Myra Sack and her husband Matt were very lucky. They had fallen in love with the right person, had work they were deeply committed to and had a new baby. Into the middle of their charmed life came the worst possible news; their perfect daughter had Tay-Sachs disease. She would live a very short life. A mistake in the testing they had received for Tay-Sachs blindsighted them. Reeling from the news and immersed in the question of how they could possibly live out this time, they decided they would celebrate Havi every day of her life. And every Friday they would gather friends and family in their home for Shabbirthday. They would love her and cherish her and hold her as if each Friday was both a holy shabbat and a wonderful birthday party. They had no way to imagine how they would grieve her, but they decided to live fully with her as long as they could with whoever also wanted to grace this beautiful child with their love. And with that simple promise, they found a way to put one foot after the other.