Kate Kostolansky, founder of Char Bear Keeps Dancing, and Dr. Christina Briscoe, pediatric epilepsy fellow, share insights on infantile spasms and epilepsy, emphasizing the importance of advocacy and education. Their conversation highlights the need for more support and resources for affected families. Join the discussion on hope and self-care!

Get a bear and book! Or donate them to a children's hospital!

https://www.charbearkeepsdancing.com/

Resources Kate and Chris mentioned for infantile spasms:

Epilepsy Foundation of America

https://www.epilepsy.com/

Infantile Spasms Action Network

Pediatric Epilepsy Research Consortium (PERC)

Thank you Neurelis and SK life science for the bear hugs!

Tune in for singer-songwriter Tiana Goss's inspiring journey, as she navigates a new epilepsy diagnosis while chasing her dreams! From dazzling The Voice to lighting up LA stages, her passion and talent always shine bright. As she prepares to grace the stage at the Cam for a Cause Gala this weekend, Tiana is a true testament to turning setbacks into comebacks!

Like, subscribe, and follow  @WhatTheEFPodcast !

Check out Tiana's music: www.tianagossmusic.com

Meet Jeff Baltes, the epitome of resilience and humor! From relocating for accessible transportation to the horrendous hurdles of health insurance and employment, Jeff's story will have you laughing, crying, and cheering him on! Tune in for a rollercoaster of emotions!

Check out Jeff's informational (and funny) YouTube page:

https://www.youtube.com/@jeffonthebrain

Meet Meg Busing, nurse & epilepsy advocate, as she fearlessly shares her journey of parenting with epilepsy. From navigating pregnancy to juggling medication adjustments, she sheds light on the highs & lows of motherhood. Join her empowering community at Midwest You Can, where support & advocacy thrive! 💖

NEW! Epi-Gem Episodes featuring gems in the Epilepsy Community! Starting with the *must-have* seizure training in schools! Meet Collin, our seizure educator extraordinaire, sharing how it transformed his school days. With Sarah, our inclusive education advocate, we dish out practical tips to bring seizure training to YOUR school. Tune in for the scoop on why it's crucial and how to make it happen!

Empowering People’s Independence, Epilepsy Services

Defying the odds and breaking barriers! CJ Harris opens up about his journey as a Division 1 linebacker living with epilepsy. Despite facing discrimination from the NCAA against epilepsy meds, he's rewriting the playbook and inspiring us all!

Creator of Living Well With Epilepsy, Jessica Smith, shares what it’s like when cancer meets a chronic illness. Jessica and Landis chat and laugh about their experiences managing epilepsy and tumors; coping mechanisms and community; and why society feels more comfortable showing up for the Big C but not always the Big E.

Reach out to Jess for epilepsy coaching here:

https://livingwellwithepilepsy.com/epilepsy-health-coach-programs

Submit your epilepsy story to Living Well With Epilepsy here!

https://livingwellwithepilepsy.com/

After having a seizure on-air, award-winning activist Charles Ellison was diagnosed with epilepsy and stepped down from his radio show to get a handle on his treatment with the support of his wife, Dian Ellison. This power couple shares with Landis Wiedner how they adjusted—and continue to adjust—with the ever-changing demands of epilepsy.

Available on: Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Help keep What the EF going by subscribing on your fave streaming platform!

Sign up for episode updates here:

https://www.whattheefpodcast.com/

Follow on Instagram: @whattheefpodcast

https://www.instagram.com/whattheefpodcast/

Mentioned in episode:

https://thebenote.substack.com/p/aboutbe

WURD radio episode:

https://wurdradio.com/2023/04/06/reality-check-on-health-a-farewell-from-charles-ellison/

CEO of the Epilepsy Foundation of America, Bee Martin Lee, spent most of her life feeling unsafe to disclose her epilepsy because of the stigma she faced in college, career, and family. Bee shares with LandisWiedner the tough conversation shehad with herself to be open about her epilepsy. Now she strives to empower others to do the same and demystify what it means to have epilepsy.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Help keep What the EF going by following and

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

Thank you SK Life Science and Neurelis for believing in What the EF and making conversations like this possible!

Frustrated in your search for mental health care? You’re not alone! Torie Robinson, host of Epilepsy Sparks podcast, and Landis Wiedner chat and laugh about their quests for good therapists and experiences with various types of therapies, like cognitive behavior therapy (CBT).

Armed with her impressively vast knowledge of the epilepsies, Torie explains why mental healthcare goes hand in hand with epilepsy treatment.

Available on: YouTube, Spotify, Apple, Google Podcasts, Amazon Music, & Audible

Help keep What the EF going by following and subscribing!

Instagram: @whattheefpodcast

YouTube: @WhatTheEFPodcast

Website: whattheefpodcast.com

Check out Epilepsy Sparks!

Big thanks to Neurelis and SK Life Science for supporting What the EF!