Parenting Impossible – The Special Needs Survival Podcast

Episode 129: Legal Decisions and Person Centered Planning for the New Year with Annette Hines


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As the year winds to an end, we begin to think about the new year and how prepared are we are for the future. What planning will we need to do, what will we need to change, what worked well, what didn't work well. For special needs families, the planning can sometimes be a little more challenging when it may include legal decision making regarding guardianship. In this podcast episode, Annette goes over some of the different types of guardianships (or conservatorships) there are and other important legal documents to have, as well as the importance of making sure the supported person is at the center of the decision making process.

Annette begins by discussing some of the national and local developments that have taken place. The National Guardianship Network has called for a reform of the guardianship system and has proposed a guardianship bill of rights. They have proposed limiting guardianships where possible, maintaining person centered planning, right to counsel, supported decision making and better monitoring of guardianships to address abuse. Congress is also considering funding a national court improvement program. The Massachusetts Guardianship Policy Institute has brought about many changes in the guardianship process since 2015 including supported decision making.

Annette then discusses the Brittney Spears case and how it brought so much national attention. Brittney was allowed almost no freedoms and every part of her life was controlled though she was performing and making money. This brought about the question of what does incapacitated look like? How can she be working and earning money, yet still need guardianship?

Annette discusses one of the most important parts of this whole process – person centered planning. When you are planning for your special needs individual, you need to make sure they are at the center of this planning. You have to figure out first what decisions the individual can make and where they will need supports. Then review the list of available supporters and who may be preferred. Annette says, "remember that the supported person is at the center of the team and their voice is the most important one." They need to have their own voice and be able to participate in their own future. Supported decision making is important – here are two online tools to help: Supported Decision-Making and Honoring Choices Massachusetts.

Annette closes with the view that families will know what is best for them. There is no one right answer to the legal d

Have you been searching for a law firm that understands the unique challenges of your family? We can help you at Special Needs Law Group put legal planning in place to protect you and your loved ones now and in the future. Book a free call today with our team or contact us via our website: specialneeds-law.com/contact.

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Parenting Impossible – The Special Needs Survival PodcastBy Annette Hines

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