• “Nothing About Me, Without Me” means co-designing healthcare with patients and carers, not just collecting feedback after making decisions.

• There is a crucial difference between patient satisfaction surveys (feedback on services) and Patient-Reported Outcome/Experience Measures (PROMs/PREMs), which reflect how patients are doing and what matters to them.
• Truly personalised care focuses on what is most important to each patient, considering their life goals, needs, and circumstances, not just clinical outcomes.

• Embedding patient-reported measures requires more than collecting data; the real shift happens when clinicians use this information to tailor care and drive better outcomes.
• Behaviour change programs, including structured learning and peer support, are much more effective than isolated attempts to implement PROMs/PREMs in driving sustained improvements in patient experience and uptake.

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