Fatigue is considered to be the most common MS symptom and also one of the most disabling because fatigue can interfere with every aspect of someone's life -- at home, at work, in their relationships -- in every way, fatigue can have a profound impact on your quality of life. We're talking about how to best manage MS-related fatigue with two experts on the subject, Dr. Bardia Nourbakhsh, and Dr. Kathy Zackowski.   Remembering Karen Jackson   We're also remembering Karen Jackson, an MS activist, tireless advocate, a supporter of people-powered research, friend to this podcast, and a special person who we were lucky to know.   We're also talking about the National MS Society's first recommendation for stem cell therapy as a treatment for MS. This recommendation comes with some important caveats and we'll cover them all.   We'll share some very disturbing survey results that reveal widespread mistreatment of MS patients by their family caregivers. And we'll tell you what we're doing about it.   If you're an adult living with MS, we'll share the details of an opportunity for you to participate in a clinical trial from the comfort of your own home, as researchers study the health benefits of tele-exercise.   And you'll meet a true difference-maker in the MS community when you meet Cristina Antelo, who submitted the winning bid in a fundraising auction for the National MS Society. And the item that Cristina bid on was.....this interview!   We have a lot to talk about! Are you ready for RealTalk MS??!

Remembering Karen Jackson  :22

National MS Society issues a recommendation for stem cell therapy  4:05

NARCOMS survey uncovers widespread mistreatment of MS patients by their caregivers    8:34

Adults with MS wanted for tele-exercise clinical trial  13:08

My Interview with Dr. Bardia Nourbakhsh & Dr. Kathy Zackowski  14:44

My Interview with Cristina Antelo  31:23

Share this episode  44:21

Donate to the National MS Society COVID-19 Response Fund  44:44

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

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National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

Autologous Hematopoietic Stem Cell Transplant in Multiple Sclerosis: Recommendations of the National Multiple Sclerosis Society

SURVEY: Abuse and Neglect of People with Multiple Sclerosis: A Survey with the North American Research Committee on Multiple Sclerosis (NARCOMS)

To Participate in the Tele-Health Study Contact Amy Bialek at Burke Neurological Institute Phone: (914) 597-2347 Email: [email protected]

National MS Society COVID-19 Response Fund

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RealTalk MS Episode 166 Guests: Dr. Bardia Nourbakhsh, Dr. Kathy Zackowski, and Cristina Antelo

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist,  RealTalkMS

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