Uncared For

In this special bonus episode, host SuChin Pak talks with health policy expert Julie Rovner about the most pressing health care issues on the minds of voters this election – from abortion to medical debt to long-term care. And Julie explains why, in the 38 years she’s been covering healthcare and Capitol Hill, the 2024 election is different from any other she’s seen. 

Find Julie Rovner’s work at kffhealthnews.org and listen to her podcast What The Health. 

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

To learn more on what’s at stake in the 2024 Election for health care, go to the Commonwealth Fund’s “Health Care on the Ballot in 2024” election guide. 

See omnystudio.com/listener for privacy information.

For years, Kim Moy cared for her kids and husband, while helping to care for her parents – an experience she describes as being in a “pressure cooker.” Being a caregiver to any loved one can be emotionally draining, but caring for a spouse can be a whole new level of lonely. In our final conversation of the season, Kim talks about the tradeoffs of being a spousal caregiver, grieving the loss of someone who’s still there, and how she’s learned to let go of the way things used to be. 

Kim Moy’s Caregiver Wisdom offers resources and workshops for those who take care of loved ones with chronic debilitating illnesses. Learn about the monthly support group, workshops, and one-on-one coaching here. 

Dr. Pauline Boss coined the term ambiguous loss, which Kim talks about in the episode. Learn more about ambiguous loss and Dr. Boss at ambiguousloss.com. 

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

Help others find our show by leaving us a rating and writing a review.

Follow SuChin Pak on Instagram @SuchinPak and Lemonada at @lemonadamedia across all social platforms.

Want to become a Lemonada superfan? Join us at joinsubtext.com/lemonadasuperfan.  

Click this link for a list of current sponsors and discount codes for this and all other Lemonada series: lemonadamedia.com/sponsors.

To follow along with a transcript, go to lemonadamedia.com/show/ shortly after the air date.

See omnystudio.com/listener for privacy information.

How can a family caregiver look after her loved ones and herself while navigating a broken healthcare system? Renee Hanania has been advocating for her son Branden to receive care for his disability under Medicaid, piecing together a “care village” for him and his complex needs. All the while, she’s also been battling her own health concern: stage four breast cancer. 

Keep up with Renee and Branden via their Facebook group, https://www.facebook.com/BrandenTheBrave/. For more information about why you may have lost health care coverage since the unwinding of continuous Medicaid enrollment in 2023, visit https://www.kff.org/medicaid/issue-brief/10-things-to-know-about-the-unwinding-of-the-medicaid-continuous-enrollment-provision/

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

Help others find our show by leaving us a rating and writing a review.

Follow SuChin Pak on Instagram @SuchinPak and Lemonada at @lemonadamedia across all social platforms.

Want to become a Lemonada superfan? Join us at joinsubtext.com/lemonadasuperfan.  

Click this link for a list of current sponsors and discount codes for this and all other Lemonada series: lemonadamedia.com/sponsors.

To follow along with a transcript, go to lemonadamedia.com/show/ shortly after the air date.

See omnystudio.com/listener for privacy information.

One in six Americans is over age 65, and that number is only going to climb in the next few decades. So how can we collectively prepare for this elder boom? Ai-jen Poo is president of the National Domestic Workers Alliance, and she thinks this is our golden opportunity to finally give caregivers their due. We hear about why we need to expand Medicaid access, improve job conditions for care workers, and see aging as a gift, not a crisis. We also talk to professional home care worker Katrina Mouzon about the challenges facing care workers today. 

Learn more about supporting professional care workers at The National Domestic Workers Alliance’s website, https://www.domesticworkers.org/. For more information on Washington’s public long-term care insurance program, visit https://wacaresfund.wa.gov/.

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

Help others find our show by leaving us a rating and writing a review.

Follow SuChin Pak on Instagram @SuchinPak and Lemonada at @lemonadamedia across all social platforms.

Want to become a Lemonada superfan? Join us at joinsubtext.com/lemonadasuperfan.  

Click this link for a list of current sponsors and discount codes for this and all other Lemonada series: lemonadamedia.com/sponsors.

To follow along with a transcript, go to lemonadamedia.com/show/ shortly after the air date.

See omnystudio.com/listener for privacy information.

A big chunk of family caregivers in this country are part of the “sandwich generation” – people caring for young children and aging parents at the same time. Robert Ingenito was one of them. After caring for his dad and raising his young daughter while working, Robert came to a breaking point. He decided to move his dad to an assisted living facility. It wasn’t an easy decision, and it’s one he still grapples with today. 

Learn more about respite care, including respite care opportunities in your area, at ARCH National Respite Network’s website. The website provides a National Respite Locator Service, and information on how to pay for respite care. 

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

Help others find our show by leaving us a rating and writing a review.

Follow SuChin Pak on Instagram @SuchinPak and Lemonada at @lemonadamedia across all social platforms.

