Living With Endo

Melissa Barbieri played 86 games for the Matildas, went to four World Cups and an Olympic Games, and is still playing at 46. She was diagnosed with endometriosis at 16 and told almost nobody. In this episode she talks with Ellie Angel-Mobbs about the diagnosis that only happened because of a cyst, managing symptoms across a 13 year international career, losing her fallopian tubes, four rounds of IVF, and why she says the stigma around periods is based in ego.

What if your experience with endometriosis could help shape the future of diagnosis and treatment — not just for you, but for millions of Australians living with the disease?

In this episode of Living with Endo: The A to Z of Endometriosis, host Ellie Angel-Mobbs sits down with Dr. Cate Broomfield, Senior Research Associate and Clinical Psychologist at the GRACE Unit, Royal Hospital for Women, to unpack the National Endometriosis Clinical and Scientific Trials (NECST) Registry — what it is, why it matters, and how you can be part of it.

Together they explore:

• What the NECST Registry collects and how your data is kept anonymous
• How centralised research is reducing survey fatigue for endo warriors
• The real-world wins already emerging from the registry
• Why long-term follow-up data — even success stories — is critical to understanding endometriosis
• What's standing in the way of people contributing, and why it's worth pushing through
• How to sign up and make a difference today

Whether you've been living with endo for years or have just received a diagnosis, this episode is a powerful reminder that your story matters — and that sharing it could change the future of endometriosis care in Australia.

Kat the Label's Kate Nixon joins host Ellie Angel-Mobbs to talk about her journey with endometriosis, the endo community, and Kat the Label's new range of pyjamas supporting Endometriosis Australia.

Alex shares her experience at Endometriosis Australia's AFC Women's Asian Cup health hubs, where fans can pop in and familiarise themselves with endometriosis. She reflects on playing sport with undiagnosed symptoms, the Endo Playbook petition to improve sport participation for teenagers, and highlights new translated resources and the popular, empathy‑building period pain challenge.

Endometriosis Australia's EndoChamp and Priority Populations Working Group Chair Ruhee Meghani joins host Ellie Angel-Mobbs to discuss the healthcare inclusivity for communities facing barriers to care.

Endometriosis Australia's Client and Program Manager Divya Gokal joins host Ellie Angel-Mobbs to discuss the world-first Endometriosis Workplace Accreditation Program, EndoThrive.

Philanthropists Lily and Anna Ainsworth join Ellie Angel-Mobbs to discuss their family's landmark $50 million donation to contribute to finding a cure for endometriosis through the new Ainsworth Endometriosis Research Institute (AERI) at UNSW.

Professor Caroline Ford, researcher at UNSW, joins Ellie Angel-Mobbs to discuss the landmark $50 million funding announcement for the new Ainsworth Endometriosis Research Institute (AERI), where researchers are hopeful to discover a cure for endo.

Kate Nixon, founder of Kat The Label, joins Ellie Angel-Mobbs to share her journey with endometriosis, fertility, and fashion. Plus, she's designed a stunning Limoncello set, with 20% of sales supporting Endometriosis Australia. Shop the set now!

In this episode, Ellie chats with Nola Marino MP, an Endometriosis Ambassador who has dedicated her career to raising awareness, and her daughter, Kylie, who shares her personal journey with endometriosis.