When your child is diagnosed with celiac disease, everything changes ā and suddenly, youāre responsible for keeping them safe in a world full of gluten, questions, and uncertainty.
In this episode of Celiac Diaries, I sit down with Staci Leibson, a mom to a child with celiac disease and celiac life coach & mentor from The Celiac Shift, to share the parent perspective of raising a child with celiac disease ā a conversation weāve never had on the podcast before.
We talk about Staciās son Judeās diagnosis story, how she navigated the emotional shock and day-to-day logistics as a parent, and what sheās learned along the way about advocacy, mindset, and resilience. We also discuss why the way you talk to yourself ā and to your child ā about celiac disease truly matters, and how that language can shape confidence, independence, and self-worth.
This episode also breaks down how celiac disease is recognized as a disability under the Americans with Disabilities Act, how parents can use that as a resource for 504 plans at school, and how to advocate for your child in classrooms, social settings, and beyond. We also explore the decision to have a mixed household and what that can look like in real life.
Plus, youāll hear directly from Jude himself ā and what Staci wishes she knew at the beginning of their celiac journey that she knows now.
Whether youāre a parent of a newly diagnosed child, navigating school accommodations, or simply looking for reassurance that youāre doing the best you can ā this episode is for you.
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Connect with me:
Podcast IG & TikTok: @celiacdiariespod
Lucia's Instagram: @lucia.cordaroo
Staci's Instagram: @theceliacshift
Community4Celiac Instagram: @community4celiac
Musicmusic provided by epidemic sound.
DisclaimerIām not a medical professional. Everything I share is based on my personal experiences living with celiac disease. Please consult your doctor for medical advice specific to your health.