Dementia Discussions

Nancy Tahara joins Barbara to talk about caring for her friend of 40 years. Now 81, he suffers from Lewy body dementia, Parkinson's disease, and REM sleep behavior disorder. He asked her to come take care of him a year-and-a-half ago, and she’s been his full-time caregiver ever since. Sadly, her friend’s condition is deteriorating quickly, both physically and cognitively. They just finished home health (physical therapy) but it didn’t help, so now they’ll start hospice. Nancy talks about how much she’s learned in her caregiving support groups – valuable advice, insight and support. She and Barbara also discuss how important it is for caregivers to get a break, and some of the options for finding help and getting through the tough times.

Do you have a caregiving story to share? Barbara would love to hear from you! Please call her at 310-362-8232 or email her through DementiaDiscussions.net.

Today Barbara is joined by Evelyn Garcia, who cares for her mother who has younger-onset dementia. Evelyn was living in Virginia when she got a call from her mother’s doctor, saying she couldn’t live alone any longer. When Evelyn flew out to Los Angeles, she realized how bad things were: her mother was paranoid and forgetful, cried all the time, and wasn’t paying bills or taking care of herself. In June of 2020, Evelyn moved to Los Angeles to take care of her. Evelyn and Barbara talk about how hard it is to become a caregiver without any background or training. They discuss different methods and tricks to keep her mother moving forward with her day – “otherwise she just cries,”  Evelyn says. Evelyn shares how difficult it’s been for her, doing all the caregiving by herself with no one in her family offering to help. She also shares how painful it is to watch her mother’s memory decline. Each time she notices a new problem – most recently it was her mother not recognizing her – she cries too, just not in front of her mother so she won’t know there’s something wrong.

If you would like to share your caregiving story, Barbara would love to hear from you! Please call her at 310-362-8232 or email her through DementiaDiscussions.net.

Dani Klein Modisett is the founder and CEO of Laughter On Call which pairs comedians with Alzheimer’s patients. She’ll reveal the story behind the formation of this brilliant idea and explain why laughter really is the best medicine. 

Writer-comedian, Dani Modisett, has been performing comedy for over 20 years. She taught the art of stand-up comedy at UCLA for over a decade and has produced numerous live comedy shows all over the U.S.

Find more about Dani and Laughter On Call 

The Washington Post

NY Times & LOC

Number One in Workplace Wellness

Laughter and Mental Wellness Video

Want to share your story? Barbara would love to have you as her guest on Dementia Discussions. Please get in touch! (310-362-8232 / [email protected])

Katie is a new caregiver, taking care of her mother who is in the early stages of “advanced cognitive decline.“ She’s also caregiving from a distance. She’ll discuss trying to navigate through this new experience and how she’s found support for both her mom and herself.

Want to share your story? Barbara would love to have you as her guest on Dementia Discussions. Please get in touch! (310-362-8232 / [email protected])

Today Barbara is joined by her friend and colleague Natalie Stanger. Twenty years ago, Natalie started a company to “help seniors do the things they could no longer do or didn’t want to do,” and it’s kept her busy ever since. Natalie talks about how she got into the world of geriatrics and found her niche as a Daily Money Manager (a “DMM”). They discuss all the things she does for her clients, from bill paying and mail management to simply keeping them company: “There’s no formula, it’s whatever people need.” One of her jobs is to help seniors with technology, particularly because seniors are so susceptible to fraud: “Technology is running so fast, people are overwhelmed and afraid of identity theft and fraud.” Natalie says she wants her clients to remain as independent as possible because that adds to their quality of life, but they need to be watched. “They don’t always make good decisions, and there are lots of people who want to take advantage of that.”

If listeners are interested in learning more about Daily Money Managers, Natalie suggests the website for the American Association of Daily Money Managers. On the site, you can enter a zip code to find a DMM near you.

Want to share your story? Barbara would love to have you as her guest on Dementia Discussions. Please get in touch! (310-362-8232 / [email protected])

Today Barbara is joined by Heidi Artman, who is caring for her husband, Lee. Heidi first noticed Lee’s memory problems in 2015, but it wasn’t until recently that he received a diagnosis. Because Lee has struggled with bipolar disorder since his early 30s, what was happening in his brain was difficult to diagnose. Heidi and Barbara talk about the complexity of brain disease and the research into whether components of bipolar are linked to a propensity to dementia. Heidi talks about Lee’s condition: Lewy body dementia is the main component now, and it’s progressing quickly. Along with body issues, Lee is also experiencing delusional states and hallucinations. Keeping him safe has been a challenge – she says the trick is to keep him asleep at night because if he wakes up, he thinks his dream is real. At first she hid the car keys so he wouldn’t drive the car in a delusional state, but he managed to find them. Now she keeps them in a safe. They talk about how difficult these situations are for the caregiver; Lee has absolutely no memory of his hallucinations so Heidi has to remember these traumatic events alone.

Would you like to share your caregiver story on Dementia Discussions? Call or email Barbara directly, she’d love to hear from you! (310-362-8232 / [email protected])

Today Barbara welcomes Denise to the podcast. An only child, Denise says she never saw herself as a caregiver, but when her mother was diagnosed with dementia and Alzheimer’s, everything changed. She and Barbara discuss the complex emotions and transitions involved once you receive the diagnosis – not only for the one who gets the diagnosis but all those who care for them. Denise tells Barbara that hearing the diagnosis was confirmation that her mother was no longer self-aware enough to know what she needed. From then on, it was up to Denise to make all the decisions.

Would you like to share your caregiver story on Dementia Discussions? Call or email Barbara directly, she’d love to hear from you! (310-362-8232 / [email protected])

Today Barbara welcomes her colleague and friend Doria to the podcast. They discuss Doria’s experience caring for her mother, Jeanette, from when she had a stroke during the Northridge earthquake (1994) until she died at 82. Doria talks about how difficult it was to find caregivers due to their lack of resources, and how her mother was often mistreated and harmed by women they’d hired. Acknowledging her mother’s pain is what motivated Doria – at the age of 50 – to go back to school to become a geriatric social worker. She finds the work rewarding but also heart-breaking due to the lack of support available to lower income populations. She and Barbara discuss the ethnic and cultural disparities and how money is consistently the biggest barrier to adequate resources and support. 

Today Ed Mount joins Barbara to talk about his ongoing journey as a caregiver. Ed’s father died from Alzheimer’s in 2012 and his mother Judy is now suffering from the disease. He and Barbara discuss the different phases of Alzheimer’s and the various caregivers Ed has encountered throughout the years. Through his experiences, Ed shares what he’s learned along the way and what he wishes he’d done differently. 

When Adam Steinman’s mother-in-law was diagnosed with Alzheimer’s four years ago, his kids were two and six. Adam joins Barbara to share his experience caring for younger children and aging parents, a phenomenon known as the Sandwich Generation. Adam remembers his mother-in-law as incredibly vibrant and fiercely independent, a progressive thinker who would “always tell you what she thought.” For Adam and his wife, this made knowing something was awry that much more obvious. He and Barbara talk about the stress of “double caregiving,” feeling like you’re always choosing one over the other, and how he tries to normalize things for his children as much as he can.