Larry & Rebecca Gifford dive deep in to deep brain stimulation (DBS). We learn about the innovative technology used for DBS from Dr. Alfonso Fasano, the chair of Neuromodulation and multi-disciplinary care at the University of Toronto and University Health Network.

Sonia Soriano-Espert from Valencia, Spain, through translator and friend Sabela Avion, shares her experience of having DBS surgery conducted by a robot. This interview first aired on ODNA PK radio in Spain. The hosts are PD Avengers and members of Con P de Parkinson, a growing group of women who speak Spanish and have PD.

In part-one of this two-part arc, Heather Kennedy and Becca Miller were preparing for DBS Surgery. In part two, both women share their surgery experience. The share how their children responded and how they feel about DBS, now that they have had it. 

Thank you for listening. 

Send us songs you would want to listen to while undergoing DBS.  

EMAIL US: [email protected] 

Or add the songs you’d want to listen to during DBS to the WLGYP DBS PLAYLIST on Spotify

Have questions for Larry & Rebecca? Do you want to share your DBS story or have an idea for an upcoming podcast? Want to share how the podcast has helped you? Click the link on your laptop or desktop and leave us a voice message. https://www.speakpipe.com/WhenLifeGivesYouParkinsons

Follow us, Larry & Rebecca Gifford 

Twitter: @ParkinsonsPod

Facebook: Facebook.com/ParkinsonsPod

Instagram: @parkinsonspod

Thank you to the following people and organizations featured in this episode:

Alfonso Fasano, MD, PhD, Chair in Neuromodulation and Multi-Disciplinary Care, Neurologist, Co-Director of the Surgical Program, Movement Disorders Centre, Toronto Western Hospital.  

Heather Kennedy, PwP, WPC2023 Ambassador a.k.a. Kathleen Kiddo

Becca Miller, PhD, PwP, Michael J. Fox Foundation Patient Council, Assistant Professor of Psychiatry at Yale University. 

Michael S. Okun, MD University of Florida

Kelly D. Foote, MD University of Florida

Ted X Talk about DBS from Michael Okun, MD and Kelly Foote, MD (2012)

Sonia Soriano-Espert, PwP, Valencia, Spain. Con P de Parkinson

Sabela Avion, PwP, NYC & Spain. Founder of Parkinsonic. Con P de Parkinson

Special music acknowledgements. Thank you to Justin Timberlake. We played 12 seconds of “Cant Stop The Feeling!” Credit goes to the song writers Timberlake, Max Martin, and Johan Schuster. Timberlake and Martin are also credited as producers along with Shellback.  

Thank you to Taylor Swift. We played :17 of “Shake it Off.” The song was written by Swift, Max Martin and Shellback. It was released on Big Machine records in 2014.

A special thanks to Dorothy and Scarecrow. “If I Only Had a Brain,” is heard for 31 seconds. The song is featured in the 1938 film The Wizard of Oz. It is written by Harold Arlen and Yip Harburg. Ray Bolger and Judy Garland sang it when their characters first met along the yellow brick road. The film is still under copyright by Warner Pictures.

Our Promotional Partners include:  

Diagnosed with Parkinson’s? You are not alone. Contact presenting partner Parkinson Canada http://www.parkinson.ca/, call the toll free hotline 1-800-565-3000 or on Twitter you can message @ParkinsonCanada.

Here is a link to Parkinson Canada’s “Together: No Matter What” campaign

Thanks also to our content and promotional partners

The Michael J. Fox Foundation Parkinson’s Podcast hosted by Larry Gifford

Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease and funds for the Cure Parkinson’s Trust.  

PD Avengers –  We are building a global alliance to end Parkinson’s. Join us.

World Parkinson Congress 2023 –Make plans to join us for #WPC2023 in Barcelona, Spain.

Credits

Dila Velazquez – Story Producer

Greg Schott – Sound Design

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