2 Parkies in a Pod: a Parkinson's Podcast

We’ve reached a milestone on the podcast, our 40th episode, so we thought we’d celebrate with you the listeners.  We dip into the mail bag and share some of your Parkinson’s stories.  

Plus Dave walks into a tree, Kuhan reveals who inspired him to stay out until one in the morning dancing and drinking tequila and hear about a real life STAR of the community -  a young woman who travelled half way around the world to share her experiences of the condition.

Brisk walking tunes 120 Beats Per minute

Propranolol for Parkinson's

Dave Clark Independent article

AMAZING THINGS

Springsteen raises $ for Parkinson’s

Why 2 parkies in a pod loves Leah Forster

The press upping pig farmer with Parkinson’s

The pitch perfect Parkie (Parkinson's UK)

We take a trip to Parkinson’s UK’s new office, learn about their recent brand refresh and talk to the boss Caroline Rassell. She gives us the low down on all things Parkinson’s UK, shares her plans for the year ahead and reveals how Parkinson’s has got more personal for her recently. 

Parkinson UK helpline on 0808 800 0303

https://www.parkinsons.org.uk/

https://www.parkinsons.org.uk/get-involved

https://techguide.parkinsons.org.uk/

People With Do Amazing Things

Michael J Fox award

https://www.bbc.co.uk/news/videos/c2dx6gd0k66o

Kayaking scientist  Guillaume Brachet …

https://parkinsonseurope.org/2024/12/13/person-with-parkinsons-is-developing-new-drug-

 The Parky Blinders - Boxercise classes  

https://www.bbc.co.uk/news/articles/cn9gy4vqvrvo

In this festive episode we talk to illustrator, mime artist and educator Barbara Salsberg Mathews @SalsbergMathews She’s the perfect person to put you in a great mood for 2025. Barbara has created and illustrated an amazing book about  What Parkinson’s Feels Like' with contributions from the Parkinson’s community around the globe.

What Parkinson's Feels Like (free ebook)

What Parkinson's Feels Like (Amazon)

Parkinson's Europe

Parkinson's Canada

PD Avengers

Mime Over Mind

Paradoxical Kinesia

⁠If art were a drug ⁠

Walk to reduce anxiety

Doing Amazing things ..

The story of one man and his dog

Michael J. Fox CNN Heroes Legacy Award

Larry Gifford honored with King Charles III Coronation Medal — PD Avengers

Meet the amazing Joy Milne who has the nose to diagnose Parkinson’s.

She first noticed the smell of Parkinson's on her husband Les. Years later a chance encounter made her realise that she could smell Parkinson’s on other people too.

Find out how her superpowers have changed the face of diagnosis, how scientists are using this amazing discovery and what Parkinson’s smells like.

Plus joy tells us  the famous t shirt story about how the nose really did diagnose…

The Woman who can smell Parkinson’s BBC Documentary

Audrey’s 2025 Calendar: Dawn Diaries from Orford Quay

Ellie PD Mama Youtube

John Stapleton Good Morning Britain

www,2parkiesinapod.com

In this special live video episode Dave and Kuhan chat to one of the world’s leading Parkinson’s experts, Bas Bloem, about living well with the condition. 

We talk about everything from exercise to cannabis, dystonia to diet and how some people get “chemical creative”  when using Parkinson’s medication. Plus the audience tell us what activities make them feel like they don’t have Parkinson’s.

This podcast was recorded live in front of a large audience at Parkinson UK’s Parcon conference at the Royal Armouries Museum in Leeds.

We hope you enjoy!

For the second year running Dave and Kuhan join a Walk for Parkinson's at London's Battersea Park, hosted by Parkinson's UK.

Along the way they hear from Geoff, Ruth, Matt and his lovely family about diagnosis, the importance of exercise and tips for living well with Parkinson's. They also bump into volunteer steward Tara who tells them about her promising work in gene therapy.

Dave has his annual neurologist appointment, tells us about his new Parkinson's pants (!) and rummaging around TK Maxx.

Kuhan shares his secret for managing dystonia pain, explains his chemical rollercoaster and comes up with a new jingle for the podcast!

