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As a fellow traveler on the path of special needs motherhood, I found a kindred spirit in Effie Parks, a standout voice in the rare disease community who sat down with me for an honest, empowering conversation. Effie and I explore the sensitive topic of language and how it is used in our caregiving and advocacy. We challenge some common narratives we saw perpetuated through social media in 2023 and offer alternatives ways of thinking and relating to ourselves and each other. 

Effie also shares her exciting new initiative, Once Upon a Gene Therapy. Her mission is to empower fellow caregivers, through walking, to remember who they are and find strength through movement & community. 

Connect with Effie Parks:

Effie Parks doesn't mind being called "strong": Article

Once Upon A Gene Podcast: Spotify

Once Upon A Gene Podcast: Apple

Once Upon A Gene Therapy: Walking Club FB Group

Once Upon A Gene Instagram

Once Upon A Gene Website

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  Connect with Kara, host of The Special Needs Mom Podcast:
  Instagram: https://www.instagram.com/thespecialneedsmompodcast/
  Website: https://www.kararyska.com/