Noah, who also have ADHD, and talk about things like trying to leave the house, deciding what to eat, and why their accommodations all look so different.
-----
Transitions and choices are hard. Isabelle and David are joined by Isabelle’s husband, Bobby, and David’s friend and fellow clinician, Noah, both of whom also have ADHD to talk about different types of ADHD. We don’t remember all the stuff we have to do to leave the house. Isabelle describes a detailed whiteboard and just how long it took to get into the habit of not forgetting things like lip balm. David puts everything into his bag at night. Isabelle has to do a one-touch rule. Noah’s and Bobby’s work bag are empty. Bobby’s really into minimizing things, which David points out is a wonderful intervention, especially for inattentive type— decision fatigue. Noah does this for going out, always ordering a blackened chicken sandwich. How exhausting it is to make decisions all the time. Noah’s experience in a blind restaurant. Bobby’s picky eating is connected to something ADHD-related—hypersensitivity around texture. David’s experience of this is big after decades of vegetarianism, experiencing the texture of meat for the first time (bacon and hot dogs are great. Other meat for him? Not so much). Isabelle references the Paradox of Choice book (TLDR) and describes the phenomena of randomly remembering facts she’s read, but struggling to remember what she read on command. Recognizing that when there is an overabundance of choice, we think we made the wrong one (or are left more disatisfied) because we always think we could’ve picked better. This relates to Isabelle’s reaction to Tinder as something that makes her nauseous thinking about it: too many choices. Same with old school diner menus. Or Cheesecake Factory menus. David agrees. Isabelle describes novelty seeking with food, whereas Bobby wants the same thing. David went to Superdawg and got everything on the menu he wanted because he couldn’t make a decision. Noah would go there, deliberate what to get for 20 minutes, and leave with nothing. Why do we all sound so different and yet similar? We’re talking about the distinctions between inattentive and impulsive ADHD types. What about combined type? Depends on the mastery of the environment: the more mastery, the more impulsive we can be, the less mastery, the more inattentive.

What is Superdawg? If you’re in and around Chicago, you’re welcome to check it out. If you’re not, it’s still a fun place to look into.  From the bottom of our pure beefy hearts. 

Paradox of Choice - book by Barry Schwartz (TLDR for Isabelle but an interesting summary appears on wikipedia). 

DEFINITIONS

ADHD types explained through how we order at a restaurant:

• inattentive type: struggles to figure out what to order, stares at menu (accommodations: always orders the same thing or same type of thing, asking the server for their choice/having the chef or someone else choose for you)
• impulsive type: orders three different entrees (to try them all), or the novel/strange seeming thing on the menu (accommodations: finding new places to eat or food bars where you can throw on whatever you want in that moment)
• combination type: see above and experience BOTH, often depending on your level of mastery/comfort (more mastery in the environment, the more your impulsivity shows up). 

Decision fatigue: the more decisions we make, the more our quality of decisions (or ability to do so well) deteriorates. Too many decisions can lead to an overwhelming feeling, burnout and poor decisions. Avoiding the complexity of decisions, can be an adaptive tool for individuals to preserve brain power for more important decisions, especially when the inattentive-type ADHD experience is loud. Here's an article on how to notice when it's happening to you.

Hypersensitivity around texture: some textures are going to make people feel more yucky inside than you would think they could. Often times it can be really helpful to honor these sensitivities, and not try to push through them unless there's serious impact on food and nutrition.

Here's a quick article on how to cope with hypersensitivities to sound, texture, taste, smell, etc. 

-----

Cover Art by: Sol Vázquez

Technical Support by: Bobby Richards

David and Isabelle navigated the treacherous landscape of surviving and being the lucky ones; are we trash? Are we seahorses? From defeating the enemy that is loose glitter, to brain regions resembling animals, to why it hurts when we beat up on ourselves, tackling the pain and looking at ourselves with intention.

