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In this episode, Dr. Katie Huff (Cincinnati Children’s) and Dr. Pritha Nayak (Dallas Children’s) discuss the work of the CHNC Intestinal Failure Focus Group. They highlight the unique challenges of managing neonates post-NEC, including TPN, nutrition, and long-term outcomes. The group’s recent survey revealed significant variability across centers, including the presence of dedicated intestinal rehab teams and approaches to outpatient follow-up. Future efforts will focus on neurodevelopmental support, optimizing feeding practices, and standardizing criteria for discharge on TPN. This work demonstrates how descriptive, collaborative research within CHNC can spark new hypotheses and improve outcomes for this complex neonatal population.

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