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Dr. Alexandra Freeman is an infectious diseases physician at the National Institutes of Health, and as she explains, there are still a lot of unanswered questions about COVID-19. Dr. Freeman first spoke on Episode #24, and I wanted to have her back to talk about what the pandemic has been like for her and her patients, who are people with primary immunodeficiencies (like me). On today's episode, we talk about the "new normal," antibody testing, and possibilities for vaccine distribution.
Learn more about Dr. Freeman and check out the show notes here. Check out her original episode here.
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Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they'll work with you to find a counselor you love. It's not self help, it's better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible.
Sarah Ramey has a term for people like her. She calls herself a WOMI, or a "woman with a mysterious illness." On today's episode, Sarah tells me about the events that set her life as a WOMI in motion, and what it was like to be told over and over that her problems were psychosomatic. We also discuss her recently published book, The Lady's Handbook for Her Mysterious Illness, and how she hopes it will change the experience for other patients with mysterious illnesses as they seek answers.
Learn more about Sarah and check out the show notes here.
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Alisa Vitti wrote the book on women's hormonal health--literally. WomanCode, her first book, was published in 2013, and it provides the education many women never knew they needed. A women's hormone and functional nutrition expert, Alisa is the founder of FLOLiving.com. On today's episode, we talk about her new book, how she developed the basis for the FLO Protocol through her experience with PCOS, and why she doesn't buy into the narrative that women should accept pain and suffer in silence.
Learn more about Alisa and check out the show notes here.
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We want to learn more about you! Tell us about you and what got you listening to Made Visible here.
John Boyle was diagnosed with X-linked agammaglobulinemia (XLA) in 1978, when he was just six months old. On today's episode, John and I talk about the routine management of his condition that allows him to live with minimal symptoms, and how taking care of his health was instilled in him at an early age. We also talk about his work with the Immune Deficiency Foundation, and why, after years of being attuned to his physical health, he realized it was time to give some attention to his mental health, too.
Learn more about John and check out the show notes here.
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We want to learn more about you! Tell us about you and what got you listening to Made Visible here.
As a clinical psychologist at the National Institute of Mental Health, Dr. Krystal Lewis is interested in how to make therapy, specifically cognitive behavioral therapy (CBT), more effective for children and adolescents.On today's episode, Krystal and I talk about what led to her interest in psychology, and how CBT can treat anxiety and increase resilience. Then, we shift to the COVID-19 pandemic: how it's affecting people on an emotional level and how principles from CBT can help us during this time.
Learn more about Krystal and check out the show notes here.
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We want to learn more about you! Tell us about you and what got you listening to Made Visible here.
Right now, ban.do founder and CCO Jen Gotch was supposed to be on tour for her first book, "The Upside of Being Down." But because of the coronavirus pandemic, the tour was cancelled. While she did feel sadness about that, as Jen says, her knee-jerk reaction when most things happen is, "this is going to be okay." On today's episode, Jen and I talk about the meaning of that phrase and the power of optimism, why she doesn't feel the stigma of mental illness, and how she's choosing to get the news these days.
Learn more about Jen and check out the show notes here.
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We want to learn more about you! Tell us about you and what got you listening to Made Visible here.
Like others with compromised immune systems, Jodi Taub's life is at risk due to COVID-19. Jodi was diagnosed with primary immunodeficiency around 14 years ago, and she manages about 22 different health conditions as a result. On today's episode, Jodi and I talk about recognizing that she felt unsafe in NYC, and what her new normal looks like. We also talk about how, as a psychotherapist, she's helping clients with chronic illness navigate the emotional shifts and trauma that this pandemic has created.
Learn more about Jodi and check out the show notes here.
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We want to learn more about you! Tell us about you and what got you listening to Made Visible here.
The coronavirus pandemic has changed life as we know it. This crisis is a scary time for all of us, and it presents unique challenges for the invisible illness community. For this episode of Made Visible, we reached out to past podcast guests to hear how coronavirus is impacting their lives. As we face an era of physical distancing and isolation, we believe it's more important than ever to connect with our community and hear their stories. We want to hear yours, too: https://www.speakpipe.com/MadeVisible.
The coronavirus pandemic has changed life as we know it. This crisis is a scary time for all of us, and it presents unique challenges for the invisible illness community. For this episode of Made Visible, we reached out to past podcast guests to hear how coronavirus is impacting their lives. As we face an era of physical distancing and isolation, we believe it's more important than ever to connect with our community and hear their stories. We want to hear yours, too: https://www.speakpipe.com/MadeVisible.
Follow Made Visible on Instagram.
We want to learn more about you! Tell us about you and what got you listening to Made Visible here.
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