2 Parkies in a Pod: a Parkinson's Podcast

This week we talk about the “The Elephant in the room“ - mortality rates amongst people with Parkinson’s. Our special guest is Professor Bas Bloem, one of the world’s leading Parkinson’s experts. Bas has written a paper on the subject of life expectancy with the condition.

In recognition of his outstanding work in the field of Parkinson’s, the professor has recently been knighted in his native Netherlands. He’s one of the most engaging and eloquent speakers in the Parkie world.

https://www.parkinsonnet.com/about-parkinsonnet/our-team/

Please don’t be scared to listen to this episode, we also talk about how to stay strong for long with the condition using exercise, diet and a positive mindset.

Also in 'People with Parkinson's Do Amazing Things' we feature Sean Stillman's BBC radio documentary 'Parkinson's and Me' where he reflects on his condition and his life since his diagnosis.

And Dave reflects on his day out at the Cure Parkinson's Cup

https://www.instagram.com/babbelbloem/

@basbloem (Bas Bloem)

@morethanatremor (Kuhan)

@DaveClarkTV

Joining Dave & Kuhan for a game of Fact or Fiction are Claire & Simon from Parkinson’s UK who help dispel some of the common myths about Parkinson’s.

Show links

Go to 2parkiesinapod.com or reach out to us on social media 

email us at [email protected]

Parkinson’s UK Helpline 0808 800 0303

Parkinson’s UK Research Network

Parkinson’s UK Become a Member

Parkinson’s UK Information Resources Catalogue

Parkinson’s UK World Parkinson’s Day

Economist Article

Association of British Neurologists Workforce Survey

Parkinson’s Diagnosis stats

Dept of Work & Pensions Benefits Data Portal

NHS Workforce Statistics

Free Gym Membership: 

https://www.everyoneactive.com/promotion/parkinsons/

[email protected]

Where to send your Parky smells: https://www.medicaldetectiondogs.org.uk/neurological-diseases/

In this episode Kuhan gets his tremor wired for sound, taking part in a ground breaking research study at University College London. The team created 5 unique songs from the tremors of 5 unique people with Parkinson’s. The album ‘Tremors vs Tremors’ is available to listen to on Spotify, Apple Music & Amazon… there’s even a limited edition vinyl record. All royalities are being donated to Parkinson’s UK. We’re joined by the man behind the project Dr Christian Lambert and two of the other study participants, Clare and Stephanie.

Tremors vs Tremors

https://tremorsvstremors.com/

Listen on Spotify https://open.spotify.com/album/5Q514xQ7lfQPT2s6GpT5jm?si=z-OMxr9IRYaSzWoIVrdQHA

Listen on Apple https://music.apple.com/us/album/tremors-vs-tremors-ep/1733686264

Listen on Amazon https://music.amazon.de/albums/B0CWS4RWBV?marketplaceId=A1PA6795UKMFR9&musicTerritory=DE&ref=dm_sh_RoHkhmu4xjztd3igINdcA2XcY

UCL movement disorder https://www.ucl.ac.uk/ion/research/research-centres/movement-disorders-centre/research

Parkinsons UK Research https://www.parkinsons.org.uk/research/get-involved-research

Del Amitri Parkinson’s documentary https://www.bbc.co.uk/programmes/m001x49y

Kuhan’ Blog they made a song from my tremor https://medium.com/@kuhan4/they-made-a-song-from-my-tremor-fefe7011d863

In this episode, we explore grooming and self-care.

There’s an old saying..

No matter how you feel

Get up

Dress up

Show up

Never give up

Shafaq @Dr_SF_Hussain⁠ a dentist with Parkinson’s shares her tips on mouth and tooth care

Anne Marie Booth @annieconmonkey talks ditching killer heels, Dr Martyn’s, hair and nail care.

Joe Gregory @JoeGregory100 tells us about slip on brogues and picking up a fashion bargain.

Plus doing amazing this week…

Richard Dunning, The shakey photographer @Richardpud1977

The cardigan wearing guitar playing Andrew Wright from Nottingham… @apwright

@Peacefultaino  56 year old Puerto Rican man with Parkinson’s pulling off some killer dance moves..

