March 17, 2025

Rare & Resilient: Navigating Pediatric Rare Diseases with Rarus Med | Pediatric Pharmacist Review

51 minutes

In this episode, we’ll explore the unique hurdles faced by children with rare conditions, the latest advancements in treatment, and the vital role of collaboration between healthcare providers, researchers, and families. Join us as we speak with experts Isabelle Vacher and Dana Tate from Rarus Med to shed light on how innovation and advocacy are shaping the future of rare disease care. Let’s navigate this journey together—because every child deserves hope and resilience.

Isabelle Vacher

Founder/Nurse/Educator/Mother of Daughters with Rare Diseases

"Our educational ecosystem embodies my unique perspective as a nurse, educator and mother who has navigated the complex journey of having two daughters, each with different rare disorders. I have ten years of nursing experience and over two decades of experience designing, developing and implementing healthcare provider continuing education and patient/family education.

Collectively, this experience infuses RarusMed/RarusGalaxy with a deep understanding and a personal commitment to addressing the multifaceted challenges, opportunities and triumphs of the rare community."

Dana Tate

Director of Public Health Education

Leveraging her background in public health, health education, biomedical science, omni-channel marketing, content development, and rare diseases patient advocacy, Dana leads strategic efforts to empower patients through education, resources, and support networks within the RarusGalaxy platform.

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