This ASPEN podcast series is based on the Nutrition in Clinical Practice Supplement titled ‘Unmet Needs in Short Bowel Syndrome’ published in 2023. This episode features Vanessa Kumpf, PharmD, Swapna Kakani, MPH, and Marie Neumann, MA, focusing on the patient and family-centered approach in the management of short bowel syndrome. This podcast series aims to educate clinicians on the current state of evidence in the management of SBS, stimulate ideas and questions for future research, and provide information in patient-friendly language to better educate and improve the health of patients with SBS.

This podcast is supported by Ironwood.

Recommended Patient Resources:

National Cancer Institute's Patient-Centered Communication in Cancer Care – Promoting Healing and Reducing Suffering

SBS Conversation Guide:

Let's Talk SBS Conversation Guide PDF

Let's Talk SBS Appointment Checklist PDF

G.U.T. Gain Understanding of Transitions – A Guide to Key Milestones in Short Bowel Syndrome:

• Key milestones include with the addition of a glossary and several resources:

• Basics of Short Bowel Syndrome

• Going home (ie Discharge Checklist, Adjusting to Life at Home)

• Off to School (ie Communicating with School Staff & Preparing for Emergencies)

• Adolescence (ie Addressing Concerns and Emotional Struggles and Fostering

• Independence with Healthcare Team)

• Transitioning to Adult Healthcare

The Gutsy Perspective: community-driven research on life with SBS | the gutsy perspective

Patient-Centered Outcomes Research Institute (PCORI): https://www.pcori.org/

The Promise of Patient-Led Research Integration into Clinical Registries and Research Scorecard:

Patient Engagement Management (PEM) Suite: https://pemsuite.org

Business Corporate by Alex Menco | alexmenco.net

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Creative Commons Attribution 3.0 Unported License

creativecommons.org/licenses/by/3.0/deed.en_US

January 2025