 ——

Isabelle was told she’s a talker, but she’s also a listener. There’s this thing Isabelle borrows from mindfulness practices and therapy ideas: what you resist persists, what you go with flows, go for the ride. She had this moment the other day, at what point is it going to be bore her? She is easily bored, she is initially excited about and then she loses interest in it, she can be hyper fixated on the thing and then it passes, and then why is it that she’s never been bored in a session—it’s never happened: when will it not be exciting or curious? It’s not the same thing as it being easy or effortless, challenge does not mean something isn’t fun, and maybe it’s one of her favorite things to do. David names: it’s amazing to be put into an environment where it’s dangerous if you don’t pay attention to listening, attending to the patterns and themes in the group—it’s almost what I’ve done in my entire life. Find ways to honor ourselves. I want someone to be able to look at me and respectfully out himself more often, and we don’t see the models are dysfunction. “This kid having ADHD and being in jail” is part of the story. Until everything is shiny! Glitter! Except loose glitter which is Isabelle’s worst nightmare. She learned, the hard way, that loose glitter found it’s way into her world, the moment you try to clean it up, it’s “this glitter will be here always.” The glitter’s arch nemesis is tape—you’re welcome everybody. You still have to sit there for hours, but it makes the cleanup satisfying. David has had the thought of rooms with too much glitter and thought: burn this room. Isabelle names that this is different when there is epoxy style glitter in a floor or a tile, or in a shoe—she loves how there’s a lot of glittery shoes, but the glitter is contained in a plastic shell. And there’s something amazing about the shiny but it needs to stay shiny and not be embedded in anyone’s skin. Isabelle's friend pointed this out: David has a pleasant voice, and Isabelle, back in high school, was on speech team, and she competed in radio speaking, where you essentially you get to be in a room separate from everybody and record into a microphone. That got her over her fear of public speaking, only they used tapes and tape recorders. Who knew? These little things, not exactly fate v. Free will—isn’t it interesting the things that had to come into play were miraculous or exponentially improbable. David thinks his survival in life is pretty lucky. Like LeDerick said, we’re statistically survivors, how did we get there? David is sometimes looking at a river and it’s all pristine and there’s this piece of trash attached to a log not getting sucked down the river, and that's him, he’s a piece of trash, and he got saved. He was powerless being swept by the current—a lot of us were—whether we found partners, or friends, or jobs or something. The odds of David getting an advanced degree, being in a counseling practice, and having the same diagnosis. There was a moment in their office, it was Isabelle’s first or second month, and we were talking about structure and stuff, and it went brain-seahorse. And David went “maybe…maybe…” and everyone else just saw, it’s going to go somewhere else. To finish the thought: once seahorses have partnered, upon the first rays of sunlight entering the ocean, they will do a synchronized dance to each other. Speaking of seahorses: the hippocampus is the part of the brain is responsible for episodic memory, ability to time stamp when something has happened in our life, seal it with a declarative context—and to connect it to David's trash metaphor, how a seahorse gets around: it attaches to kelp or seaweed and it floats on the currents, and it mates for life, and takes care of it’s babies, and it does not make sense, and it exists nonetheless. Isabelle doesn’t think we’re trash on a river, we’re the seahorses. David names that 50% of people with ADHD don’t graduate on time. Isabelle names: a lot seahorses don’t survive, statistically there’s so many don’t make it. David names there’s a lot of compassion and meaning to what we see—Isabelle is doing a lot of shaming to the trash. David is not trying to say we’re mistakes, but he doesn’t think the system sees value in us, but we have to see value in ourselves. You see me, I see you, grab my hand, we’ll do things together, we are trying to survive. David is never going to judge survival. Isabelle quotes Carl Rogers, when the potato sprouts, it’s doesn’t matter if it’s in the earth or in the root cellar, it will reach out toward the little shaft of light, and he talks about it as an actualizing tendency, we’re always going toward the sunlight, and everyone else is casting shame “silly potato” but it’s doing what it does. The labels that we put on things can be really distracting, and there’s a big debate about diagnosing, and David names that labels can be minimizing and restrictive, but with ADHD, there’s some power in that label, in knowing you’re not alone, that it’s really hard when you’re dealing with internal invisible motivational things, it's easy to think there’s something wrong with you, and you need to spend time with people that don’t make you feel like trash, and you spend time doing things, and you don’t trash yourself. But also, David identifies with the trash in the river. ANd things changed when he didn’t need the system to find value. How do you relate to yourself in seeing the value you hold and knowing that. It connects to internal family systems, there’s this interesting idea that the reason why when you’re beating yourself up, it causes actual pain—there’s another part, however small or exiled, there is another part that is taking that hit. When we’re beating ourselves up, a part of us is trying to convince the part that desperately doesn’t want it to be true. It’s like trying to beat down a part that inherently knows it has value. It’s not just practicing and noticing the strengths and the peaks, but also having the space and safety to grieve, that you had a lot more peaks, and lot of people missed it, and you were wrong about you, too—there's a whole reckoning. David would use this question to ground himself: “when did that not happen?” Oh, with these people, in that place, when I’m doing x—“where does it not happen?” Even looking at childhood, “my parents were always angry”—when were they not? This makes Isabelle think of your default neural network—you’re brain is going to always do the thing that it's most used to, because it’s more efficient to do the thing you do every day—if you’re not actively or intentionally trying to counter that, you’re going to coast—and if you’ve been knocked down, and you've been hit harder and felt it more acutely than most, and you’re default mode is going to be rough, and it does take concentrated effort to work with this, and that's where environments and community comes in.

 Dr. Daniel Siegel - the neurons that fire together, wire together

Coolest books about seahorses - Poseidon's Steed: The Story of Seahorses, from Myth to Reality by Dr. Helen Scales, Ph.D.

Carl Rogers quote “potato sprout”

...

Does feedback sting extra hard? David introduces the concept of rejection sensitive dysphoria (RSD), where you interpret feedback or questions or redirections as being very harsh and personal, and then really take it to heart—even if that’s not really what is being communicated to you--and how this plays into relationships. This episode, David and Isabelle are joined by fellow ADHD clinician, Noah, and Isabelle's husband, Bobby, who both also have ADHD.
-----
Isabelle & David welcome Isabelle’s husband, Bobby, and David’s friend and fellow clinician, Noah, who both also have ADHD. David introduces the concept of rejection sensitive dysphoria (RSD), where you interpret feedback or questions or redirections as being very harsh and personal, and then really take it to heart—even if that’s not really what is being communicated to you (example: Did you empty the dishwasher? Someone with RSD: WHY DO YOU THINK I’M LAZY?!) What do you do if you and your partner BOTH have RSD and ADHD? Awareness is gamechanging. How you give people the feedback that maybe they’re taking your feedback too personally/harshly? There is a comedic setup in giving people the feedback that they may not take feedback well. What if your partner is neurotypical and feels like your ADHD hyper focus forgetfulness feels like you’re doing things on purpose, then you go down a shame spiral of forgetting (for example)? The neurotypical partner may have resentment towards the behaviors and also, how can it get better? It will happen again, we will fail. Not trying to be something you’re not, but also always working to improve and putting in effort, as well as paying attention to repairs and actually doing the work to prioritize what your partner’s needs are-speaking their love language (see Gary Chapman’s Love Languages below). How RSD connects to years of feeling like you’re failing and getting social feedback there’s something wrong with you. The importance of finding a partner who accepts you and gets that ADHD is not going away.

WHO IS GOTTMAN? Basically John & Julie Gottman are relationship gurus who found an institute years ago where they research how people in relationships interact scientifically. With their experience they define the individual ways we crave, express and accept love from others. For more information, check out: https://www.gottman.com/

DAVID’S DEFINITIONS of Gary Chapman’s Love Languages (https://www.5lovelanguages.com):

1. words of affirmation - talking about your feelings of intimacy, appreciation or praise to another person 

2. quality time - making time to be in close proximity with another person doing a preferable task

3. physical touch - acts of touching, kissing, hugging, physical acts of closeness

4. acts of service - being able to take care of things or fix problems for other people

5. receiving gifts - feeling appreciation from the things that are given to you by another person

-------
cover art by: Sol Vázquez
technical support by: Bobby Richards

Ever wonder if it’d be easier to be partnered with someone who also has ADHD (or, someone who is neurotypical)? How can you coexist no matter what the combo platter of neurodivergence? Robin, David’s neurotypical partner, and Bobby, Isabelle’s neurodivergent partner, join a relationship round table filled with practical tips on how neurotypical and neurodivergent partners can better support, communicate, and respond in key moments with one another. 
---

ADHD is often scapegoated within relationships. David & Isabelle are joined by David’s partner, Robin, who is neurotypical, and Isabelle’s husband, Bobby, who also has ADHD. David describes his friendship with Noah, who also has ADHD, and how the two of them have different and complementary needs and accommodation styles (for example, Noah likes structure and being on time, David is more accommodated by not wanting to let Noah down). How relationships could look when people are aware of what they are good at, not so good at, and that they need to work differently. This is similar to how when Bobby and Isabelle were first diagnosed, they had very different ways of experiencing ADHD and their sample size (“but wait, Isabelle’s more organized, she can’t have ADHD!”) impacted their understanding of it. David and Robin describe how Robin gives David a part of a shelf—a place where he could freely be messy and do his thing. Like spots that she, as his neurotypical partner, does not try to manage. The group goes on a tangent about cockroaches running up legs and spiders in your mouth while you sleep (see below). David also observes that Robin does not ask him to do a lot of things so when she does ask him, it feels novel and he received instant gratification for doing the task, so he’s more likely to do it (and eager to please the person he loves). This also connects to how Robin asks him to sweep or clean up crumbs (more thoroughly). Isabelle notes Robin’s warmth—and recognizes that Isabelle and Bobby both aren’t as warm to each other around this feedback. Robin points out that Isabelle (having ADHD) may not see the feedback as it goes, and instead notices the feedback when she’s already overwhelmed. Isabelle and Bobby note what they call a Great America moment (see below) and notes how she was able to observe Bobby circling around distracted, like a shark, and that she was able to see he needed a different environment to complete his tasks and was able to choose to go to Great America anyway (for herself): in short, she didn’t have to jump into the shark circling herself. David points out that children (which he does not have) are like the loveliest hedonist parrots (which Isabelle and Bobby add: are also the best thing ever). David also talks about mirror neurons and how people with ADHD can have much more active empathic responses, where they can really sync up to the moods/emotions of the people around them. As Bobby is circling like a shark, Isabelle’s mirror neurons are activated and she is syncing up, but Isabelle does not need the same level of intensity. How to know when you don’t need that level of intensity, knowing when you can’t think your way out of that circle (AKA Great American moment). Also important and hard to notice when you’ve self-stimulated yourself into some intense emotion but then your next task doesn’t need it. Hard to see yourself clearly in these escalated moments and how a partner can see you more clearly sometimes and help reflect back boundaries or what you need. And so when Isabelle syncs up to Bobby, she’s trying to soothe them both, instead of paying attention to taking a break and NOT syncing up, which will help them both. Bobby notes that podcast recording sessions helps everyone. Robin also names times when she and David need to ask for what they need to sync up (or not sync up). David will call and give her a heads up telling her he’s ‘coming in hot’ from his commute/work time, when she’s on the couch horizontal watching the Office or Park and Rec—how they try to meet them halfway. How both David and Isabelle forget their age all the time. 

For more show notes, go to somethingshinypodcast.com

Why is the cockroach named Rick? For no reason, except David and Robin like alliteration. 

Isabelle mentions a sacred pact between humans and bugs? Well, it’s an ancient truce predicated on the idea that if a bug is around, that’s fine, we’re on their turf, really, but if a bug is on your body without you electing to have said bug on your body, or the bug is on your bed or perhaps in the bath/shower with you, you will use whatever means necessary to remove said bug from said body/bath/shower/bed. 

What is the Great America moment? Let’s say a group of people all want to go to an amazing thrill-ride packed amusement park (like Great America, a Six Flags park in scenic Gurnee, IL), but they’re waiting on one person to finish their work before they go. Instead of making the whole group miss out if that person doesn’t get their work done, you can honor both sets of needs: let the person finish their work and then also let the rest of the group go to Great America. Then circle back and plan another time to go together. The idea is that the person struggling shouldn’t feel the pressure/responsibility of everyone else’s ‘good time’ and that everyone can hold boundaries make autonomous choices that are also understanding and inclusive. 

