The Rare Life

The Story of Claire (Rebroadcast)


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Although Claire’s medical condition has many characteristics, for Katie and her husband they all pale in comparison to the heart-shattering fact that it is terminal.

In this episode, we laugh and we cry as mom Katie shares all about her adrenaline-junky four-year-old daughter Claire, her pregnancy and birth story, and the

gut-wrenching moments of learning that their precious newborn would not survive childhood.

She also shares ways that she has become a stronger, more gratitude-filled and empathetic person because of Claire and the lethal nature of her diagnosis.

Trigger warning concerning childhood death. 

*This is a rebroadcast of one of my favorite episodes of The Rare Life for you to listen to while we work on production for season 8,

coming in August! If you’d like to discuss this episode with other members of The Rare Life community, we’ll be holding three different meetings run by our
amazing group facilitators every Tuesday at 8pm in PST/CST/EST. Fill out our contact form to get the Zoom link each week!*

Links:

Sign up to get an invitation for our community discussions every Tuesday during the off-season!

Follow me on Instagram!

Donate to the podcast via Buy Me a Coffee.

Contact me about sponsoring the podcast.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

And if you love this podcast, please leave us a rating or review in your favorite podcast app!

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The Rare LifeBy Madeline Cheney

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