To heal you have to feel it and to feel it you have to be present with it.

When Ashley Jones’s infant daughter Skylar was diagnosed with SMA (spinal muscular atrophy), she wasn’t unfamiliar with grief, but she had no idea how Skylar’s illness and death would propel her into a new world of supporting others. What started as a photo session for a family grieving the death of their baby, has grown into Love Not Lost, a non-profit that provides free portrait sessions for families facing a terminal illness. Love Not Lost also offers tools and training for family, friends, and employers who want to provide useful support to those they care about.  Follow Love Not Lost (@lovenotlost) on social media for updates on their events and opportunities.