The Parkinson's Experience podcast

096 Living with PD and Finding Love


Listen Later

In April 2010, Allison (Allie) Toepperwein experienced a tremor in her left hand while living in Austin, Texas after giving birth to her daughter. Around eight months later, in December 2010, Steven Eury noticed a tremor in his right hand while filming the birth of his son 1100 miles away in North Carolina. The following year, Steven received a diagnosis of Young Onset Parkinson's Disease (YOPD). It took another 4 1/2 years, and 2 1/2 months after Allison's divorce before she, too, was diagnosed with YOPD New Year's Eve of 2014.

Allison went on to make history by becoming the first person with Parkinson's to compete on the popular TV show American Ninja Warrior. She began blogging, delivering motivational speeches, and advocating for single moms, women, and young adults with diseases.

In May 2020, Steven, who had recently gone through a divorce, purchased property on a street named Allison. He intended to build a new home and embark on a fresh chapter of life with his children and his dog named Allie.

 

In August 2020, one of Steven's friends sent him a blog post written by a stranger named Allison, sharing her experiences of "Dating With Parkinson's." Steven felt an inexplicable connection and decided to reach out to her. Two months later, in October 2020, the two finally met. Two years later the couple were married. They now reside on the very street named Allison, alongside Steven's dog Allie, their three children, a cat, a bunny, and a new puppy. 

In September 2022, the pair joined 10 other people with Parkinson's to run the Blue Ridge Relay, which is an arduous 208 mile relay through the Blue Ridge mountains, two states and more than 16,000 Feet of ascent.  

Then, in December 2023, one week before Christmas, the couple created a new spark between them, by both undergoing deep brain stimulation (DBS) surgery. The couple had brain surgery on the same day, by Baylor's Dr. Sameer Sheth and team, in the same operating room, in the same hospital, Baylor St. Luke's Medical Center back to back. It is now considered standard of care for people with PD that qualify to have DBS. 

Let’s check in with them and learn what it is like for the two PwP to live together and have surgery/recovery together.

https://litwithin.com/

https://www.youtube.com/watch?v=Xz0hlJ6mzD4

https://www.dbsandme.com/en.html

 

...more
View all episodesView all episodes
Download on the App Store

The Parkinson's Experience podcastBy Sheryl Lowenhar

  • 4.7
  • 4.7
  • 4.7
  • 4.7
  • 4.7

4.7

25 ratings


More shows like The Parkinson's Experience podcast

View all
99% Invisible by Roman Mars

99% Invisible

26,169 Listeners

The Michael J. Fox Foundation Parkinson's Podcast by The Michael J. Fox Foundation for Parkinson’s Research

The Michael J. Fox Foundation Parkinson's Podcast

208 Listeners

Substantial Matters: Life & Science of Parkinson’s by Parkinson’s Foundation

Substantial Matters: Life & Science of Parkinson’s

140 Listeners

Everything Happens with Kate Bowler by Everything Happens Studios

Everything Happens with Kate Bowler

4,995 Listeners

When Life Gives You Parkinson's by Curiouscast

When Life Gives You Parkinson's

223 Listeners

The Parkinson's Podcast by Davis Phinney Foundation

The Parkinson's Podcast

182 Listeners

The Parkinson's Life Podcast by The Parkinson's Life Podcast

The Parkinson's Life Podcast

28 Listeners

Parkinson's Pathway Pals Tuesdays with Teresa by Teresa Jackson

Parkinson's Pathway Pals Tuesdays with Teresa

11 Listeners

Parkinson's Disease Education Podcast by Dr. Michael Hyland, DPT, CEEAA

Parkinson's Disease Education Podcast

29 Listeners

2 Parkies in a Pod: a Parkinson's Podcast by Dave Clark & Kuhan

2 Parkies in a Pod: a Parkinson's Podcast

5 Listeners

The Secret Life of Parkinson's by Jessica Krauser

The Secret Life of Parkinson's

50 Listeners

Parkinson's Disease Podcasts by No Silver Bullet by No Silver Bullet 4 PD

Parkinson's Disease Podcasts by No Silver Bullet

6 Listeners

Movers and Shakers: a podcast about life with Parkinson's by Podot

Movers and Shakers: a podcast about life with Parkinson's

95 Listeners

Live Parkinson's - Live an Exceptional Life! by Chris

Live Parkinson's - Live an Exceptional Life!

6 Listeners

The Rest Is Politics: US by Goalhanger

The Rest Is Politics: US

2,140 Listeners