Today on MS Understood we chat with news anchor Katie Collett. She shares about managing her MS symptoms while being a morning news anchor and why she talks about her MS symptoms with her viewers, she talks about what a day looks like for her and how she manages her fatigue, we've both got seven year old boys and we talk about talking with them about our multiple sclerosis. It was such a lovely chat, I really hope you enjoy it.

I'm honoured to be able to share stories from people living with MS from all works of life from all over the world. Something you could do to help me out is give me a five star review, this helps others to be exposed to the podcast. and may just reached a newly diagnosed person when they really needed it.

Thank you so much for listening to today's episode of MS Understood. you can find Katie on Instagram at @KatieCollettTV where she shares behind the scenes of life as a news anchor with MS. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a rating, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Thanks again for listening and please share this episode with someone you think it might help

Today on MS Understood we chat with MS advocate Kelly Wright. Kelly's mum passed away from a common cold due to weakness caused by her multiple sclerosis, when Kelly was just 16. Even after having lived with it for her life, she still put her symptoms down to a pinched nerve. Kelly moved across the world to manage her temperature sensitive, and wears the highest heals she can because her feet are numb. In fact she wore gorgeous red stilettos on a fundraising walk across the Great Wall of China. We talk about how the grief of diagnosis never goes away.

Thank you so much for listening to today's episode of MS Understood. Please head over to Instagram and check out Kelly at @kellywright_msfighter. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a review, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Thanks again for listening and please share this episode with someone you think it might help

Today on MS Understood we chat with MS advocate Roxy Murray, she's passionate about Black representation in the MS community and sharing incredible style while having a disability and is a podcaster

We speak about changing the narrative of what the world sees as an MS patient, Roxy was so passionate about having Black representation that she jumped online and started sharing her story, after being diagnosed so young Roxy shares how she followed her creative passions. Roxy shares great tips on how she manages her MS day to day.We talked about the pros and cons of various disability aids and the constant stigma around them.

The Best Bet Diet

MS Hope with Mathew Embry

Thank you so much for listening to today's episode of MS Understood. Please head over to Instagram and check out Roxy on Instagram at multiplesclerosisfasionista and sickandsickening_podcast. You can find me on Instagram @Clare.Reillyor @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a review, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Thanks again for listening and please share this episode with someone you think it might help

Today on MS Understood we chat with acclaimed documentary writer, producer and director with a documentary called Living Proof. Mathew Embry is a passionate advocate for people and families who are living with MS after being diagnosed in 1995 today he's symptom free and living an incredible life after his dad, research scientist, Ashton Embry, developed an effective therapy using nutritional strategies to manage the disease.

Mathew has been diagnosed for 26 years. When he was first diagnosed he and his father created one of the first MS 'diets' that he started following within six weeks of his diagnosis. This diet and lifestyle was The Best Bet Diet and was the basis for the Whals Diet. We talk about the dreams you have for our life when diagnosed at 19 and how this was the motivator for Mathew to follow this strict life style from just after his diagnosis. Prior to coming out online with the MS Hope website, Mathew was quite private about his diagnosis, having had only one conversation with his wife about his MS before deciding to come out to the world, he talks about why he decided to share his story. Something that I found so interesting is that Mathew spoke about how hard it was to live the lifestyle he does. I found this so refreshing, because I don't think often enough it's spoken about the discipline it takes to follow any of these MS lifestyles. We talk about our kids following the diets we're on and trying to change the perception about what it looks like to live with MS. I got a lot out of this conversation, I really hope you do too.

MS Hope

Thank you so much for listening to today's episode of MS Understood. If anything has piqued your interest definitely head over to check out MS Hope, and Direct-MS, you can find Mathew on Facebook and Instagram. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a review, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Today on MS Understood we chat with public speaker, resilience coach, artist and medical advocate Justine Martin. We talk about how her life has done a complete 180 since diagnosis, we speak about how art has changed her life, and so much more. I seriously loved her answer to my "what's been the best thing to happen to you because of your MS?', so make sure to stick around to the end of the episode to hear that.

