Well Beyond Medicine: The Nemours Children's Health Podcast

Well Beyond Medicine: The Nemours Children's Health Podcast

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Well Beyond Medicine: The Nemours Children's Health Podcast episodes

  • Ep. 150: Owning Crohn’s: A Story of Stigma, Strength and Advocacy

    Tina Aswani-Omprakash began experiencing symptoms as a child – joint pain, eye inflammation and digestive issues – but no one connected them. Without a diagnosis, health insurance, or support due to the cultural stigma surrounding inflammatory bowel disease (IBD) and Crohn’s disease, Tina endured a long and painful journey to understand her own body.

    Today, she’s a patient advocate, storyteller and CEO of the South Asian IBD Alliance (SAIA), using her lived experience to support others – especially young people and families – facing similar challenges.

    Own Your Crohn’s
    South Asian IBD Alliance (SAIA)

    Guest:
    Tina Aswani-Omprakash, MPH, CEO, South Asian IBD Alliance (SAIA)

    Host/Producer: Carol Vassar


    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    33 min
  • Ep. 149: Global Health, Local Impact: Rethinking Care Through Innovation

    Anne Snowdon, PhD, Chief Scientific Research Officer, Healthcare Information and Management Systems Society (HIMSS), joins us to discuss how information, innovation and digital technology are transforming health care worldwide. From AI tools that support early-career clinicians to cross-border collaboration on system design, this conversation explores how digital health is improving outcomes, addressing workforce shortages and advancing a shift from disease management to whole child health.

    Guest: 
    Anne Snowdon, PhD, Chief Scientific Research Officer, Healthcare Information and Management Systems Society (HIMSS)

    Host/Producer: Carol Vassar


    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    33 min
  • Ep. 148: Reading Is Health: The Case for Early Literacy (Part 2 of 2)

    Early literacy is one of the strongest predictors of lifelong health and success – yet reading scores across the U.S. are falling at an alarming rate.

    In part two of our series on early literacy and health, we highlight Nemours Children’s Reading BrightStart!, a proven, science-based program celebrating 20 years of impact.

    Reading BrightStart! supports children from birth through first grade with early literacy curricula, educator training, and family resources – helping more young learners become confident readers and setting a foundation for lifelong health.

    Resources:
    Nemours Children’s Reading BrightStart! Family Resources
    Harris Poll Executive Summary
    Full Harris Poll Results

    Guests:
    Rebeca Grysko, PhD, CBIS, Special Education Teacher and School Liaison, Nemours Children’s Hospital, Florida
    Jamie Williams, MEd, Manager, Intellectual Property and Curriculum Design, Nemours Children's Health
    Dawn Espinoza, MEd, Educational Support Supervisor, Early Learning Coalition of Pasco and Hernando Counties, Florida
    Samantha Taylor, Quality Performance Specialist, Early Learning Coalition of Pasco and Hernando Counties, Florida

    Host/Producer: Carol Vassar


    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    23 min
  • Ep. 147: Reading Is Health: The Case for Early Literacy (Part 1 of 2)

    Early literacy is one of the strongest indicators of lifelong health and success – yet reading scores across the U.S. are declining at an alarming rate. In part one of this two-part series, we dive into what the latest data reveals, how the COVID-19 pandemic has intensified the literacy crisis, and what actions educators and health care providers can take to reverse these trends.

    Celebrating its 20th anniversary, Nemours Children’s Reading BrightStart! continues its mission to help every child become a successful reader through early literacy curricula, educator training and family resources for children from birth to first grade.

    Resources:
    Nemours Children’s Reading BrightStart! Family Resources
    Harris Poll Executive Summary
    Full Harris Poll Results

    Guests:
    Kate Blackburn, MSW, Director of Practice and Prevention, National Office of Policy & Prevention, Nemours Children’s Health

    Rebeca Grysko, PhD, CBIS, Special Education Teacher and School Liaison, Nemours Children’s Hospital, Florida

    Host/Producer: Carol Vassar


    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    19 min
  • Ep. 146: Powering Up the Heartland: Microsoft’s Mission for Rural Health

    According to the U.S. Census Bureau, about 60 million Americans – one in five – live in rural areas, including 12 million children. But hospitals in these communities face growing challenges: cybersecurity threats, aging infrastructure, staffing shortages and limited funding are all jeopardizing access to care.