Show links

www.2parkiesinapod.com

[email protected]

@DaveClarkTV

@morethanatremor (Kuhan)

Walk for Parkinson’s (UK)

Cure Parkinson’s October Walking Challenge

BBC Miracle Cure Documentary

Chefs Pants

Beech band

Spotlight

Bradford Neuro Rehab

Sign up for Parcon 2024

The boys are back after a summer break. Find out what happened when Kuhan went  “Med free” for the first time in 11 years as he contemplates major brain surgery.

Dave talks about the challenges of a long haul flight to Vietnam, getting caught in a typhoon and whether you should celebrate your birthday!

This week the 2 Parkie’s are joined by Nicola Wydenbach, a classically trained and experienced vocal coach. In 2014, she started working with people living with Parkinson's using singing as tool to help address some of the symptoms. Clinical studies have shown that regular singing can improve vocal volume/quality and breathing issues.

Singing Links

http://www.nicolawydenbach.com  

http://www.medising.co.uk

Online Sessions (Friday 12.30 twice a month)

Singing app

Kings College London session (Tuesday 11.30 twice a month)

Trinity Laban session (Friday 10.30 twice a month)

People With Parkinson’s Do Amazing Things

Poets with Parkinson’s

Parkinson's comic book

Charlie’s at the Cairns Cup (golf)

Gary’s challenges

Peckham to Penzance for Parkinson’s

Register for Parcon 2024

Organised by Parkinson's UK, Par-Con is the free 2-day in-person and online event for the Parkinson's community to hear from expert speakers, connect with others and learn more about living well with Parkinson's

https://www.parkinsons.org.uk/research/par-con-2024

This week we speak to retired PE teacher, Christine Stanley. Christine has always loved being active and despite being diagnosed with cancer and then Parkinson's she hasn't lost her passion for life. She's recently become a Nordic walking instructor and credits it with giving her a sense of hope. Christine shares her tips on positivity and battling against the odds.

Hosts

@DaveClarkTV

@morethanatremor (Kuhan)

Guests

@Stanner96187706 (Christine)

Links

Man uses sculpting as therapy for Parkinson’s

Jagdeep's Annapurna Trek fundraising

British Nordic Walking

Parkinson's Rugby article

DBS couple

Decathlon Nordic walking poles

This week the boys enter the world of dance! Not the opulent, spray tanned, sequin clad Strictly, but the life changing benefits of the dance for Parkie’s.

We chat  to Helen Gould who’s just been awarded an MBE for "charitable services to people with Parkinson’s"! 

Helen is the co-founder of LPM Dance, which has developed the transformational Neuro-Moves programme to help people with Parkinson’s.

We also chat about how lessons from Bruce Springsteen can improve your Parkinson’s.

Kuhan says goodbye to his Parkinson’s nurse and we talk about the mental impact of getting a blue badge..

Show Links

https://lpmdance.com/

Neuro-Moves Rossendale- Mondays 2pm-3.15pm

Neuro-Moves Preston- Wednesday 2pm-3.15pm

Neuro-Moves online- Thursday 12.15-13.15pm

Booking link: https://lpmdance.com/classes
Contact Helen at [email protected] for more information

Colin Wells - Walking for Parkinson’s

Alex Echo - One Wave At A Time

Ellie Finch - @PdMama

Eirwen - Sparky Samba

Are you struggling to get yourself heard because your voice is quiet, mumbled or you just cant get the words out?

Are your meds getting stuck in your throat?

Do you dribble or have a dry mouth?

We may be able to help!

This week the boys catch up with Tim Grover, consultant speech therapist in the movement disorders department at University College London.

He tells us why people with Parkinson’s suffer speech problems, offer some tips on swallowing and explains the right time to seek specialist help.

More information can be found on the Parkinson's UK website:

Speech & Communication problems in Parkinson's

Eating, Swallowing & Saliva control in Parkinson's

We also reflect on the impact of our last episode about life expectancy with Parkinson’s.

And doing AMAZING things this week .. A Parkie swimming the channel, the Premier League referee going public about his diagnosis, and a Parkie taking part in the 2024 Olympics.

We hope you enjoy it…