When Alice Bailey was diagnosed with early-onset Alzheimer’s at 56, some of the challenges were all too familiar. She had witnessed her mother’s experience with Alzheimer’s years earlier, and recognized some of the same gaps in care and communication with her diagnosis. Receiving no resources to help her process her diagnosis, she leaned on family, faith, and community to find support. Today, she’s a member of the Council of Black Dementia Minds, where she shares her story and helps build awareness about dementia in communities that are often underserved.

In this Live Talk with Being Patient’s Mark Niu, Bailey reflects on the moment she knew something was wrong with her memory, the frustrations she faced in the healthcare system, and the steps she has taken to live well despite her diagnosis. From addressing the stigma of early-onset Alzheimer’s to advocating for greater awareness in the Black community, she continues to use her voice to inform others.