DEFINITIONS

Self esteem:  is a global term that has to do with how you feel about yourself, your own sense of self-worth. One thing to consider is that with ADHD, self-esteem can be believing you're going to survive an experience: that the moment of discomfort you're experiencing will be worth it it in the future. This is hard to do when your sense of time can be two modes (now or not now). When everything feels like NOW, it's hard to believe in a later or a change or in growth. And when you believe you can do something, it dramatically increases the odds that you will actually do that thing. Self-esteem is believing that you can survive, you can do the thing, and you don't have to convince yourself of that all over again every time.

Mirror neurons: this is a very complex neurological phenomenon, that is a particular favorite of ours. When you are doing a thing, your brain fires motor neurons (eg. if you know how to ski, your brain will fire the motor fires that help you move on your skis). Mirror neurons fire when you are witnessing (or anticipating) someone else do a thing that your motor neurons do (eg. your mirror neurons fire AS IF YOU ARE SKIING, when you are watching skiing on tv). Put another way, your brain is inhibiting you from acting out what you're witnessing/anticipating, but other than that, you're copying the things you see/anticipate seeing. Think about how much we learn vicariously, through observation and then trying something you've only seen before (like a baby learning how to walk! or draw! or pretty much anything!) The more they're understood, the more we recognize that mirror neurons are also involved in recognizing emotional states and sharing your emotions with others (firing the pathways of movements we do when sad/happy/angry, etc.).  Welcome to the rabbit hole, in some assorted articles below: 

What we currentl...

Everything you ever wanted to know about ADHD...continues! WOOHOO! Go back and check out Parts I & III, or start here to learn more about dopamine, how to differentiate someone with ADHD v. someone who is neurotypical, why folx with ADHD run late, and what the impacts are on school (sadly, so far, not great) when someone is labeled with ADHD and receives accommodations. The things that are easy, hard, and all the myths and misperceptions that exist about what is really not a deficit, but rather an abundance and variety of, attention. The third part of a series from David, who has lectured as an expert and advocate on this subject nationally, and assisted by Isabelle, who is eagerly sponging up the information. A neurodivergent and neurotypical blend of friends Christina, AJ, Gabe, and Isabelle's husband, Bobby, sit in to ask questions. (Part III of David’s Lecture Series)
-----
Isabelle & David welcome Isabelle’s husband, Bobby, and their friends, Christina, AJ, and Gabe, to continue to listen and learn from David’s tried and tested presentation on ADHD, which he normally gives to fellow clinicians (for the first and second parts of this talk, please see episode 4, All About ADHD Part I and episode 6, All About ADHD Part II). David talks about procrastination, and why it raises the stakes, thus generating more dopamine (the chemical in our brain that gives us a feeling of reward or satisfaction), which folx with ADHD are deficient in. He relates this to the idea that winning, or a win/lose condition, as something that generates dopamine: if we leave for somewhere that is 10 minutes away with 9 minutes to go, if we get there in time, we feel like we beat the clock (won). Also, as we run late to something, for example, we raise the stakes and leave so that we will run late—thus, giving us dopamine—but we’re often miserable and blaming ourselves the whole time. Miserable, and loaded with dopamine: reinforcing the behavior that we are also blaming/shaming ourselves for. How struggles with time management (guessing how long something will take or how all the pieces will fit together) make transitions and running late even harder, and how it is important for neurotypical partners and folx to know it is not done on purpose. How to differentiate (or diagnose) someone with ADHD when a lot of symptoms of ADHD also occur in neurotypical folx (like procrastination? Enjoying sex?). Most psychological diagnoses are connected to things many people experience (such as anxiety); and most humans will struggle with executive functioning skills, but all folx with ADHD will struggle with these skills (see below for a list of skills!). Furthermore, when we get into how people recognize and learn from mistakes, that’s when you see ADHD: a person with ADHD will make these mistakes a lot more often and also carry a lot more shame and self-blame for doing them because of just how often they make them. Neuropsych (short for neuropsychological testing) can help find an ADHD diagnosis but can also miss it. For example, audience member AJ names going to go to the store and seeing the coupons, but skipping the step of putting them in your pocket (ADHD)—and a pattern of this experience, over and over again (plus the “Why did I do this AGAIN!” feeling). David’s use of the Yoda voice “There is no later, only now!” Talking about the shame spiral of the pattern of this happening over and over again. Major consequences of growing up with ADHD - social and school. Folx with ADHD, if they are diagnosed as having it impact their learning (remember: ADHD is not necessarily a learning disability, it must be shown to be impacting learning), they are often tracked with lower level classes and are given accommodations to suit lower IQ students (make things easier). Dilemma there is most people with ADHD have above average IQ: with this setup, they are under stimulated in school, and also isolated and marginalized, systemically. Sharing different school experiences, from being in gifted programs to transitional programs, to having LD labels: and the validation of folx with ADHD often disliking school (especially when they receive accommodations). Seen as if you’re doing it on purpose. Especially kicks in around ages 9-10, when peers start normalizing your world v. Your family. Talking about kids will naturally accommodate themselves in school (figure out bare minimum grade, skip homework but do well on a test, for example)—but when they do this, for example, not doing homework, can be read as personal (by the teacher) or avoid the consequences.

