Everywhere We Go

Parenting on the Spectrum: Language, Diagnosis, and Daily Life


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If you’ve ever paused before speaking and wondered, “What words won’t hurt here?” this conversation is the answer—and then some. We start with language and respect, then travel through diagnosis, the Q-CHAT turning point, and two very different autism profiles in one family. One child is moving from non-verbal to pre-verbal with a speech device; the other wrestles with regression, self-injury, and the kind of big emotions that make safety and routine non-negotiable. Along the way, we talk openly about stimming as regulation, why person-first vs identity-first language matters, and how simple questions can keep friendships close rather than careful and distant.


School choices become a map rather than a ladder: autism units attached to mainstream schools for some, special schools focused on life skills for others. We get practical about the day-to-day—2 a.m. wake-ups, bus-triggered shoe sprints, the sanctuary of sameness, and the small adaptations that keep the house steady. A service dog named Milo transforms outings from “white-knuckle” to “we can do this,” showing how tethering can mean dignity, not restraint. Puberty planning is handled with care and medical oversight, reframing judgement as compassion when a child cannot yet manage periods. We also share the tools that truly help—PECS, LetMeTalk, photographed choices—and the red flags to avoid: miracle cures, detox fads, and anyone selling guilt.


There’s hard truth here about guilt, blame, and grief for lost rituals—birthdays, Santa magic, big milestone days that don’t land the way you imagined. There’s also a bright thread of hope: adult diagnosis bringing clarity for a parent, community that actually supports, and the next tiny win that makes tomorrow a little easier. If you care about autism families—whether you’re parenting, teaching, or a friend who wants to do better—you’ll find a grounded guide to language, support, and love without sugarcoating.


Subscribe for more honest, practical stories, share this with someone who needs it, and tell us: what’s one small change that made your days calmer?

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Everywhere We GoBy Rebecca Kelly

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