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Summer Mini #4: Birthdays for Our Medically Complex Kids and the Many Emotions They Can Bring Up
Birthdays, as we understand them societally, are a time
for celebrating, but it’s not so straightforward for all parents of medically complex kids. Birthdays can carry so much baggage, from feelings of isolation
to reminders of difficult hospital stays to a resurgence of anticipatory grief.
In this episode, we’re sharing all your thoughts and feelings as a community around birthdays: the joy, sorrow, and everything in between.
Also, huge thank you to our sponsor Functional Formularies! They make incredible, nutritious food for our tube-fed kids that’s easy to access and use. Honestly, if our kids are eating Functional Formularies formula, they’re probably eating better than us!
Links:
Visit the Functional Formularies website and get
easy, nutritious, tube-friendly meals for your child!
Listen to our episode on being inpatient during the holidays.
Listen to our episode on isolating during holiday events.
Listen to our episode on navigating the holidays with medically complex kids.
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.
Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join!
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Access the transcript on the website here.
And if you love this podcast, please leave us a rating or review in your favorite podcast app!
View all episodes
By Madeline Cheney
5
144144 ratings
Birthdays, as we understand them societally, are a time
for celebrating, but it’s not so straightforward for all parents of medically complex kids. Birthdays can carry so much baggage, from feelings of isolation
to reminders of difficult hospital stays to a resurgence of anticipatory grief.
In this episode, we’re sharing all your thoughts and feelings as a community around birthdays: the joy, sorrow, and everything in between.
Also, huge thank you to our sponsor Functional Formularies! They make incredible, nutritious food for our tube-fed kids that’s easy to access and use. Honestly, if our kids are eating Functional Formularies formula, they’re probably eating better than us!
Links:
Visit the Functional Formularies website and get
easy, nutritious, tube-friendly meals for your child!
Listen to our episode on being inpatient during the holidays.
Listen to our episode on isolating during holiday events.
Listen to our episode on navigating the holidays with medically complex kids.
Follow us on Instagram @the_rare_life!
Donate to the podcast or Contact me about sponsoring an episode.
Fill out our contact form to get a reminder about upcoming discussion meetings and the Skype link to join!
Follow the Facebook page.
Join the Facebook group Parents of Children with Rare Conditions.
Access the transcript on the website here.
And if you love this podcast, please leave us a rating or review in your favorite podcast app!
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