Dopamine deficiency? ADHD is often understood as neurobiological (brain) difference, that includes lower levels of dopamine, the neurotransmitter (messenger chemical) in our brain that gives us feelings of satisfaction and reward—the feeling of YOU DID IT…ahhhhhhh. Another way of viewing it is a neurotypical person has a shot-glass-sized need for dopamine and so little bits of dopamine fill it up enough to feel that satiation, whereas a person with ADHD has a pint-glass-sized need for dopamine. At times, you need a lot more dopamine and are starving for it, but at other times, you have so much dopamine it is so rewarding (and perhaps the reward feeling while eating that doughnut is actually that much greater), but it also makes it even harder to pull away or transition from getting that dopamine to not (imagine how hard it is to not keep watching a show you love or how it would feel if someone suddenly unplugged the tv). Keep in mind that dopamine is just one of the neurotransmitters doing some fun other stuff where ADHD is concerned.

DAVID’S DEFINITIONS:

ADD or Attention Deficit Disorder: is an outdated diagnostic label that also used to a serve as a marker (often perpetuating some shame and stigma) differentiating a person from someone who had ADHD or the hyperactive part of ADHD. Currently, everything is called ADHD, with the following subtypes: inattentive type (too much brakes), impulsive type (too much gas), or combined type (too much of one or the other depending on the environment someone is in). Folx diagnosed with ADD will often present as ADHD inattentive or combined subtype.

Neuropsych(ological) Testing: can be very expensive, and is one way to get an official diagnosis for ADHD (another is meeting with a licensed clinician who does a thorough social/school/work/life history combined with self-diagnosis). Neuropsych tests assess your reactions and responses to different challenges, and can be helpful in either the validation of a diagnosis or awareness in what kinds of supports/accommodation and modifications might be helpful. It should be noted that these tests are largely dependent on the examiner's evaluation, and aren't perfect and can be wrong.

From the Cleveland Clinic: "A neuropsychological evaluation is a test to measure how well a person's brain is working. The abilities tested include reading, language usage, attention, learning, processing speed, reasoning, remembering, problem-solving, mood and personality and more"

Procrastination: (For more, see also Episode 008-Are we designed to procrastinate?)

• this is the behavior that occurs in between the assignment of a task, and working on the task. This is waiting to the last minute, or wh...

