In this episode of the Brain & Life Podcast, co-host Dr. Daniel Correa is joined by dedicated public servant and former U.S. Representative for Virginia's 10th congressional district Jennifer Wexton. She shares about her journey with progressive supranuclear palsy (PSP) and what she has learned from the PSP community. She also discusses the importance of advocacy and the use of assistive technology, including the AI-generated voice she uses during this episode. Dr. Correa is then joined by Dr. Janis Miyasaki, a movement disorders specialist who practices at the University of Alberta in Canada where she is the head of the department of clinical neuroscience and co-directs the Neuropalliative Care Clinic. Dr. Miyasaki explains PSP and discusses what the care experience may look like for someone living with PSP and their loved ones as they search for comfort and peace.

Interested in getting involved with advocacy? Learn more here: https://www.brainandlife.org/get-involved/advocate/

Additional Resources

Former Representative Jennifer Wexton Breaks Barriers with AI-Generated Voice Amid PSP Battle

The Research Pipeline for Progressive Supranuclear Palsy

CurePSP

Other Brain & Life Podcast Episodes on Similar Topics

Family Stories: Diagnosing a Neurodegenerative Condition

The Future of Caregiving with Kat McGowan

Still Standing with Staff Sergeant John Kriesel

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

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Social Media:

Guests: Jennifer Wexton @repwexton; Dr. Janis Miyasaki @ualberta

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD