Endo Battery

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Katie and Allie are back for PRIDE month and are walking us through challenges that those in the LGBTQ+ community face. They share challenges of not only getting unbiased healthcare but diagnosis and treatment for complicated diseases like Endometriosis. They don't just have a patient perspective but a nurses perspective. They touch on
- The lack of information given to those in the medical community about Endometriosis
- Getting treatment when you have an untraditional relationship and the challenges those people face when it comes to insurance.
- Biased care and ways that care can be better for those that are part of the LGBTQ+ community.
- Medical burnout contributing to dismissal of not only those in pain due to Endo, but to those who don't follow social "norms".  
- Ways patients can be their best advocates
- Ways to negate bias care
- A charge for nurses to be a safe place for not only endo patients but for people that are part of the LGBTQ+ Community
Just as Endometriosis does not discriminate, nor should any healthcare provider. Those with this disease should be given the proper care regardless of age, sex, religion, gay or straight, and lifestyle. It's hard enough without facing additional trauma.  Learning ways to communicate like, using preferred pronouns, and still asking if child bearing is still a consideration even in a same sex relationship. 

We learned so much from Katie and Allie and their openness. They give great resources for both patient and practitioner to learn and gain support of those in the LBGTQ+ and Endometriosis community.   

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In this episode we take a deep dive with Dr. Larish into:
-Urinary incontinence
-defecation incontinence
-fecal function
- Being diagnosed with UTI's (urinary tract infection) with negative cultures and the negative side effects of being misdiagnosed.
-Suspicions as to what role SIBO plays in those misdiagnosed with UTIs
-Overactive bladder
-Effective ways to communicate to your doctor 
and steps to take in finding proper care and ways that you can help your body when you experience any of the listed symptoms.

Dr. Larish shares practical and thought provoking ideas, that equip us to seek expert care and does it all with compassion. He strives to make sure all patients are heard and given quality care, therefor increasing the quality of life.  You won't want to miss this episode!

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In this Episode we talk about different challenges of being a parent and dealing with debilitating pain. We recognize that we are fortunate to have children, but that doesn't mean that it's easy. We talk about secondary infertility and the guilt associated with leaning on others to help you because that pain is so bad. This is a very sensitive subject that many face on a multitude of levels, but they don't have to do it alone.  

What we've learned and continue to learn walking through:
-Guilt
-Fear
-Pain
-Appreciation
-Life 
- Making life altering decision
-Struggles with fertility
-Struggles with pregnancy
- Living life to the fullest
This wasn't the vision of parenthood we had, but it's one that we are learning to navigate.  We know we're not alone with this, so don't feel like you are. Join us and lets  walk this life together. 

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In this episode we talk about ways that we found to be helpful in preparing for Excision surgery for Endometriosis and preparing for recovery. We discuss:
-Ways to prepare your body for surgery
-Prepare your mindset 
-Set your expectations appropriately
- Plan for the hospital and for leaving the hospital and an item to ask for before surgery to take home to better support you
- How to prepare you and/or your family for recovery
- Taking steps to support a successful recovery
- Way to support your digestion post op to help your body heal
- Finding a good PFPT to help pre and post op
- Other modalitie that can help healing
- Lots of rest
- Asking for help when needed, not always easy but it'll help you heal in the long run
- Allow yourself grace 

These tips and more, are the ways that we found to support in our recovery and healing.

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In this episode, we dive into the discussion topics of The Endometriosis Summit days 2 and 3. We talk about the insightful and progressive discussions featuring experts and advocates who share their knowledge and experiences. From,
- Advancements in Pain science
- Sex and intimacy with Endo
- Political advocacy
- Surgical considerations
and  so much more. 

Join us as we delve deep into the impact the Summit had on those in the endometriosis community. We hope this brings you as much empowerment as it did us, in driving endometriosis forward. 

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We get the honor of sitting down with Dr. Beth Dupree MD, FACS, ABOIM.  Dr. Beth DuPree has been an innovative thought leader in breast cancer care nationally and internationally. Her passion to empower healing in her patients on their cancer journey has lead her to a new phase of her career. She has shifted her focus from the operating room to becoming medical advisor to innovative companies focused on various aspects of survivorship.She  is currently working with three transformative companies to bring about change in mental wellness and non-narcotic pain management  InnerStill Health, Gateway Sciences & Clinics and Signal Relief.  She received her Certificate in Psychedelic-Assisted Therapies Research from the California Institute for Integral Studies in March of 2022. She also completed her MAPS ( Multidisciplinary Association for Psychedelic Studies) certification as well.  She is currently enrolled in Synthesis Institute in Amsterdam for additional psychedelic therapy training.

Beth joined the endometriosis bus when she learned just how much of an "orphan disease"  endo really is. Beth walks us through how she got into nerve science and her dislike of the amount of drugs that were being used in phycology, which lead her to study   She talks about her research into breaking up pain cycles with:
- Vagus nerve stimulation, bringing the body back to homeostasis and not leaving it in fight or flight.
-Psilocybin Therapy, and the positive effects that it has on mental health as it pertains to pain.
- Jovi Patch that helps break the signal from your pain to your brain, giving pain relief.
(she also gives a discount code for a Jovi patch.)
- Continued research on the use of low dose ketamine and it benefits to alleviate chronic pain.

