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Managing rogue family members is a delicate balancing act. But how do you navigate these conversations when it is compounded with end of life? Everyone wants what is best for the patient but it is important to honor that person's final wishes and what they want, not necessarily what "you" want. In today's episode we speak with Jennifer O'Brien and Valerie Armand who share their recommendations on how to navigate the rogue family member and opening up the lines of communication.
TOPICS DISCUSSED
Establishing that you are the one they are confiding in [04:32]
Dealing with the family member that isn't on board [06:09]
End of life documentation [06:53]
Language you can use [08:40]
Leverage the nurse [09:30}
RESOURCES MENTIONED
Medio: Doing Death Differently
QUOTES WE LOVE IN THIS EPISODE
"Document Document Document!"
"I know you see things differently but we need to do what [mom/dad] wants"
EPISODE TRANSCRIPT
View the transcription for this episode here.
OTHER EPISODES YOU MAY ENJOY
End of Life Planning
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What is included in Palliative Care?
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Today we speak with Valerie Armand and Jennifer O'brien about their experiences with loss and end of life.
Valery is an LPN and Certified End of Life Doula with over 20 years experience serving others at the end of life. Founder of Exiting Gracefully, LLC and a Dying Your Way consultant, her passion lies in removing the stigma that society has placed on facing our mortality. She provides consulting, education and mentoring as a way to empower others, helping them navigate their own unique journey.
Jennifer O’brien is not new to loss. At a young age she lost her only brother after three weeks in a coma and her mother to pancreatic cancer.
She had cared for uncles, grandparents and friends at end of life. Jennifer is the accomplished Author of the Hospice Doctor’s Widow. Her writing presents the raw and honest insights of a caregiver and is about being fully present during even the toughest moments, honoring grief, and going forward after devastating loss.
Several of us in the breast cancer community are on or have been on numerous chemotherapies. We use the term line of treatment. For example, we may be on one line of chemotherapy until it stops working and then we move onto the next. The hope is that we don’t run out of options and that there will always be a new therapy to try. But when is enough enough? When do we give ourselves the permission to say I don’t want to try another drug? How do we balance quality of life over quantity. These are some of the questions we address today. Welcome to the conversation.
Resources from today's episode
The Hospice Doctors Widow: A Journal
Dying Your Way
Exiting Gracefully LLC
Survivingbreastcancer.org/events
Ciitizen/SBCtrials: Ciitizen is free, helps you gain access and control to all your medical records and now, can also help you explore your custom Clinical Trial options!
Tell Cancer To Take A Hike this October!
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Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
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Messages are completely anonymous.
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Latest News:
Love the podcast? Send us a text!
Today we speak with Valerie Armand and Jennifer O'brien about their experiences with loss and end of life. Specifically, we look at the question of when people decide enough is enough and it is ok to say no to more treatments.
Valery is an LPN and Certified End of Life Doula with over 20 years experience serving others at the end of life. Founder of Exiting Gracefully, LLC and a Dying Your Way consultant, her passion lies in removing the stigma that society has placed on facing our mortality. She provides consulting, education and mentoring as a way to empower others, helping them navigate their own unique journey.
Jennifer O’brien is not new to loss. At a young age she lost her only brother after three weeks in a coma and her mother to pancreatic cancer.
She had cared for uncles, grandparents and friends at end of life. Jennifer is the accomplished Author of the Hospice Doctor’s Widow. Her writing presents the raw and honest insights of a caregiver and is about being fully present during even the toughest moments, honoring grief, and going forward after devastating loss.
Several of us in the breast cancer community are on or have been on numerous chemotherapies. We use the term line of treatment. For example, we may be on one line of chemotherapy until it stops working and then we move onto the next. The hope is that we don’t run out of options and that there will always be a new therapy to try. But when is enough enough? When do we give ourselves the permission to say I don’t want to try another drug? How do we balance quality of life over quantity. These are some of the questions we address today. Welcome to the conversation.
