After my diagnosis with Parkinson’s disease, my first call was to the Parkinson Society of British Columbia. They were quick to offer information on support groups and mailed a packet of brochures, handouts and relevant information that immediately made me feel less anxious and more informed. That is why each year my family raises money and walks in the Parkinson SuperWalk in Vancouver. This year we had a team of 12 walkers on our “When Life Gives You Parkinson’s” team and my 10-year-old son Henry went door to door in our neighbourhood to help raise funds. His efforts contributed $160 to our team.

In 1990, a small group of volunteers in Toronto decided to walk up Yonge Street to raise awareness for Parkinson’s disease and they called it “SuperWalk” due to the long distance. This year, Parkinson Canada held more than 82 SuperWalks across Canada with 10,000 participants and exceeded its goal of raising more than $2.4 million. While that seems like a great amount of funding, Jon Collins, Associate Director of Events and Partnerships for Parkinson Canada says, “The reality is, with 25 Canadians diagnosed every day, with our population aging, and (the number of people with) Parkinson’s expected to double by 2031, we are anticipating growing needs.”

Organizations like Parkinson Canada are privately funding, there are no government dollars, and they rely on individual donations to maintain their programs and advocacy. 

Parkinson’s IQ + You

I want to thank the great people in Atlanta for their hospitality as the Michael J. Fox Foundation’s “Parkinson’s IQ + You” blew through town earlier this month. Each event will be highlighted in upcoming Extra Dosage episodes. If you live in the United States, I hope to see you soon! These daylong, educational and empowering events for people with Parkinson’s and their care partners are free. See the full schedule and register for free here.

Saturday, December 14, 2019, Anaheim, California.

Saturday, January 11, 2019, Phoenix, Arizona.

Other sites recently announced include South Florida, Chicago, Oakland, and Houston.

If you have a comment or question about the podcast, you can email us: [email protected]

 We invite you to add your voice to the show and leave a message for us here; https://www.speakpipe.com/WhenLifeGivesYouParkinsons

Follow me, Larry Gifford 

Twitter: @ParkinsonsPod

Facebook: Facebook.com/ParkinsonsPod

Instagram: @parkinsonspod

Follow Co-host and Producer Niki Reitmayer

Twitter: @Niki_Reitmayer

Special thanks to…

Andrew Davenport, Chairman of the Board of the Parkinson Society of British Columbia

Caroline Wiggins, Education & Support Services Senior Coordinator for Parkinson Society of British Columbia

Jon Collins, Associate Director, Events and Partnerships , Parkinson Canada

Henry Gifford

Our generous neighbours

and my loving wife Rebecca Gifford

For more info on our presenting partner Parkinson Canada head to http://www.parkinson.ca/

The toll free hotline 1-800-565-3000

Or follow them on Twitter @ParkinsonCanada

Thanks also to our content and promotional partners

Parkinson’s IQ + You– A free, series of Parkinson’s events from the Michael J. Fox Foundation

Spotlight YOPD – The only Parkinson’s organization dedicated to raising awareness for Young Onset Parkinson’s disease. 

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