Thank you so much for listening to today's episode of MS Understood. You can find Justine on Facebook at JUZT art Justine Martin Artist, and you can find her Australian MS Support Facebook Group at Supporting Each Other With MS in Australia. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a review, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Thanks again for listening and please share this episode with someone you think it might help

Today on MS Understood we chat with Aaron Monheim. We talk about male incontinence which is something I don't think gets talked about enough, in-fact I don't think there's enough talk in general about men having multiple sclerosis. And on this same topic we also tough on not having knowledge about how the medications can effect male fertility. Aaron goes into some great explanations on HSCT - stem cell transplants and why he's trying to get it and why he can't right now. He talks with so much love about his daughter and how she is the motivation for everything he's doing.

Staying Fashionable and Having Multiple Sclerosis with Ardra Sheppard

Medical Marijuana and Multiple Sclerosis with Beardo

Constant Pain and Multiple Sclerosis with Stephen

Thank you so much for listening to today's episode of MS Understood. If you loved this chat you can check out interviews with Beardo and Stephen, two other men who have told their stories on this platform. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a review, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Thanks again for listening and please share this episode with someone you think it might help

Today on MS Understood we chat with Matthew, Beardo, who I met while getting tattooed at Hot Copper Studio in Melbourne. In the studio we bonded over our MS adventures, our meds and I thought his story would be great one to share. He shares about working in active duty military in America, he chats about using meditation and mindfulness and we talk a bit about medical marijuana.

NDIS and Multiple Sclerosis with Nina Crumptom

Sam Harris - Waking Up App

Alan Watts

Constant Pain and Multiple Sclerosis with Stephen Papadopolous

Thank you so much for listening to today's episode of MS Understood. We didn't mention it today but Beardo sells cross stitch patterns on Etsy that you can find via his Instagram account @stitchlord666. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a review, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Thanks again for listening and please share this episode with someone you think it might help

Today on MS Understood we chat with Anna Snodin, a speech pathologist who had to experience being a patient in the same setting in which she worked. She makes these super cute enamel pins which you should definitely check out. We talk about work, how her hours have changed and she used the services of MS Limited employment services.

Anatomical Enamel Pins

Find Annie on Instagram @Anatomical_enamels

Thank you so much for listening to today's episode of MS Understood. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a review, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Thanks again for listening and please share this episode with someone you think it might help

Today on MS Understood we chat with Crystal who was diagnosed with MS when she was 11. We chat about what it was like to be diagnosed so young, how she went through college and high school with multiple sclerosis, and how she's found a great community of people living with MS online.

Dr Gretchen - The MSing Link

IGTV with Dr Gretchen

Thank you so much for listening to today's episode of MS Understood. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a review, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Thanks again for listening and please share this episode with someone you think it might help

Today on MS Understood we chat with Yvette who was diagnosed with MS over 25 years ago. We chat a lot about how things have changed in terms of medications and support since then. We talk about what things are really important in life, and how Yvette talked to her kids and now her grand kids about living with MS. We talked about the NDIS and why we deserve the financial support. I found this chat super beneficial as someone who is relatively newly diagnosed, and how things may look into the future of me having MS. And I really hope you do too.

Thank you so much for listening to today's episode of MS Understood. You can find me on Instagram @Clare.Reilly or @MSUnderstoodPodcast. The best thing you can do to support this podcast is click follow on Spotify, Subscribe on your other podcast listening platforms and leave a review, this helps others find the podcast.

I'm always looking for new guests for the MS Understood podcast, if this is you or someone you know, please send me a message via either of my instagram accounts. In an effort to make sure to have representation I'd love to hear from any members of the lGBTQI+ community, our Black and BIPOC community or any men willing to share their stories of living with Multiple Sclerosis.

Thanks again for listening and please share this episode with someone you think it might help.