Resources from today's episode
The Hospice Doctors Widow: A Journal
Dying Your Way
Exiting Gracefully LLC
Survivingbreastcancer.org/events
Ciitizen/SBCtrials: Ciitizen is free, helps you gain access and control to all your medical records and now, can also help you explore your custom Clinical Trial options!
Tell Cancer To Take A Hike this October!
It's free to sign up! Click here to sign up, start your team, and Tell Cancer To Take A Hike!
Support the show
Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
You can also click the link in the show notes that says "Love this episode? Send us a text" to share feedback.
Messages are completely anonymous.
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Latest News:
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In this episode we speak with Laura Kleiman from Reboot Rx to understand the opportunity of repurposing non-cancer generic drugs to quickly expand treatment options for cancer patients.
For more information visit https://rebootrx.org/
And be sure to follow them on social media:
LinkedIn: Reboot Rx
Twitter: @Reboot_Rx
Facebook: @RebootRx.Org
Instagram: @reboot_rx
Tell Cancer To Take A Hike this October!
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Listener Feedback
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Medical Aid in Dying
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What end of life choices do you need to consider? It's always best to consider end of life care and preferences before the crisis happens. In today's episode we speak with Matt Whitaker from Compassionate Choices and Dee Dee Turpin from A Necessary Conversation as confront a topic that is seldom talked about, but is incredibly important!
Welcome to the conversation.
Resources Mentioned in the episode:
A Necessary Conversation
Compassion and Choices
Tell Cancer To Take A Hike this October!
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Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
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What is included in Palliative Care? Who needs it and when should you ask for it? These are some of the important questions we ask in today's episode as we speak with Dr. Medina, Breast Cancer Survivor, Marianne Sarcich, and Author, Jennifer O'Brien.
Resources Mentioned:
Ciitizen is free, helps you gain access and control to all your medical records and now, can also help you explore your custom Clinical Trial options!
Learn More at Ciitizen.com/SBCtrials
Eps. 89 - What is Palliative Care?
Eps. 84 - Estate Planning part I
Eps 85 - Estate Planning part II
The Hospice Dr.'s Widow
Purchase on Amazon
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Tell Cancer To Take A Hike this October!
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What is Palliative Care? It is a term that can also be referred to as Support Services. In this episode we speak with Dr. Medina, Breast Cancer Survivor, Marianne Sarcich, and Author, Jennifer O'Brien.
Resources Mentioned:
Ciitizen is free, helps you gain access and control to all your medical records and now, can also help you explore your custom Clinical Trial options!
Learn More at Ciitizen.com/SBCtrials
The Hospice Dr.'s Widow
Purchase on Amazon
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The Breast Cancer Book Club read "A Most Beautiful Thing" by Arshay Cooper. This episode is shares the surprise interview we got to have with Author and motivational speaker, Mr. Arshay Cooper. He not only speaks about the book we ready, but we got to ask him questions about what motivated him to write, create a documentary, and what he is planning next.
A Most Beautiful Thing is a powerful and uplifting memoir and should be part of everyone's required reading list.
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Episode is Live
Published: Dec. 05, 2020 @ 4PM Edit
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Tell Cancer To Take A Hike this October!
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Join us for this panel discussion on thrivership after breast cancer. We have a panel of five women with five unique stories.
Topics discussed include:
The role of exercise
Lymphedema and neuropathy and cording under your arm
Slowing down in order to regain strength
Faith and trust in a higher power
Recurrence
Refusing hormone blockers and radiation
Connect with our Panelists on Instagram:
Jill @jillpring95
Ria @thisgirlisthriving
Cecilia @ces5b
Jomi @mrs_jomi588
Heidi @happilyeveraftercancer
@Glowingupaftercancer #GUAC
Quoteables
"I new if I could create a partnership between my body and my mind, I would arrive at a place of healing"
“Cancer has helped me find a balance between fear and purpose.”
__________________
Say Hi on Social:
Tell Cancer To Take A Hike this October!
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Listener Feedback
Please share a review with us! If this episode resonated with you, we invite you to leave a review on Apple Podcasts or Spotify and share some stars!
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