The Recovery Room with Jackie Baxter

Episode 42 of the Long Covid Podcast is a chat with Dr Alison Twycross, founder of Long Covid Nurses & Midwives UK. We chat through her experiences with Covid & then Long Covid as well as her work in employment and specifically with nurses & midwives.

There are a lot of employers who are treating their staff well, but sadly there seem to be more that aren't and we chat about some of the problems & possible solutions to helping people with Long Covid (& other chronic conditions) to recover whilst remaining in work.

LCNMUK website

Social links – Twitter/FaceBook/Instagram

Alison's blogs:
BMJ - "Support for healthcare professionals with Long Covid returning to work a national disgrace"

BMJ - The rise & fall of our NHS heroes

BMJ - Disability is not what you think it is

BMJ - Is a lack of knowledge about Long Covid a reason to dodge people's needs?

"Living with Long Covid - some reflections 14 months down the line"

Financial Times article  

Evidence based podcast with Elaine Maxwell (NIHR) 

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The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at [email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 41 of the Long Covid Podcast is a chat with Joachim Gerlach about Vedicinals-9 - a nutraceutical developed to help Covid and Long Covid. We chat about how this differs to pharmaceuticals and a bit about how it was developed.

We also chat a little about the Long Covid Foundation (link below) and what it is hoping to achieve.

Vedicinals Website  (can be ordered from here - also lots of info about Vedicinals & link to clinical trial)  

Long Covid Foundation

3rd Long Covid Coalition Conference (Thrombosis & Coagulation)


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at [email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 40 of the Long Covid Podcast is a chat with the wonderful Dr Boon Lim. We talk about the heart and how it's connected to the rest of the body, what can go wrong when something like Long Covid affects the body and how we can help ourselves and get better (what more could we want?!)

I have already listened to this episode several times myself and actually felt instantly slightly better after hearing it! It's quite a long listen but it's really worth getting to the end, even if you need to take a break.

Keeping your heart healthy by Dr Boon Lim 

https://stopfainting.com/long-covid-resources/ 

Suzy Bolt - 360 Mind Body Soul

ENO breathe

UK PoTS resource – PoTS UK.org 

Dr Boom Lim & Suzy Bolt in conversation about how Dysautonomia can affect the body 

Dr Boon Lim discussing recovery with his patient Natalie

https://stopfainting.com/breathe-yourself-better/

https://stopfainting.com/wp-content/uploads/2021/03/Long-Covid-Autonomic-Dysfunction-Patient-Sheet.pdf

Autonomic dysfunction in LC, rationale for treatment & management for LC – Paper Jan 2021


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions or just how you're doing - I'd love to hear from you! You can get in touch via the social media links or at [email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 39 of the Long Covid Podcast is a chat with Lynn Laidlaw & Tracy Ibbotson who are very involved in research involvement and PPI (Patient & Public Involvement) but they have had very different journeys to this point.

We chat through some of their experiences, why it is really worthwhile to get involved and how this might be possible in different ways.

If you'd like to know more, you can get involved with Tracy at Glasgow uni or the UK research involvement groups via the links below, or drop me a message if you would like to know more about other countries and I'll do my best to find out.


Links:
Glasgow Univeristy PPI info

UK Research Involvement

From diagnostic odyssey to involvement odyssey – an emotional journey | UCL UCL Public Engagement Blog (By Lynn Laidlaw)

Co-production and involvement in health research: why aren’t we showing our working? | UCL UCL Public Engagement Blog (by Lynn Laidlaw)

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 38 of the Long Covid Podcast is a chat with Dr Tina Peers who is a leading expert in MCAS - Mast Cell Activation Syndrome, a little known condition which seems to be intertwined with Long Covid. As people with Long Covid struggle to learn about the condition, Dr Peers shares her knowledge about MCAS, some treatment/management options and some of the experiences she has had with it.

We also talk about a few other things she has found that can help with MCAS and Long Covid. It's a fascinating chat and hopefully everyone can take something useful from it!


Links:
Bergamaschi et al (Oxford Uni) Study

Great Plains Mycotoxin test (mould exposure)

SIGHI low histamine diet list

ARC Microtech device (use discount code TP6PHP for money off)

TreatLongCovid.com – LC conference 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 37 of the Long Covid Podcast is a chat with Dr Asad Khan who has become well-known among the Long Covid communities. Asad caught Covid whilst working as a respiratory doctor on Covid wards, and has since developed Long Covid.

We chat through this experiences as well as what he has done in terms of treatments & managing symptoms. There is loads of really useful stuff in here - it was a pleasure chatting and I hope some of it is useful to you too.

Links:
Microbiome testing

Vagus nerve stimulation Placement and Settings 

Vagus nerve exercises (Sukie Baxter)

Unlocking the healing power of the vagus nerve

Fundraiser for Resia Pretorius clot detection method

Vedicinals

Gez 2 year video

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 36 of the Long Covid Podcast is a chat with Dr Mark Faghy about the work he and his team are doing to support rehabilitation for Long Covid, based at the university of Derby.

The project has many arms and he explains all the different bits they are looking into, and how important listening to the patient voice is. Although all things take time - it's good that Mark & his team are looking to do things right - and I'm looking forward to seeing how things go forward.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 35 of the Long Covid Podcast is a chat with Dr. Margaret Koziel, Chief Medical Officer and Bill Hinshaw, CEO from Axcella Therapeutics.

Axcella Therapeutics is a biotech company based in Boston and they are currently working in collaboration with Oxford University on a clinical trial testing the impact of Long Covid on overall mitochondrial function, particularly the ongoing fatigue and brain fog symptoms.


Links:
Axcella Therapeutics Announces Initiation of AXA1125 Long COVID Phase 2a Clinical Trial – Axcella Therapeutics (axcellatx.com)

Axcella Therapeutics Launches Clinical Program to Develop Treatment for Patients with Long COVID – Axcella Therapeutics (axcellatx.com)

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 34 of the Long Covid Podcast is a chat with Sam Munslow about her experiences with Covid and then Long Covid, and how that led to her new book "We Will Covive" and her becoming The Covid Coach.

Sam's book is written with diary entries followed by reflections and it was fascinating reading it because I saw so many parallels from my own experiences, and had had similar reflections myself! We also talk about how our thoughts can be harmful and how "mental self-harming" adds even more nastiness on top of the physical experience of Long Covid.

Links:
Check out Sam's book "We Will Covive" Website HERE & buy the book HERE
Sam's Blue Monkey Coaching website HERE

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 33 of the Long Covid Podcast is a chat with Professors Resia Pretorius & Douglas Kell about their discovery of microclots & hyperactive platelets in the blood of people with Long Covid, what this means and more about their research into this.

We cover a whole load of amazing stuff from causes to possible treatments - I hope you enjoy listening as much as I enjoyed speaking to them!

Links:
Doug's Clots website: http://dbkgroup.org/longcovid/
Resia's article in the Guardian HERE
The hashtag #TeamClots on Twitter 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**