In this emotionally charged episode, Dr. Linda Bluestein talks with Tilly Rose, the founder of That Oxford Girl and the author of Be Patient, about what it’s like to face palliative care as a young adult and come out the other side fighting for change. They explore how Tilly transformed her private pain into public advocacy, why chronic illness is so often misunderstood in young people, and what happens when you rewrite your identity in the face of a diagnosis. This is a story of resilience, reinvention, and the radical act of showing up when the world doesn’t know what to do with you.

Takeaways

What happens when a diagnosis rewrites your life story and how can you reclaim the pen?

Tilly shares the moment that inspired Be Patient and the raw honesty behind turning medical trauma into a memoir.

Learn how she balanced life at Oxford with hospital stays and how those parallel worlds reshaped her idea of “achievement.”

Why do so many young people with chronic illness feel unseen and what does Tilly believe needs to change?

Discover how That Oxford Girl evolved from a quiet act of self-expression into a global movement of validation, empathy, and empowerment.

Tilly reveals why sharing her story became both a lifeline and a catalyst for a more compassionate future.

Find the episode transcript here.

References & Resources: Find all articles mentioned in this episode at bendybodiespodcast.com.

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