She continues to do research on ways that help endometriosis patients with pain management and pain relief, as well as  looking at the neurohumeral connection between the nervous system and hormones. She talks about how this has become such a passion, to help those who have endometriosis have a better quality of life without the use of opioids.

This is a must listen to episode. Beth is on the Endo bus, and changing the name of the pain...management.

Website
www.drbethdupree.com
Foundation
https://www.thehealingconsciousness.com
Book
https://www.thehealingconsciousness.com/the-healing-consciousness/

Shiv Yog -Data on Vagus stim through breath work
https://ishanshivanand.com/about-ishanshivanand/

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In this episode Dr. Jose Eugenio-Colon walks us through his Journey to becoming an expert excision specialist and the trauma that led to furthering his education.

Dr. Jose` touches on why he advocates for teaching and properly educating Doctors and Patients from the Latino community. We talk about the different challenges we face as an endometriosis community. He explains:
-Adenomyosis, and the different types
-Infertility as it relates to adenomyosis and early castration
- Different surgical standards and techniques in different parts of the world, with an emphasis on the Dominican Republic and Caribbean. 
- The empathy and empathy burnout with doctors
- Bowel Endo/ rectal , and taking the time and proper steps to make sure it's fully excised and his continued efforts to get proper diagnosis and treatment earlier, so patients have a better a better quality of life.

https://centerforendo.com/


****Trigger Warning****
Dr. Jose' shares with us anatomy and disease slides, as well as surgical videos, which can be seen on our Endo Battery YouTube page https://youtu.be/5vPQfmpl7bw . Some images and discussion topics could be triggering to some. Please be sure to reach out to a mental health provider if you find yourself in crisis, or call 1-800-372-Talk(8255), for the crisis hotline. 

All images and videos that are property of Dr. Jose` and/or the Center for Endometriosis Care have been used by permission. 

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In this episode we are joined by Chelsea Taylor to recap the first day of the Endometriosis Summit. We talk about what we learned that really resonated with with in the surgical panel. This like;
- Different approaches and surgical techniques between each doctor 
- Bowel resection technique 
- Endometriosis Vs. endometriomas and different approaches taken by different Doctors, and different cases.
- Bladder endometriosis
- Different takes on preventing adhesions and 2nd looks
- Informed consent with Dr. Jeff Arrington 
- Overall how impactful having both practitioners and patients in one room together.
We talked about so much and didn't even get to cover it all. It was such a great experience that Dr. Sallie Sarrel and Dr. Andrea Vidali have made such a significant impact in the Endometriosis community with putting this Summit on.

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In this episode Katie walks us through her story of;
- Years of painful periods 
- Normalizing debilitating pain
- struggling to find a diagnosis
- Being misdiagnosed
-Being Gaslit
- Multiple doctors
- Being told she's crazy
- Painful Sex
- Extremely painful flairs 
- Being an advocate for those in the LGBTQ+ community

All for her wife, Allie, to assure her that unrelenting painful periods are not normal. Katie and Allie take us through their journey trying to find healing. They took steps to:
- Do their research
- Find a mental health provider
- See an excision specialist
- Find a Pelvic Floor Physical Therapist and Abdominal Massage Therapist
- Now more advocating for those LGBTQ+ community suffering from Endometriosis.

All while navigating the healthcare system as nurses.

This is a very real and raw episode that is fun but also relatable.

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Megan walks us through different approaches to:
- Recognizing Endometriosis with common symptoms as well as those less obvious symptoms
- Learning from cases that are challenging
- How gut health effects our bodies balance
- Introducing Low-dose naltrexone  (LDN) as a way to help manage pain with Endometriosis pain
- Balancing hormones post surgical hysterectomy
- The need for progesterone and the need for estrogen
- What should our hormone levels should look like
- Options for testing your hormones
- Managing health management tools in both western and eastern medicine
- Knowing as a practitioner when to refer to a specialist
- Things that can help reduce inflammation and pain symptoms

All with a balanced approach using both functional and western medicine.

About Megan:
Megan Anderson, ANP, is a Nurse Practitioner, who received her nursing degree from the University of North Carolina at Chapel Hill in 2004. Megan worked as a staff nurse in both pediatric cardiology/surgery and gynecology/oncology for 3 years before starting graduate school at the University of Illinois at Chicago in 2006. She worked at a Federally Qualified Health Center for 3 years during graduate school before becoming a Board Certified Women’s Health Nurse Practitioner in 2009.

From 2017 until the start of COVID in 2020, Megan worked at a functional medicine clinic in town called Balanced Well-Being Healthcare.  There, she grew as a clinician and honed her skills with functional medicine diagnostic and treatment options. Helping people address underlying chronic issues and get back to feeling their best is what feeds her soul, and she feels grateful every day for the opportunity to help people identify ways to feel and live their best life.  She has since continued to work in a functional medicine practice, seeing patients all over the country in a virtual manner, with the California Center for Functional Medicine.  Women's health concerns, autoimmune conditions, and gut health are her favorite things to address with patients.
https://www.ccfmed.com/
https://www.ccfmed.com/become-a-patient
https://ldnresearchtrust.org/

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