In this two-part episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by Elizabeth Ansell, founder and director of #NotJustFatigue. #NotJustFatigue is a nonprofit organization shining a light on myalgic encephalomyelitis/chronic fatigue syndrome, also known as ME/CFS, and educates patients, clinicians, and health organizations about the condition. Elizabeth shares how raising awareness, and furthering research really improves the everyday lives of people living with ME/CFS. Dr. Peters is then joined by Dr. W. Ian Lipkin, who is known internationally for his research and is the John Snow Professor of Epidemiology, Professor of Neurology, and Professor of Pathology and Cell Biology at Columbia University Irving Medical Center, Mailman School of Public Health. Dr. Lipkin discusses what’s next in ME/CFS research and what the future could hold.

 

Additional Resources

#NotJustFatigue

How to Fight Fatigue

Understanding the Impact of Invisible Illnesses on Daily Life

How Families Are Leading the Charge in Rare Disease Advocacy

 

Other Brain & Life Podcast Episodes on Similar Topics

Rare Thoughts on a Rarer Neurologic Condition

Shedding Light and Love on a Rare Genetic Condition with Deborah Vauclare

Neurofibromatosis Advocacy and Community Building with the Gilbert Family Foundation

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Have a question or want to hear a topic featured on the Brain & Life Podcast?

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Social Media: Elizabeth Ansell @notjustfatigue; Dr. W. Ian Lipkin @columbiapublichealth

Guests: Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD