Dr Ilene Ruhoy is the Medical Director of the new Ehlers-Danlos Syndrome Center at Mt Sinai in South Nassau, New York. In this podcast, Dr Ruhoy shares the structure, goals and approach to EDS patient care. Dr Ruhoy lays out the challenges that EDS and hypermobile patients encounter in experiencing connective tissue disorders, getting a diagnosis and the work that is happening at the EDS Center to center complex and chronically ill patient care. It starts with a triad structure binding together clinical practice with the illustrious Dr Anne Maitland, surgery led by Dr Paulo Bolognese, as driving and driven by research. Then, Dr Ruhoy dives into the nature of the connective tissue and reviews one research study underway to evaluate these connective tissues for infectious source but also postulates other potential sources starting with genetic vulnerabilities as acted upon by pollution, trauma and other triggers. This might be a one-two punch that can result in complex and chronic disease. 

What is Ehlers-Danlos Syndrome? https://www.ehlers-danlos.com/what-is-eds/

EDS Center at Mt Sinai: https://www.southnassau.org/sn/chiari-eds?srcaud=Main