Registered Nurse and PhD in Health Policy Dr. Stacey Reason is our guest today in Episode 1240 of “The Livin’ La Vida Low-Carb Show.”

 

Dr. Stacey Reason was always interested in sports, but could never understand why her performance didn’t measure up despite doing more training than her friends.  In 2005, Stacey was hit by a car while out for a jog and was forced to take a few years off all exercise due to her injuries.  Upon starting exercise again, she went for a swim and suffered rhabdomyolysis and was hospitalized with a CK of over 200,000 U/L.  Interest from a nephrologist eventually led to a diagnosis of McArdle disease in 2008.  Feeling alone and misunderstood, Stacey started the McArdle Disease FaceBook group (2009).  Today this social networking site provides support and evidence-based information to over 1500 members worldwide.  This group has been instrumental in connecting people, communicating current best practice, and helping newly diagnosed patients learn effective day-to-day management strategies.

Listen in today as Stacey and Jimmy talk about how In 2014, Stacey learned about the low-carb ketogenic diet from a fellow patient, and how  Ketosis enabled her to fuel her muscles more effectively - thereby alleviating the classic symptom of activity/exercise intolerance. Stacey also shares her story of how In 2010, she joined others in the 'Walk over Wales’ - 32 days, 340km and numerous mountains.  This experience helped Stacey recognize the signs of cramping and various techniques to use.  To help other patients recognize they are not alone in their experience of living with a rare disease, Stacey wrote a book entitled ‘One Step at a Time’ about her journey across the Welsh hills.  This story traces the author’s route, thoughts and emotions on her life-altering journey of discovery and growth.

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LINKS MENTIONED IN EPISODE 1240

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– Dr. Stacey Reason on Twitter
– Ketosis in McArdles
– One Step at a Time - Walking with McArdle Disease
– Can a Low-Carbohydrate Diet Improve Exercise Tolerance in Mcardle Disease?