Want to become a Lemonada superfan? Join us at joinsubtext.com/lemonadasuperfan.  

Click this link for a list of current sponsors and discount codes for this and all other Lemonada series: lemonadamedia.com/sponsors.

To follow along with a transcript, go to lemonadamedia.com/show/ shortly after the air date.

See omnystudio.com/listener for privacy information.

As someone living with HIV, Vince Crisostomo couldn’t imagine aging past thirty, let alone getting old enough to care for his parents. But when the time came to look after them, Vince embraced it, especially after years of caregiving for his community during the HIV/AIDS epidemic. He helped his parents move to an assisted living center and managed their care, this time during a different global health crisis: COVID-19. 

Learn more about the San Francisco AIDS Foundation at their website, https://www.sfaf.org/

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

Help others find our show by leaving us a rating and writing a review.

Follow SuChin Pak on Instagram @SuchinPak and Lemonada at @lemonadamedia across all social platforms.

Want to become a Lemonada superfan? Join us at joinsubtext.com/lemonadasuperfan.  

Click this link for a list of current sponsors and discount codes for this and all other Lemonada series: lemonadamedia.com/sponsors.

To follow along with a transcript, go to lemonadamedia.com/show/ shortly after the air date.

See omnystudio.com/listener for privacy information.

When Jessica Guthrie became a caregiver at age 26, her life turned upside down. Her career, friendships, and love life went on the back burner as she prioritized caring for her mom, who has Alzheimer’s disease. Over nine years of caregiving, she’s faced burnout, medical racism, and the isolation of doing it all alone. But despite the challenges, Jessica finds power in the small moments she still has with her mom, and the community of Black caregivers she’s found on social media.  

Learn more about Jessica Guthrie at https://www.jessicacguthrie.com/ and follow her on Instagram @careercaregivingcollide.

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

Help others find our show by leaving us a rating and writing a review.

Follow SuChin Pak on Instagram @SuchinPak and Lemonada at @lemonadamedia across all social platforms.

Want to become a Lemonada superfan? Join us at joinsubtext.com/lemonadasuperfan.  

Click this link for a list of current sponsors and discount codes for this and all other Lemonada series: lemonadamedia.com/sponsors.

To follow along with a transcript, go to lemonadamedia.com/show/ shortly after the air date.

See omnystudio.com/listener for privacy information.

Poet and artist Yosimar Reyes moved home to take care of his grandmother during the pandemic. Sometimes he cries in his car from the stress and pressure of caregiving. But he also knows how lost he’d be without her. In this beautiful and honest conversation, Yosimar shares how he supports his 90-year-old grandmother – financially, mentally, and emotionally.

Learn more about Yosimar Reyes on his website and follow him on Instagram @yosirey.

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

Help others find our show by leaving us a rating and writing a review.

Follow SuChin Pak on Instagram @SuchinPak and Lemonada at @lemonadamedia across all social platforms.

Want to become a Lemonada superfan? Join us at joinsubtext.com/lemonadasuperfan.  

Click this link for a list of current sponsors and discount codes for this and all other Lemonada series: lemonadamedia.com/sponsors.

To follow along with a transcript, go to lemonadamedia.com/show/ shortly after the air date.

See omnystudio.com/listener for privacy information.

When you’re caring for an aging parent, you want the best care possible. But what does that care cost? And who pays for it? AARP’s caregiving expert Amy Goyer struggled financially to give her parents the best care possible and even ended up filing for bankruptcy. Despite this, Amy looks back on the joy of caregiving and celebrating the wins.

AARP has financial and legal resources for caregivers, including ways to protect your money while caring for a loved one or friend.

AARP also has information on how to find credit counseling here.

Join AARP’s Family Caregivers Discussion Group on Facebook.

This season of Uncared For is presented by the Commonwealth Fund, a nonprofit foundation making grants to promote an equitable, high-performing health care system.

Help others find our show by leaving us a rating and writing a review.

Follow SuChin Pak on Instagram @SuchinPak and Lemonada at @lemonadamedia across all social platforms.

Want to become a Lemonada superfan? Join us at joinsubtext.com/lemonadasuperfan.  

Click this link for a list of current sponsors and discount codes for this and all other Lemonada series: lemonadamedia.com/sponsors.

To follow along with a transcript, go to lemonadamedia.com/show/ shortly after the air date.

See omnystudio.com/listener for privacy information.

Roughly 42 million Americans are caregivers for an older loved one. It's work that is exhausting, gratifying, and lonely all at once. In Season 2 of Uncared For, host SuChin Pak talks to family caregivers about how they do it - how they balance their careers, kids, navigating our healthcare system and trying to stay sane - with the challenge of caring for our elders. From Lemonada Media and The Commonwealth Fund. Coming May 15. 

See omnystudio.com/listener for privacy information.