What happens when a ten-year-old wakes up as a completely different child, hearing voices, gripped by terror, and no one can explain why? In this episode of Demystifying PANS/PANDAS, Isabel Witkos shares her story of years of misdiagnosis, trauma, self-harm, and suicidality, and how she rebuilt her life through therapy, community, and a stubborn kind of hope.

She went to bed a typical ten-year-old and woke up terrified of her own mind. In this episode of Demystifying PANS/PANDAS, Isabel Witkos joins us to talk about what PANDAS feels like from the inside. She describes going to bed as a typical ten-year-old and waking up overwhelmed by fear, intrusive thoughts, and symptoms no one could explain. Her family faced months of confusion, misdiagnoses, and missed school before learning about PANDAS. Even then, her recovery was long and complicated. She shares the grief of losing normal childhood experiences, the isolation of feeling misunderstood, and the struggle of living for years with a brain and body that no longer felt safe.

Izzy also opens up about the emotional side of her journey, including trauma, self-harm, and moments when she had to choose to keep going. Today, after years of hard work, she talks about finding calm, gratitude, and a desire for a peaceful life. Her story reminds families that this season is not the whole story and that recovery is possible.

Isabel Witkos is a young adult who spent a full decade living inside PANDAS. She was diagnosed at age ten after an overnight change that left her hearing voices, battling tics, intrusive thoughts, severe anxiety, and long stretches out of school. Her case was complex, with multiple triggers and layers of medical and emotional trauma, including self-harm and a suicide attempt in college.

Today, she speaks openly about the loneliness, grief, and identity loss that often go unseen in PANDAS. Through years of treatment, intensive therapy, and the steady presence of her family and friends, she’s learned that she is far more than her diagnosis, and now uses her story to offer validation, hope, and a vision of true healing to other families walking the same road.

Nancy O’Hara, MD, MPH, FAAP, FMAPS

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