November 29, 2023

Webinar Highlights: Ask a Neurologist with Dr Aaron Boster | S5E36

1 hour

Welcome to Living Well with MS. In this episode, we are sharing the highlights from one of our ‘Ask Aaron’ webinars, where neurologist, Dr Aaron Boster, answers questions about MS from the community. In this episode, Dr Boster covers a range of topics, including heat intolerance, when to start a DMT and his tips for self-managing MS.

You can watch the original webinar here. Keep reading for the key episode takeaways.

Topics and Timestamps:

02:13 Considerations for changing to a less stressful job and stronger DMTs.

05:09 Talking to clinicians about stress.

06:25 Hyperbaric oxygen therapy.

08:11 Stem cell transplants for PPMS.

10:35 Tysabri during pregnancy and breastfeeding.

12:23 MS and Stroke.

13:52 MRI showing brain cysts.

16:57 Betaferon and slow progression.

19:45 Changing from Tysabri to Ocrevus.

21:41 Vertigo.

23:05 Ampyra for walking, spasticity, and nerve pain.

25:50 Types of inflammation.

28:05 Anesthetic or epidural and MS.

30:15 B-cell depletion therapy and allergies.

31:17 Tips for self-managing MS.

37:42 Heat intolerance.

40:30 When to start on a DMT.

41:22 Ocrevus and low lymphocyte levels.

43:40 Diet and MS.

48:50 Nausea as an MS symptom.

51:30 CBD for MS.

52:45 Bursitis and MS.

53:36 Choosing a DMT and considering side effects.

55:16 Invisible illness in an ableist world.

Selected Key Takeaways:

Exercise as part of your daily lifestyle

34:42 “Exercising as part of a lifestyle means that if you do it, you're not rewarded. There's no reward for doing something as part of your lifestyle and if you don't do it, there's no punishment - you're not sent to the naughty corner. So, for example, I have a lifestyle of brushing my teeth. I don't tweet about it. I don't make YouTube videos about it. I don't even talk about it when I get to work. It's just something I do every morning and if I happen to forget to brush my teeth before I head off to the office, I'll run upstairs and do it. This is part of my lifestyle. So, I need people impacted by MS to exercise as part of their lifestyle.”

Plan your day to minimise symptoms like heat intolerance

39:43 “We can conserve energy during those times when it's really hot out. Whereas I would normally encourage a patient to park at the back of the parking lot to get their steps in. If it's the middle of the day, [walking that far is] going to sap all your energy so that when you get to the grocery store you can't shop, that doesn't really work very well, does it? And so that's an example where we would have someone drop us off at the threshold of the grocery store so that you can be successful in your shopping.”

Be brave in using mobility aids and seeking accommodations.

57:27 “I tell people who are embarrassed by their cane, ‘Don't you dare be embarrassed by your cane, a cane is a sign of intelligence.’ A person with a cane would like to not fall. So, when a little boy is walking with [his] mum, and says, ‘Mummy, why is she using a cane?’ That's an opportunity for the mother to say, ‘Well, she doesn't want to fall, she has a problem with her leg and the cane helps her.’ It normalises it. So, one of the things that we need to do is to be brave. I'll remind you of the definition of bravery, ‘doing something despite being scared’. The second thing is, I want you to be very selfish. You need to be selfish; you live your life once. You're not living your life so some stranger, you don't know, thinks nice polite things about you.”

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