RealTalk MS

Episode 401: The Things That (Should) Happen at Your Appointment With Your Neurologist with Dr. Barbara Giesser


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Most people living with MS don't see their neurologist often. For many, it might be only once or twice a year. A lot of important things take place during that appointment. Symptoms are assessed. Decisions about disease-modifying therapies are made or, sometimes, changed. Questions get asked and, hopefully, answered.

 

Dr. Barbara Giesser returns to the podcast, this time, to review the things that should be discussed and followed up on at your appointment with your neurologist or MS specialist.

We're also sharing some good news about MS research funding from the National MS Society and the International Progressive MS Alliance.

We'll tell you how you can catch the replay of the International Progressive MS Alliance's webcast focused on putting people with MS at the center of MS research.

We're sharing the encouraging outcome of the Phase 2 clinical trial for vidofludimus calcium and progressive MS.

We'll tell you how you or a family member can participate in the GEMS study.

And we'll tell you about a new AI tool that can accurately diagnose a patient's transition from relapsing-remitting MS to secondary progressive MS, often before a clinician can!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: What (should) happen during your appointment with your neurologist  :22

National MS Society invests $18.1 million in new research  1:04

International Progressive MS Alliance funds 3 clinical trial development projects  3:53

Catch the replay of the International Progressive MS Alliance webcast focused on putting people with MS at the center of research  6:56

Immunic Therapeutics announces positive results from the Phase 2 clinical trial evaluating vidofludimus calcium for progressive MS  7:45

You or a family member may qualify to participate in the GEMS study  10:00

AI tool can accurately diagnose the transition from relapsing-remitting MS to secondary progressive MS  12:01

Dr. Barbara Giesser discusses the kinds of conversations you should be having during your appointment with your neurologist  16:49

Share this episode  30:38

Have you downloaded the free RealTalk MS app?  31:00

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ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: [email protected] Phone: (310) 526-2283

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Become an MS Activist Web: https://nationalmssociety.org/advocacy Email: [email protected]

National MS Society Commits $18.1 Million for Research (Projects Being Funded) https://cdn.sanity.io/files/y936aps5/production/a788b2e3d8409173a4de417fcf3bebcfbddddc41.pdf

International Progressive MS Alliance https://progressivemsalliance.org

International Progressive MS Alliance Webcast: Putting People with MS at the Center of Research https://youtube.com/watch?v=uacSJ7ZxuRM

Participate in MS Research: The GEMS Study https://recruit.cumc.columbia.edu/studyinfopage/1419

GEMS Study Contact: Juliana Oyegunle Email: [email protected] Phone: (212) 305-2434

STUDY: Conformal Prediction Enables Disease Course Prediction And Allows Individualized Diagnostic Uncertainty in Multiple Sclerosis https://www.nature.com/articles/s41746-025-01616-z

Multiple Sclerosis Progression Tracker https://msp-tracker.serve.scilifelab.se/

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 401 Guests: Dr. Barbara Giesser

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RealTalk MSBy Jon Strum

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