The Secret Life of Parkinson's

#139: Embracing the Journey of Caregiving


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In this conversation, Katherine shares her journey as a caregiver for her husband with Parkinson's disease. She emphasizes the importance of advocacy, navigating the healthcare system, and the adjustments required in caregiving. The discussion also touches on the impact of Parkinson's on relationships and the significance of teamwork in caregiving. Katherine's insights as a certified patient advocate provide valuable guidance for both caregivers and patients.


00:00 Introduction to Caregiving and Parkinson's

02:05 Katherine's Journey into Caregiving

04:00 The Diagnosis Experience

07:03 Understanding Parkinson's Symptoms

10:02 The Role of Caregivers

12:58 Support Groups and Community Learning

16:01 The Importance of Medication and Exercise

19:00 Advocacy and Patient Rights

21:50 Navigating the Healthcare System as a Caregiver

24:57 Adjusting to Life with Parkinson's

27:50 The Impact of Parkinson's on Relationships

30:14 Becoming a Certified Patient Advocate

33:09 Working Together as a Team in Caregiving



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The Secret Life of Parkinson'sBy Jessica Krauser

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