DOI: 10.13056/acamh.13672

In this Papers Podcast, Dr. Alex Lloyd and Romana Saleh discuss their co-authored JCPP Advances Methodological Review ‘No decision about me, without me: Collaborating with young people in mental health research’. There is an overview of the paper, methodology, key findings, and implications for practice.

1. Insight into what is meant by Patient Public Involvement (PPI), co-production and co-design and the difference between these terms.

2. Why it is important to include young people with lived experiences in mental health research and how to convince researchers that people with lived experiences have a meaningful contribution to make to the research process.

3. What counts as lived experience and whether it is necessary to have a formal diagnosis to be regarded as having lived experience.

4. Insight into the ‘ladder of participation’ and other frameworks for participation.

5. How researchers can ensure that their engagement with people with lived experience is meaningful and not tokenistic and recommendations for researchers who want to engage with young people with lived experiences in their research.