In this powerful episode, JenVon opens up about the raw realities of living with epilepsy, from the cognitive challenges and isolation to the struggles with depression, anxiety, and dating. She bravely shares her escape from an abusive relationship, highlighting the critical importance of self-care and a supportive network.

As the founder of Epitome of Epilepsy, JenVon discusses themission of her nonprofit and the power of creating a truly inclusive work environment. Tune in for an unfiltered look at resilience, hope, and the fight for a better life with epilepsy.

Click here to register for the Jewels of Epilepsy Gala on 11/9/24!

https://www.epitomeofepilepsy.org/event-details/jewels-of-epilepsy-gala-1

Available on Spotify, Apple, YouTube, Amazon Music, and Audible!

Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

Ever felt like an outsider, even within your own community? You’re not alone! After Mark Slater hid his epilepsy for years, becoming an advocate didn't erase that feeling. But then came a pivotal moment that changed everything—Mark realized he succeeds because of his epilepsy, not despite it. Now we’re teaming up to create a space where people with epilepsy can truly connect.

Tune in for the exclusive on the Otherside Lounge—a sanctuary for Outsiders like us!

Thank you to our Community Partner Epilepsy Foundation of America and sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

Ever heard of a rescue med but not sure wtf it really means? Join Dr. Becker, a top epileptologist at Ohio State’s Comprehensive Epilepsy Center, as she explains rescue meds, how to use them, and how to talk to your doctor about them. And check out how Dr. Becker and her team are revolutionizing epilepsy treatment through cutting-edge research and compassionate care.Take this survey about rescue meds, enter your email, and you'll be entered to win epilepsy merch!

https://www.surveymonkey.com/r/WTEFThank you to our Community Partner Epilepsy Foundation of America and sponsors Neurelis and SK life science for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

Growing up, Anna faced relentless bullying and doubt from both peers and teachers because of her seizures. But instead of letting the stigma define her, she transformed her pain into power. Now a Community Outreach Specialist for her local Epilepsy Foundation of Wisconsin, Anna is a source of inspiration 🌟 and support 🤝, ensuring that no one feels alone on their epilepsy journey.

Tune in to hear how Anna flipped the script, owned her epilepsy, and became a beacon of hope (and hilarity). 💪

Thank you to our Community Partner Epilepsy Foundation of America and Sponsors SK life science and Neurelis for making conversations like this possible.

Hosted on Acast. See acast.com/privacy for more information.

Jessica Chappell started as a clerk for a local store and is now a business analyst for that same corporation. Despite facing discrimination for her epilepsy, she used it as fuel to climb higher. Dreams of being a cop were sidelined, and she now trains law enforcement on seizure safety. Tune in and hear how to turn haters into motivation.

Available on: YouTube, Spotify, Apple, Amazon Music, & Audible (links in @whattheefpodcast bio)

Thank you SK Life Science and Neurelis for being our stepping stones!

Check out @strobealert for strobe light reviews of movies and TV!

Hosted on Acast. See acast.com/privacy for more information.

Hosted on Acast. See acast.com/privacy for more information.

Kate Kostolansky, founder of Char Bear Keeps Dancing, and Dr. Christina Briscoe, pediatric epilepsy fellow, share insights on infantile spasms and epilepsy, emphasizing the importance of advocacy and education. Their conversation highlights the need for more support and resources for affected families. Join the discussion on hope and self-care!

Get a bear and book! Or donate them to a children's hospital!

https://www.charbearkeepsdancing.com/

Resources Kate and Chris mentioned for infantile spasms:

Epilepsy Foundation of America

https://www.epilepsy.com/

Infantile Spasms Action Networkhttps://infantilespasms.org/

Pediatric Epilepsy Research Consortium (PERC)https://pediatricerc.com/

Thank you Neurelis and SK life science for the bear hugs!

What the EF podcast is also available on: YouTube, Spotify, Apple, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

Tune in for singer-songwriter Tiana Goss's inspiring journey, as she navigates a new epilepsy diagnosis while chasing her dreams! From dazzling The Voice to lighting up LA stages, her passion and talent always shine bright. As she prepares to grace the stage at the Cam for a Cause Gala this weekend, Tiana is a true testament to turning setbacks into comebacks!

Like, subscribe, and follow  @WhatTheEFPodcast !Thank you SK life science and Neurelis for rocking out with us!

Check out Tiana's music: www.tianagossmusic.com

What the EF is available on: YouTube, Spotify, Apple, Amazon Music, & Audible

Hosted on Acast. See acast.com/privacy for more information.

Meet Jeff Baltes, the epitome of resilience and humor! From relocating for accessible transportation to the horrendous hurdles of health insurance and employment, Jeff's story will have you laughing, crying, and cheering him on! Tune in for a rollercoaster of emotions!Available on: Spotify, Apple, Amazon Music, Audible, and more!Thank you Neurelis and SK life science for battling through this hellscape with us!For the resources Jeff mentioned, check out Epilepsy Foundation of Greater Chicago: https://epilepsychicago.org/(Click on "How Can We Help?" tab)

Check out Jeff's informational (and funny) YouTube page:

https://www.youtube.com/@jeffonthebrain

Hosted on Acast. See acast.com/privacy for more information.

Hosted on Acast. See acast.com/privacy for more information.