Everything you ever wanted to know about ADHD...continues! WOOHOO! Go back and check out Part I, or start here to learn more about what's happening in the brain, how to use environments to cue ourselves, how debate and manufactured fights can be ways to help you focus, and more! The things that are easy, hard, and all the myths and misperceptions that exist about what is really not a deficit, but rather an abundance and variety of, attention. The second part in a series from David, who has lectured as an expert and advocate on this subject nationally, and assisted by Isabelle, who is eagerly sponging up the information. A neurodivergent and neurotypical blend of friends Christina, AJ, Gabe, and Isabelle's husband, Bobby, sit in to ask questions. (Part II of David’s Lecture Series)
---

(Part II of David’s Lecture Series) Isabelle & David welcome Isabelle’s husband, Bobby, and their friends, Christina, AJ, and Gabe, to continue to listen and learn from David’s tried and tested presentation on ADHD, which he normally gives to fellow clinicians (for the first part of this talk, please see episode 4, David’s Lecture: All About ADHD!).  We talk about Auditory Processing Disorder (APD) which often also exists alongside ADHD; however, they are two different things. ADHD can make you more prone to distraction when you hear sounds, no APD (see definition below).  ADHD can also coexist with Autism Spectrum Disorder (ASD). David gets nerdy about how blood flow to certain parts of our brain connects to distraction, and how our environment can also cue us to shift blood flow to the forebrain (prefrontal cortex). Gabe notes that sports served as an important accommodation. David makes the comparison that it’s like having an energy bar in a video game, and if you don’t use it during your day, it will become anxious rumination at night. David and Bobby get distracted by Bobby’s audio equipment (or Bobby tweaking his audio settings) and David points out that being oppositional rewards us with dopamine. Debate as a dopamine booster. As a parent, how do you get out of power struggles. Talking about ADHD as too much gas (hyperactive) and too much brakes (inattentive); combined type is both, and environmentally cued (the more comfortable you are, the more gas; the less comfortable you are, the more brakes).  What about ADHD on vacation? We can get more irritable or more chill, and it can be because we have uprooted our accommodations: the structure we have in place at home that helps us get along. So we can start to manufacture structure (including undertaking vacation-only projects, getting into a predictable arguments, reading a book in a day, etc.). When we understand how ADHD impacts us (for example, starting to write a book on vacation to cleverly avoid interactions we don’t want to have, plus building in structure…but not finishing because we didn’t factor in the response cost of it) we can work with it.

Click here for slides from David’s lecture.

How genetically loaded is ADHD?

Pretty loaded. For more on this, check out this article in Nature (prepare for science!)

• On a related note, this article also points to ADHD being more of a spectrum than previously thought; as the article mentions:

In other words, ADHD is part of a set of traits that live along a spectrum, and since we tend to diagnose ADHD when those traits/behaviors/experiences are read as a problem, we lump it into it’s own bag, when really it might turn out to be a neurodivergent branch of the same tree. And so those with ADHD can exist all along a spectrum, too! Hence: calling it attentional variability rather than a deficit.

DAVID’S DEFINITIONS:

Auditory Processing Disorder (APD): a hearing disorder and has to do with how the brain processes auditory information. APD can impact attention as well, but it’s not ADHD. Note: ADHD can make it harder to hear certain sounds, for example a person’s voice in a noisy setting, but the mechanism behind why it’s hard is different than APD. 

Autism Spectrum Disorders (ASDs): a group of developmental differences (AKA neurodiversity or differences in the brain) that can cause increased sensitivity to stimulation, social, communication and behavioral challenges.  

Prefrontal Cortex (PFC): also known as the forebrain, is a part of the brain that, through dopamine, is linked to executive functioning, or the skills (check out the list below) that help you pay attention, curb your impulses, take in memories (working memory), and play with different scenarios and outcomes (cognitive flexibility), for starters. For further reading, check out this super science-y article. 

Forebrain skills that are harder for folks with ADHD (no matter the type): 

Response Cost - neurological skill that helps you know the consequences of your actions later on down the road 

Delay of Gratification - receiving the reward or win, well after the behavior occurs.

Black and White Thinking - believing or acting as if there are only two ways of thinking right or wrong. Black and white thinking makes it harder to see middle paths during an argument

Time and Organization Skills - knowing how long tasks will take, planning transition times into tasks, appropriately guessing how long something will take, or all parts of time and organizational skills.

