The Recovery Room with Jackie Baxter

Episode 13 of the Long Covid Podcast is a conversation with AJ who has been living with Post Concussion Syndrome for over 3 years, following a brain injury in 2018. Similar to many suffering with Long Covid, AJ lived a very full and active life until her accident when everything changed in a moment.

Since then, she has had to adjust her expectations and the way she approaches everything as well as coping with many varying and unpredictable symptoms.

In this episode we talk about some of the ways that she has learned to manage her symptoms (some of which are surprisingly similar to Long Covid), strategies she has used to help as well as how she has mentally managed to be so tough and remain positive.

AJ is so inspiring to all of us and hopefully some of what she talks about might be helpful to you as well.


Useful links:
Website: https://findingmysparkle.co.uk/

Instagram: https://www.instagram.com/findingmysparkleaj

YouTube: https://www.youtube.com/c/findingmysparkle

Insight Timer app: https://insighttimer.com/en-gb

I especially like listening to Bethany Auriel-Hagan as she has a really soothing voice. https://insighttimer.com/crystaltreeroad

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 12 of the Long Covid Podcast is a conversation with Kelly Mitchell, the Breathing PT.  Kelly is a specialist respiratory physiotherapist and has been treating lots of people with Long Covid, as well as other long term conditions.

Kelly has a passion for all things breathing and how it can affect our whole body; breathing poorly can bring on all manner of symptoms and not always the ones that we might expect.

This is a fascinating chat and has so much that can help so many people with Long Covid - I hope it's as useful for you as it was for me.


Useful links:
Kelly's website: www.thebreathingpt.co.uk   
Twitter/Instagram @TheBreathingPT
ANS study: https://link.springer.com/content/pdf/10.1007/s11239-021-02549-6.pdf
US study (on low end CO2): https://iopscience.iop.org/article/10.1088/1752-7163/ac3c18 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 11 of the Long Covid Podcast is a conversation with Iain, who is a long time friend of mine from years back. Iain talks about some of the strategies that he and his partner, Cal, use in their relationship. Cal has Chronic Fatigue and for many years has dealt daily with many symptoms that Long Covid sufferers will be able to identify with.

We talk about the difficulties of chronic illnesses, but what shines through is the way that Iain and Cal are a team, and how they find ways to support each other. There are so many relationships where the dynamic has changed almost overnight as a result of Covid & Long Covid. Iain (who will openly acknowledge that all of his wisdom comes from Cal!) talks through some really helpful, and often very simple, things that can help.

If you'd like to contact Iain - please get in touch with me through the podcast and I will pass your messages on.

Useful links:
ME association: https://meassociation.org.uk
Mobility aids don't have to be boring: https://notyourgrandmas.co.uk/
Creative opportunities focused on illness & disability: https://drawnpoorly.wordpress.com

Astriid and Chronically Capable are two organisations helping chronically ill folks get jobs
https://astriid.org/
https://www.wearecapable.org//

Sleepy Santosha is a youtube channel with fatigue friendly yoga practices
https://www.sleepysantosha.com/ 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 10 of the Long Covid Podcast is a conversation with Amanda Finley from the USA. Amanda caught Covid right at the start of the pandemic before developing Long Covid and since then has been a real force of nature helping those with Long Covid.

We talk about her initial illness, how it progressed and how things in the USA are very different to my experiences in the UK. Amanda has crossed paths with and helped so many people, despite being ill and dealing with many of her own struggles, and it's really inspiring and humbling to hear her speak.

Amanda was an absolute joy to speak to, so I hope you enjoy listening as much as I did.

~ Covid-19 LongHaulers Facebook Support group: https://www.facebook.com/groups/COVIDLongHaulers 

Twitter @Covid19LongHaulers 

~ Patient led research through Body Politic – Hannah Davis, Elisa Perego, Lisa McCorkell https://www.wearebodypolitic.com/ 
Follow on Twitter: @patientled @itsbodypolitic @ahandvanish @elisaperego78 @LisaAMcCorkell 

~ Long Covid Documentary https://www.youtube.com/watch?v=Hfp_jPMPCBE produced & filmed by Alexey Brazhnikov through RT 

~ Ziyad Al-Aly (50% of Covid infections develop LC study) https://www.nature.com/articles/s41586-021-03553-9 

Twitter @Zalaly  

~ Melissa Lynch – Long Covid Kids www.longcovidkids.org 

~ Ed Yong https://www.theatlantic.com/health/archive/2020/08/long-haulers-covid-19-recognition-support-groups-symptoms/615382/ 

Twitter @edyong209 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 09 of the Long Covid Podcast is a conversation with Claire Hastie. Claire became ill with Covid right at the start of the first wave in the UK and like so many of us, is still suffering the effects of Long Covid. She started the Long Covid Support Group on Facebook in early May 2020 which has grown into a real force to be reckoned with.

We talk about her experiences, how the group came to be and what they are fighting for - there have been some really fantastic accomplishments, but sadly there is so much more that we need. Claire is an inspiration and was incredibly interesting to chat to, so I hope you enjoy as much as I did.

www.longcovidsupport.org has many useful resources, a link to the private Facebook Support group and also a "DONATE" button if you have any spare monies.

If you are interested in joining the Long Covid Choir, you can find more information here: www.longcovidchoir.org

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 08 of the Long Covid Podcast is a conversation with Rachel Whitfield. Rachel has recovered from Long Covid and we talk through some of her experiences and what she thinks has helped her to recover. It gives us all a little bit of hope!