Stylish reading glasses at reasonable prices …

https://www.izipizi.com/ww_en

Comfortable, stylish gym, leisure clothing (pricey, but lovely)

https://vuoriclothing.co.uk

Parkinson's UK Mouth and Dental issues

This week the boys talk to Parkinson’s activist and fellow Podcaster Larry Gifford. His podcast ‘When Iife gives you Parkinson’s’ is an open and honest insight into the condition - no subject is out of bounds. Larry is also the founder of PD Avengers, a global alliance of people effected by the condition. In a wide ranging discussion we also talk about our D-Day (diagnosis) experiences, Larry's DBS journey and the impact Parkinson's has on relationships.

People with Parkinson’s doing amazing things this week includes @Markxhogben - a man living off grid in the Canadian wilderness.

In this episode the boys discuss how tech can make life a little easier for people with Parkinson’s.

From voice assistants, to messaging tips and how Siri can help you listen to your favourite podcast.

We also discuss Parkinson’s ON, a new app which aims to track symptoms, help with medication timing and generally improve your Parky life..

Plus more people with Parkinson’s doing amazing things. The man who’s rediscovered his love for playing Led Zep in the spare bedroom and a woman who’s fixed her 10 year old dishwasher…

Thanks to

Charlie Appleyard @CA_Annapurna

Helga MacFarlane @HMellMac

Kate

The Parkinson Magazine (Kuhan's article)

GMB Interview with Dave Clark

Download the Parkinson's ON app for free on your iPhone or Android

If you're enjoying the podcast please rate, review and subscribe

In this episode we speak to Professor Rimona Weil from University College London. Rimona is one of the world’s leading experts in Parkinson’s dementia.

It’s not as depressing as you might think!

She talks about ground breaking research which has discovered a link between vision and dementia, tells us who’s most at risk and whether it’s possible to prevent it! Plus how using pictures of cats and dogs can help to understand how cognition is affected in Parkinson’s.

We also talk about people’s reluctance to talk about Parkinson’s dementia…

If you want to get involved with the professor’s latest research project, which will involve at least 5 visits to London, brain scans and blood tests, you can email her: [email protected]

https://www.parkinsons.org.uk/information-and-support/thinking-and-memory-changes

https://www.parkinsons.org.uk/research/research-blog/ask-expert/its-time-talk-about-parkinsons-dementia

Parkinsons .. Top 10 worst symptoms

In this episode @DaveClarkTV and @morethanatremor (Kuhan) discuss the most troublesome Parkinson’s symptoms. Parkinson's Europe surveyed nearly a thousand Parkie’s with fascinating results.

So what’s the number one worst symptom ? Shaking? Speech problems? Low mood?

Have a listen and find out what tops the chart….

A huge THANKYOU to @kimrobsonuk for the chart. voice over and contributors Michèle and Katy..

In this special bonus edition Kuhan and Dave join 300 people Walking For Parkinson’s at London's Battersea Park.

Parkinson’s UK host a series of fundraising walks around the UK.

Everyone walking has their own Parkie story to tell, the boys find out about a few of them…

Walk for Parkinson's

https://www.facebook.com/2parkiesinapod

https://www.instagram.com/2parkiesinpod

In this episode Dave and Kuhan talk to NHS doctor, artist and Parkinson’s campaigner Dr Jonny Acheson. Jonny was diagnosed with Parkinson's in 2016 when he was just 41.

Hear about how Bollywood dancing led to his diagnosis and what its like to work in an emergency dept with the condition.

Jonny also talks about the Jekyll & Hyde feeling when his medication is wearing off, and his campaign to let people keep their own medication during a stay in hospital.

⁠

⁠⁠@jonny_acheson

@ParkinsonsEN (Parkinson's Excellence Network)

https://jonnyachesonart.com/

@DavidAPlummer

https://shakinghandsfilm.com/film

@PhilJerky

@FreddieRoach