-------
cover art by: Sol Vázquez
technical support by: Bobby Richards

Everything you ever wanted to know about ADHD. Seriously. From what's happening in the brain, to how it's experienced day to day--the things that are easy, hard, and all the myths and misperceptions that exist about what is really not a deficit, but rather an abundance and variety of, attention. The first part in a series from David, who has lectured as an expert and advocate on this subject nationally, and assisted by Isabelle, who is eagerly sponging up the information. A neurodivergent and neurotypical blend of friends Christina, AJ, Gabe, and Isabelle's husband, Bobby, sit in to ask questions.
(Part I of David's All About ADHD Lecture Series)
-----
Isabelle & David welcome Isabelle’s husband, Bobby, and their friends, Christina, AJ, and Gabe, to listen and learn from David’s tried and tested presentation on ADHD, which he normally gives to fellow clinicians. ADD and ADHD are the same thing. ADHD is not a learning disability, it’s a brain difference. People with ADHD don’t automatically qualify for accommodations in schools, need to prove they are struggling hard enough. ADHD is all about the forebrain—the roses of our brain—everything that makes you, you, and makes you unique. Blood tends to flow into the forebrain when you are making decisions. For people with ADHD (see below!), being directed to do something is not doing it. You can look at a red dot, for example, just under different environmental contexts. It’s not a deficit of attention, it’s variability of attention. As you’re demanding more focus, you lose the ability to focus, unless there’s a crisis. The root word for patience is suffering. But someone with ADHD experiences much more distress (physiologically) when they are understimulated. Boredom/waiting without structure is the worst. Response cost (see definition below) makes it hard for us to know when we’re doing something that has a consequence further on down the road. The act of debating gives you dopamine. Dopamine deficiency? See more about dopamine deficiency below. Do you ever hear someone get angry when they look away from the screen (WHAT?!) It’s because they’re being starved from dopamine when you’re already starving. What elicits hyperfocus instead of distraction? The environment: safety, comfort, consistency, the person’s experience/mastery. With ADHD, they need greater levels of stimulation (hyperactive type) or structure (inattentive type) to attend? Again, ADHD is best not thought about as a deficit of attention: attention variability. We have an overabundance of attention. A neurotypical person can attend to whatever in whatever environment, and if they can’t, much easier for them to identify and advocate for what’s interfering with that (for example, “I can’t hear you, the fridge is making a weird noise!”) Whereas for someone with ADHD, it connects to self-esteem, much more difficult to ask for what you need because it makes you think you’re different or deficient or you missed the thing that’s interfering to begin with. It’s the ability to have self-esteem to advocate for the learning environment. We start to touch on ADHD and its link to Auditory Processing Disorder.

To see some of David's slides from this presentation, click here (or visit somethingshinypodcast.com)

ADHD types explained through how we buy a printer we need:

• inattentive type: struggles to buy the printer, doesn’t take into account the cost of a lack of a printer, buys one six months later
• impulsive type: buys two printers, means to put the other one up for sale, forgets to, sits in a corner for six months
• combination type: see above and experience BOTH, often depending on your level of mastery/comfort (more impulsive). Oh, it’s fun.

Forebrain skills that are harder for folks with ADHD (no matter the type): 

Response Cost: neurological skill that helps you know the consequences of your actions later on down the road 

Delay of Gratification - receiving the reward or win, well after the behavior occurs.

Black and White Thinking - believing or acting as if there are only two ways of thinking right or wrong. Black and white thinking makes it harder to see middle paths during an argument

Time and Organization Skills - knowing how long tasks will take, planning transition times into tasks, appropriately guessing how long something will take, or all parts of time and organizational skills.

Dopamine deficiency? ADHD is often understood as neurobiological (brain) difference, that includes lower levels of dopamine, the neurotransmitter (messenger chemical) in our brain that gives us feelings of satisfaction and reward—the feeling of YOU DID IT…ahhhhhhh.  Keep in mind that dopamine is just one of the neurotransmitters doing some fun other stuff where ADHD is concerned.

The Red Dot Study… came from a book David was reading off his colleague's bookshelf, pre-pandemic. Pandemic happened. Office closed (permanently). No memory of the author. We will keep looking for it, but in the meantime, our apologies and here is a study with similar findings: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3763932/

-------
Cover art by: Sol Vázquez
Technical support by: Bobby Richards
Thank you to Christina, Gabe, and AJ for being our audience