    Laura Kreofsky, Director of Rural Health, Microsoft Philanthropies, highlights the critical need to bolster rural health care systems. Through efforts like the Rural Health AI Innovation Lab (RHAIL), Microsoft is helping rural hospitals enhance cybersecurity, access affordable AI tools and strengthen collaboration.

    Guest:
    Laura Kreofsky, MHA, MBA, PMP, CDH-E,
    Director of Rural Health, Microsoft Philanthropies

    Host/Producer: Carol Vassar

    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    26 min
  • Ep. 145: ChatGPT MD with Dr. Robert Pearl (Encore)

    Dr. Robert Pearl, former CEO of the Permanente Medical Group and a professor at Stanford University School of Medicine, discusses his latest book, ChatGPT, MD. He shares how generative AI could transform health care by empowering patients and clinicians through real-time data analysis and insights. These AI tools could significantly improve chronic disease management, helping to reduce the incidence of heart attacks, strokes and kidney failure. In this wide-ranging interview, we explore his vision for the potential of generative AI in reshaping the future of health care.

    Guest:
    Robert Pearl, MD
    , author, podcaster, former CEO of the Permanente Medical Group, Clinical Professor of Plastic Surgery, Stanford University School of Medicine


    Host/Producer: Carol Vassar


    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    34 min
  • Ep. 144: Stature and Strength: An Advocate’s Journey with Achondroplasia

    Achondroplasia advocate Chandler Crews, founder of The Chandler Project, joins us to discuss life with the most common form of skeletal dysplasia. She shares her personal journey, including her decision to undergo limb-lengthening surgery. We also explore emerging treatments and the evolving conversation around advocacy, research and innovation in the achondroplasia community.

    Guest:
    Chandler Crews, Founder, The Chandler Project, and Orthopedic Care Coordinator & Liaison, Nemours Children’s Hospital, Florida

    Host/Producer: Carol Vassar


    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    28 min
  • Ep. 143: Harnessing Real-World Data to Transform Pediatric Care with Epic

    Dr. Jackie Gerhart, Chief Medical Officer for Epic, and Phil Lindeman, Vice President of Data and Research at Epic, join us to explore how real-world data is transforming pediatric care with the power of Epic's Cosmos and EpicShare platforms. We also discuss how data-sharing collaborations across health systems are advancing pediatric research and innovation, with a special focus on the groundbreaking work of Dr. Kevin Dysart from Nemours Children's Health. 

    GUESTS:

    Dr. Jackie Gerhart, Chief Medical Officer, Epic

    Phil Lindeman, Vice President of Data and Research, Epic

    Carol Vassar, host/producer



    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    27 min
  • Ep. 142: Where Tech Meets Trust: Redefining Global Health Care Access with PERSOWN

    The United Nations and World Health Organization have long recognized health as a fundamental human right. Yet barriers to care persist — not only in the United States, but around the world.

    PERSOWN Connect is introducing a bold new care model designed to help break down those barriers. Its innovative platform empowers underserved communities by combining AI-powered diagnostic tools, microloans and satellite connectivity to deliver life-changing care and promote economic growth globally.

    Guests:
    Carey Officer
    , President, PERSOWN Connect
    Deborah Maufi, MD, MBA, Strategic EU/Africa Consultant, The Netherlands
    Arthur Pereira, CEO, Missão Sal da Terra in Uberlandia, Brazil

    Host/Producer: Carol Vassar


    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    30 min
  • Ep. 141: Beyond the Label: Navigating Herbs and Supplements for Children

    From melatonin to probiotics, more parents than ever are turning to herbs and supplements to support their children’s health. But are these products safe? Do they work? And how can pediatricians partner with families to make informed decisions?

    In this episode of the podcast, Dr. Cora Collette Breuner of Seattle Children’s shares her insight on the rising use of natural remedies in pediatrics, exploring what families are using, how they’re making these decisions, and why healthcare providers must ask the right questions of their patients and their parents. 

    GUEST:

    Cora Collett Breuner, Pediatric and Adolescent Medicine Specialist, Seattle Children's

    Carol Vassar, host/producer

    Views expressed by guests do not necessarily reflect the views of the host or management. 

    Subscribe, review or let your voice be heard at NemoursWellBeyond.org.

    23 min

About Well Beyond Medicine: The Nemours Children's Health Podcast

From the publisher's feed

Exploring people, programs and partnerships addressing whole child health.

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