The Lucky Few

246. Heart Health & Navigating Heart Defects (w/Dr. Lorraine Schratz)


Listen Later

Friends, we know that seeing specialists and hearing your child could potentially have cardiac issues after receiving a prenatal diagnosis can all be overwhelming. We also know that while months of celebrating and advocating for awareness can be helpful, but also adds to those valid overwhelming feelings when you’re new to a diagnosis. While those statistics are true, 50% of babies born with Down syndrome are born with heart defects. There are also incredible advancements in cardiology and amazing physicians like our guest this week Dr. Lorraine Schratz there for your family every step of the way! 

Dr. Schratz is a pediatric and fetal cardiologist at Massachusetts General for Children and an instructor at Harvard Medical School. She acknowledges the fear that comes with a diagnosis but emphasizes the advancements in medicine that have led to fewer follow-up surgeries for people with Down syndrome. Dr. Schratz stresses the importance of providing families with both medical facts and emotional support, tailoring information to their needs, and encouraging patients to ask as many questions as they need to. She shares her advice to create healthy habits for our kiddos with and without heart defects, what to expect when receiving a diagnosis, and recommends resources for support. We’re so grateful for conversations like these, and in the words that Dr. Schratz’s patients wanted to send us, “It’ll be ok!” 


---

SHOW NOTES

  • NDSS (National Down Syndrome Society) The Heart And Down Syndrome
    • American Heart Association (Dr. Schratz recommends using the health conditions tab for helpful resources and information)
    • Global Down Syndrome Foundation (more information and resources on congenital heart defects)
    • The Brett Boyer Foundation
    • American Academy of Pediatrics: Down syndrome guidelines

    • DISCOUNT CODE

      Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!


      THANK YOU TO OUR SPONSOR:

      Thank you, Enable SNP for sponsoring this episode!

      • 47. Planning for the Future w/Phillip Clark from Enable SNP
        • 191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP

        • HELP US SHIFT THE NARRATIVE

          Interested in partnering with The Lucky Few Podcast as a sponsor? Email [email protected] for more information!


          LET’S CHAT

          Email [email protected] with your questions and Good News for future episodes.


          ...more
          View all episodesView all episodes
          Download on the App Store

          The Lucky FewBy The Lucky Few Podcast

          • 4.9
          • 4.9
          • 4.9
          • 4.9
          • 4.9

          4.9

          334 ratings


          More shows like The Lucky Few

          View all
          Don't Mom Alone Podcast by Don't Mom Alone Podcast

          Don't Mom Alone Podcast

          2,335 Listeners

          Down Syndrome Center Podcast by Kishore Vellody, MD

          Down Syndrome Center Podcast

          69 Listeners

          That Sounds Fun with Annie F. Downs by That Sounds Fun Network

          That Sounds Fun with Annie F. Downs

          10,421 Listeners

          The Lazy Genius Podcast by Kendra, The Lazy Genius

          The Lazy Genius Podcast

          6,649 Listeners

          The Next Right Thing by with Emily P. Freeman

          The Next Right Thing

          5,411 Listeners

          Everything Happens with Kate Bowler by Everything Happens Studios

          Everything Happens with Kate Bowler

          5,118 Listeners

          Raising Boys & Girls by That Sounds Fun Network

          Raising Boys & Girls

          1,895 Listeners

          Laugh Lines with Kim & Penn Holderness by Kim & Penn Holderness

          Laugh Lines with Kim & Penn Holderness

          3,385 Listeners

          The GoodHard Story Podcast by Katherine Wolf

          The GoodHard Story Podcast

          447 Listeners

          Uniquely Human: The Podcast by ART19    Uniquely Human

          Uniquely Human: The Podcast

          417 Listeners

          Good Inside with Dr. Becky by Dr. Becky Kennedy

          Good Inside with Dr. Becky

          4,502 Listeners

          We Can Do Hard Things by Treat Media and Glennon Doyle

          We Can Do Hard Things

          41,572 Listeners

          Good Faith by Good Faith

          Good Faith

          1,926 Listeners

          The Mel Robbins Podcast by Mel Robbins

          The Mel Robbins Podcast

          19,741 Listeners

          The Candace Cameron Bure Podcast by CandyRock

          The Candace Cameron Bure Podcast

          3,911 Listeners