The journey of caring for a child with disabilities is a tumultuous emotional ride. There are highs celebrating achievements and lows during setbacks. It's important to recognize those feelings and find healthy ways to cope along the way.

In this episode of Parenting Impossible, Annette Hines chats with Jessica Fein, author of Breath Taking: A Memoir of Family, Dreams, and Broken Genes and host of the I Don't Know How You Do It podcast. Jessica opens up about her journey parenting a child with MERRF syndrome, an ultra-rare degenerative disease, and emphasizes the importance of visibility for acceptance and inclusion. Instead of focusing solely on challenges, she stresses the need to highlight the unique strengths of children with disabilities, which fosters a more inclusive society. Annette and Jessica also discuss how vital it is to have a supportive community, as raising a child with disabilities truly takes a village.

 

In this episode, you will hear:

• How writing can help parents cope with emotional challenges.

• Ways to find beauty and joy amidst grief and sorrow.

• Why advocating for awareness and inclusion is important for children with disabilities.

• How a strong support system can benefit parents of children with disabilities.

Resources from this Episode:

Website: https://www.jessicafeinstories.com/ 

Read Breath Taking: A Memoir of Family, Dreams, and Broken Genes

Listen to I Don't Know How You Do It

Facebook:@jessica.fein.92 

Instagram:  @feinjessica 

LinkedIn:@jessica-fein

 

Engage with us:

Join our community: Circle of Care

Visit:  https://annettehines.com

Read Butterflies and Second Chances

LinkedIn: @annette-hines-snc 

Instagram: @parentingimpossible

Facebook: @SpecialNeedsCompanies

Twitter: @SpecialNeedsCo

 

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