1 in 16 people in the US are affected by fibromyalgia, and 1 in 13 women specifically—that’s about 6.4% of the population. To put these statistics in perspective, breast cancer affects 1 in 8 women, cervical cancer affects 1 in 13 women, and colon cancer affects 1 in 25 women and 1 in 23 men. Despite the similarity in prevalence, fibromyalgia has a long way to go in terms of awareness and medical training when compared to these other conditions. 

In our mission to improve this, a critical avenue for increasing awareness has been obtaining official proclamations for states to recognize May as Fibromyalgia Awareness Month and May 12th as Fibromyalgia Awareness Day. Governor’s Proclamations are powerful tools that help advocates validate the struggles faced by fibromyalgia patients and garner support from state officials. This can lead to increased funding for research and better resources for those of us living with fibromyalgia.

Today, Tami is joined by her best friend and fellow advocate, Melissa Swanson. A few years ago, Tami and Melissa decided to bring together their communities, along with several other fibromyalgia organizations, and coordinate the efforts to obtain a Governor's Proclamation in every state. Their goal is to "color the map purple" for fibromyalgia awareness, and Melissa is the coordinator for this effort.

In this conversation, Melissa and Tami discuss what a Governor's Proclamation is, how it helps to raise credibility and awareness, the steps involved in requesting a Governor's Proclamation, the criteria we make sure to cover in Proclamation requests, why May 12th was chosen as Fibromyalgia Awareness Day, working with various fibromyalgia organizations to obtain Proclamations, how Melissa helps individuals with the application process, their progress on the goal ot “color the map purple”, the benefits of coordinating with various groups in obtaining Proclamations, how you can help in your state, how collective efforts strengthen the push for fibromyalgia awareness, reasons for denial of Proclamation requests, the application timeline and how the process varies by state, Melissa’s preparations for the next round of applications, the ongoing need for help regardless of your state’s status, Tami’s experience requesting a Governor’s Proclamation in Oregon, statistics on fibromyalgia's prevalence among the U.S., why we need your help, upcoming events related to Fibromyalgia Awareness Day, and more.

Every voice matters in the fight for awareness and support for fibromyalgia. Let’s work together to make a difference.

 

Note: This episode is not meant to be medical advice. Every person and every situation is unique. The information you learn in this episode should be shared and discussed with your own healthcare providers.

To learn more about the resources mentioned in this episode, visit the show notes.

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