Living Well with Multiple Sclerosis

MS symptoms and diagnosis: from clinically isolated syndrome to multiple sclerosis | S8E14


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What happens when you experience MS symptoms, but don’t yet have a diagnosis?

In this episode of Living Well with MS, we hear from Maureen Haith, who first experienced neurological symptoms in 2002 but wasn’t diagnosed with multiple sclerosis until 2019. Along the way, she was told she had clinically isolated syndrome (CIS) – a term many people are unfamiliar with, but which can be an early stage of MS.

Maureen shares her experience of recognising early symptoms, navigating uncertainty, and deciding when and how to tell others about her condition. She also reflects on how discovering the Overcoming MS programme influenced her lifestyle, from diet and exercise to building community through local support groups.

This is a thoughtful and reassuring conversation for anyone facing MS diagnosis uncertainty, exploring practical ways to take control and make sustainable lifestyle changes over time.

Watch this episode on YouTube. Keep reading for the topics, timestamps, and our guest’s bio.

 

02:02 First MS symptoms: fatigue, tingling and early warning signs

03:49 New symptoms appear: changes in walking and sensation
04:55 What is clinically isolated syndrome (CIS) and why it matters
07:38 Deciding when and how to share an MS diagnosis
11:37 MS risk and family: understanding genetics and environment
14:23 Discovering Overcoming MS and making lifestyle changes
16:35 Finding support: building connection through local MS circles
20:19 Following the MS diet while travelling and eating out
26:03 Managing weight on a whole food plant-based diet
29:29 Coping with brain fog: practical tools that help
31:33 Advice for newly diagnosed: start small and build gradually

  • Read all of the Overcoming MS books
  • Find plant-based restaurants on the Happy Cow website
  • Check out the Chef Cards for eating in a restaurant
  • New to Overcoming MS? Learn why lifestyle matters in MS - begin your journey at our 'Get started' page
  • Connect with others following Overcoming MS on the Live Well Hub
  • Visit the Overcoming MS website
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