It goes without saying (but I'll say it anyway) that neither of us are medical professionals and although the things that Rachel talks about have helped her, there is no guarantee that they will work for everyone. Everyone's journey is different, so please do seek medical advice before trying anything. 

Rachel’s Blog: https://mylongcovidjourney.wordpress.com

The Lightning Process: https://lightningprocess.com/

Nicole Sachs – The Cure for Chronic Pain - Youtube: https://www.youtube.com/channel/UC-tz1Du69PhcBkC3-9_Mgmw & Podcast: https://podcasts.apple.com/us/podcast/the-cure-for-chronic-pain-with-nicole-sachs-lcsw/id1439580309

Alex Howard - Optimal Health Clinic https://www.theoptimumhealthclinic.com/

 
Books: 

The Intelligent Body by Kyle L. Davies

Breathe – James Nestor 

Anthony Greenfield – the 5 forces of change

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 07 of the Long Covid Podcast is a conversation with Suzy Bolt from 360 Mind Body Soul. Suzy has recovered from Long Covid - it's both inspiring and useful to hear what has helped her to recover and how she used her knowledge as a Yoga teacher & NLP coach as well as experience with talking therapies to aid recovery.

Suzy is now using her experiences to help others - hear about her Rest, Repair, Recover program for Long Covid sufferers, the research & interviews she has done and how the mind, body and soul are interconnected. Listening to Suzy gave me so many "lightbulb" moments about my recovery - I hope it will for you too.

360 Mind Body Soul website: https://www.360mindbodysoul.co.uk/

Suzy's Facebook group: https://www.facebook.com/groups/1095053437543132
& Youtube channel: https://www.youtube.com/channel/UCdUIN1Pu42E4SNTFKz51mkA

Stasis breathing https://www.stasis.life/

Nicole Sachs – The Cure for Chronic Pain - Youtube: https://www.youtube.com/channel/UC-tz1Du69PhcBkC3-9_Mgmw & Podcast: https://podcasts.apple.com/us/podcast/the-cure-for-chronic-pain-with-nicole-sachs-lcsw/id1439580309

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 06 of the Long Covid Podcast is a conversation with Nick Sculthorpe, Professor of Clinical Exercise Physiology at the University of the West of Scotland. We talk about the two Long Covid studies they have been given funding for - Tracking Persistent Symptoms in Scotland (TraPSS for short) & the NIHR Pacing Study.

We talk first about the TraPPS study - skip to 22 minutes to hear about Pacing Study only.

Pacing study information (now recruiting): https://drive.google.com/file/d/1ZZmitbIbKaocYTBAL6yksfTCqzsqvLG9/view?usp=sharing

TraPSS - https://www.cso.scot.nhs.uk/outputs/cso-funded-research/long-covid-call/
NIHR - https://www.nihr.ac.uk/news/196-million-awarded-to-new-research-studies-to-help-diagnose-and-treat-long-covid/28205

Scotsman article on the NIHR pacing study: https://www.scotsman.com/health/long-covid-study-launched-to-reduce-symptoms-of-extreme-fatigue-3314155

Follow Nick on Twitter - @UWSNick @UWSlongCOVID 

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 05 of the Long Covid Podcast is a conversation with Dr Amy Small. Amy has had Long Covid having caught Covid-19 at work and has been heavily involved in advocating for those who are not able to advocate for themselves. Her combination of medical knowledge & lived experience gives her a unique ability to help and perspective on the situation.

Call CHSS freephone Advice Line Nurses: 0808 801 0899


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**

Episode 04 of the Long Covid Podcast is a conversation with Chris White & Jane Ormerod from the Long Covid Scotland Research Group. We talk about the importance of getting involved in research projects, how they can benefit you and some of the projects that are currently running.

We feature the Glasgow Science Festival which is an annual event in Glasgow. This year it features a large online segment on Covid & Long Covid. It's a huge and fascinating piece of work and has unfortunately now been taken down, but the case study videos are still available HERE

Other research projects:
www.nihr.ac.uk
CSO research projects

To get involved & take part in research:
www.longcovid.scot (Scotland)
www.longcovid.org (UK)
http://longcoviddeutschland.org (Germany)
If you live elsewhere, take a look in LC support groups for info, or drop me a message.


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
The Long Covid Podcast is self-produced & self funded. If you enjoy what you hear and are able to, please Buy me a coffee or purchase a mug to help cover costs.

Share the podcast, website & blog: www.LongCovidPodcast.com
Facebook @LongCovidPodcast
Instagram & Twitter @LongCovidPod
Facebook Support Group
Subscribe to mailing list

Please get in touch with feedback and suggestions - I'd love to hear from you! You can get in touch via the social media link or at L[email protected]

Message me! (I can't reply to these messages)

For more information about Long Covid Breathing courses & workshops, please check out LongCovidBreathing.com

(music credit - Brock Hewitt, Rule of Life)

Support the show

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Thankyou for joining me in The Recovery Room. If you found this episode useful & are able to, you can support the show by buying me a coffee or checking out the merch

Visit The Recovery Room website: www.JackiesRecoveryRoom.com 

Follow me on social media channels: @JackiesRecoveryRoom

**Disclaimer - you should not rely on any medical information contained in this Podcast and related materials in making medical, health-related or other decisions. Please consult a doctor or other health professional**